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MS fatigue or something else?

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Posted 3/1/2010 10:45 PM (GMT 0)

Hi everyone

I'm hoping to get some accounts on how fatigue effects different people. I've had MS now for 9 years and the last year or so i've been suffering really bad from fatigue but i'm not sure if it's because of MS.

I'm tired all of the time, my legs are almost always weak to some degree and my knees are often stiff and ache. I know my symptoms sound like ms but it doesn't feel like it is to me. I feel "ill". I know thats sounds very general but thats the only way i can describe it. As well as feeling tired and weak i also ache from head to toe like i have the flu, i can't concentrate at all, i get very irritable with people and most days i'd be much happier if i could just stay in bed and sleep. I feel like i'm getting worse, when my fatigue started i didn't have it everyday. I would have more good days than bad and if i rested i would get enough energy back to do something, now it doesn't seem to work. I didn't even have enough energy last night to go to the cinema with my husband.

Does anyone else feel this way because of their fatigue or could there be something else wrong with me? I've been tested for anemia and my iron levels were fine.

Posted 3/3/2010 2:01 AM (GMT 0)
Kat13........ Just curious........... Have you ever had problems with depression? Or been tested for rheumatoid arthritis? I am by no means a medical professional, but as a caregiver to my spouse{lupus sle} these symptoms sound familiar!...... Auto-immune disorders often converge, and become very difficult to diagnose........I wish you the best of luck....radpetey
Posted 3/5/2010 2:30 AM (GMT 0)
   Sorry to hear you are feeling so bad, I have had MS 17 years now and you describe basically what I have been feeling myself. I am currently trying to get out of a 3 month flare and would love an answer for fatigue myself. All I can say is  treat it with the whole of the dx and diet and stress anr my center points. I feel at times if your body is saying "rest" perhaps we should listen and not fight it sometimes but I am Primary/Progresive now so "All of this could be wrong" lol it's MS. Prayers. cheer uptongue
Posted 3/9/2010 12:55 PM (GMT 0)
Very good morning, Cat:

 

As has been discussed on this forum, as well as several other boards I have been on, fatigue is the top symptom bugaboo of our disease...

 

And it is the kind of fatigue no one can understand unless you are another MS patient...

 

For the past 5 years, my neuro has prescribed Provigil for me...it does  not bring me back to pre-MS days, but it helps a bit...

 

Great Luck.  John Francis

 

 

Posted 3/12/2010 1:35 AM (GMT 0)
Kat13,
Your post totally describes where I am at with my MS, feeling so out of it! So nice to read a post I can relate to. This is my first time on here, so thanks for your post!
Posted 3/12/2010 6:52 AM (GMT 0)
Kat 13,

Your symptoms could be from MS, but it doesn't hurt to look into other explanations.  Once you break into the world of autoimmune diseases you are more susceptible to other problems.  I was diagnosed with fibromyalgia only 6 months after my MS diagnosis.  Like MS, fibro produces heavy fatigue.  It is also responsible for stiffness and soreness all over my body. 

Your best bet is to discuss these problems with a doctor you trust.  My primary care doctor tested me right away for rheumatoid arthritis and sent me to a rheumatologist to be checked for fibro.  A good doctor should be able to point you in the right direction.

Good luck.  :)

Posted 3/12/2010 2:22 PM (GMT 0)
My Neurologist put me on Provigil, sometimes it helps, sometimes itdoesn't. On the days it doesn't nothing gets done, I feel useless, get depressed, it is a nasty circle.
Posted 3/16/2010 4:24 AM (GMT 0)
Hi Kat!  I was diagnosed with MS only 1 1/2 years ago and this sounds a lot like what I am experiencing too. I am always so tired, my body aches, especially my legs. I feel like I could sleep all the time and then poof one day I have a burst of energy only to find that the next day I am down worse than ever. In theory it sounds so much like depression but it doesn't feel that way to me. I'm happy and I enjoy life and the things I do, but I'm so drained all the time. I've also had many blood tests done to see if there are other problems going on and none can be found. I find that when I am most tired nothing on my body works correctly and my gait and vision seem to worsen. If anyone has any advice on this it would be greatly appreciated. I exercise, eat well, and try to take good care of myself but it all seems futile sometimes.
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