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I'm concerned for my Daughter

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Posted 2/27/2009 7:28 PM (GMT 0)
Gees, just when u think u got it all under control, something else springs up - this time it is my daughter.  She is 26. My daughter and us just celebrated in October 2008 the birth of her first child and our first grand child.

Months before she became pregnant, she started to have signs of things - which incidently were similar to mine at the time - which included dizziness, head fog things, numb arm, tingly fingers, anxiety, vision problems, etc....  she had actually gone to a doctor, who referred her to a neurologist, cause the doctor said her signs were that of MS (imagine,, right off the bat - what a novel idea) and wanted tests done.  Well she had an MRI way back when, which came back negative, however - I guess someone did not have the understanding that if it was MS, the damage would start before it showed up on an MRI - so because of this, they just wrote her off as a head case that needed drugs to settle down. So she went on ant- depressants.

Well she got pregnant - and went off the anti depressants, and well, everything was great. No anxiety, dizziness, no tingling etc.....baby was born in October, all good, went into the New Year - all good, and then bang!!!!! Big Bang!!!!! Dizzy, anxiety thru the roof, vision problems, and I am not sure if the tingles have come back. Basically back to where she was before she became pregnant.

Then I read about PROLACTIN - a natural drug that is made in the female body during pregnacy, and it is common for all MS symtpoms to disappear during pregnancy and then return a few months later after birth....

Am I just being completely paranoid here??? Maybe, but I was waiting and waiting for this to happen, and when I found out last night, I just about fell on the floor - cause what I have been waiting for became true.

I dont' want to necessarily alarm her, as I am sure that this is the last thing that is on her mind -  MS - but I do think it needs to be investigated - but how am I going to pull this one off, both with her, and then convince the medical profession that this needs atttention - or should I just cool my heals and see what happens from here?????

Dad looking for help!!  And be up front with me if you think that I am jumping the gun a bit on this one....

Thanks  Gary

 

Posted 2/27/2009 8:57 PM (GMT 0)
Hi Gary,

I am 27 and was dx with MS 2008. I too had similar symptoms to your daughter, the anxiety, numbness pins and needles etc the year before and like your daughter the doc told me it was an ear infection, then it was my blood pressure, then they told me I may have bells Palsy. I have 2 children and was fine all through my pregnancies, I was admitted to hospital in Feb 08 as a new doc thought the symptoms I had were concerning I was giving MRI and it showed slight leasion, and was told to go home they couldnt do anything for me, then in march 08 I had "disabling relapse" and was admitted again, this time i had a full body MRI and a lumber puncture and MS was DX. One of my friends had the exact same sysmptoms as i did and had, hers was mostly vision and pins and needles, i spoke with her on tue there and she has been diagnosed as something totally diff (i cant recall the name of her illness) but it is similar symptoms to MS and epelipsy.

As a parent i dont think you are jumping the gun and i think the sooner a dx is made no matter what it is, the better, for me personally the not knowing and quite frankly thinking that i was going off my head was the worst, now I know what is wrong with me i am on meds and i can deal with it better.

My grandfather had MS and when this first started with me my mum kept it to herself that she thought my sysmptoms were similar to my grandfathers and it wasnt after i was dx she told me this, she said she didnt want to alarm me and to be honest i am glad she didnt tell me as I think all sorts would have went through my head, maybe if you push the doctors to look further into things for her you may get a bit father with diagnosis of some sort and it may not be MS.

I just wanted to let you know that I have been in the same place as your daughter and at this age it is frightening I bottle things up and kept the worry to myself, not to upset my parents and they did the same.

I hope you and your daughter get some answers soon and can then focus on how to move forward.

Let me know how things go and i wish you and your family well.

Love

michellexx
Posted 2/27/2009 9:06 PM (GMT 0)

Meche, thank you for your kind comments, and wishes, means alot.  Just to confirm something, when you were pregnant, did your symptoms go away?

Thanks and have a fantastic weekend.

I just have to add, I know when you look at the stats, the chances of my daughter getting MS, seeing that I have it is around 2 per cent....which is pretty darn low - but I am having some problems with these stats, as I just know two many people whose parents had MS, now the kids do - heck right where I work, there is a lady I work with, she is one of 4 sisters, all have either MS or Lupus.....so I'm not so sure about the stats.

And I know, even though she was never dx, that my mother had MS....didnt know it then, didnt know it a couple of years ago, but I sure do know it now!!!

Again thanks, and yes if you could answer the no symptoms while pregnant, that would be great

Gary

Posted 2/28/2009 6:42 AM (GMT 0)
Hi Gary,

So sorry to hear about your concerns about your daughter- I worry about mine too. My mum also definitely had MS tho never dxd. I have neighbours who are friends and the man has MS & four daughters - I with lupus/chronic fatigue, 1 with diabetes 1, & 1 with MS symptoms - scarey stuff. The good news is there is a lot of stuff available if you tackle it early. The best I have read recently of is one devised by English microbiologist (his wife has MS & has followed his programme and is very much improved although she was SPMS). It involves taking specific different antibiotics for 3 years it was on our TV recently & I read about it on a website called ThisIsMS.

And yes I have definitely read that the hormones generated during pregnancy are hugely beneficial! Good luck.
Posted 2/28/2009 3:37 PM (GMT 0)
Hi Gary,

yes during my pregancies I had no symptoms other than pregnancy related. my youngest will be 6 in July and it was only when she was about 3 i had noticeable sysmptoms, although my MS doc asked about my history and I had a relapse bout 8 years ago that lasted 24hrs.
When I was diagnosed with MS i was given booklets for woman during pregnancy etc and one of the things was that during pregnancy the symptoms of MS dont occur and its not until about 6mths after the birth that alot of woman experience a relapse.

I think it is strange also that we are told MS is not genetic, but my grandfather had it and a few people I know who have MS there relatives have it also but I live in Scotland and we have one of the hisghest dxs rates, maybe its just a coincidence but I am not sure, think everyone has diff thoughts on it and as everyones symptoms differ its hard to tell. i have relapsing and remitting MS and thankfully I had a ms specialist who helped me get on the medication quickly. since being on them I feel my quality of life has vastily improved and long may it continue.

hope you have a great weekend and speak soon

Regards
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