Hi, I've also posted on the Lyme forum, as I really don't know what is causing my symptoms.
I apologize in advance that this will be a long post.
about 17 years ago, I woke one morning and couldn't move my legs. The doctor was called, and I was sent to a specialist, who performed x-rays (I don't think MRI's were used as extensively back then), but no explanation was ever forthcoming.
about 5 years ago I had a few things happen, which is why I'm considering it could be Lyme - I developed an all-over body rash and then joint inflammation which subsided in weeks; both were attributed to viral infections.
Then about 3 years ago, I began with a whole host of troubling symptoms, from which I still suffer: I developed a roaring, vibrating tinnitus in my left ear, dizzy spells and left sided headache/eye pressure. I had an MRI which came back normal.
I woke up on two occasions, about a year apart, with out of focus, blurred vision, which came back to normal after a few hours, leaving my eyes painful. I now sometimes get blurred vision, and have noticed that my left pupil dilates far more than the right one.
At about this time, I also began to wake up feeling the life drain out of my left arm, and occasionally my left leg. This now happens frequently - the sensation doesn't return for hours properly some nights. I now have frequent pins and needles and numbness in my left hand and foot; my feet feel like lead and my left foot feels as though it's immersed in cold water often. My right side is occasionally effected too. I have an almost constant tremor in my left index and little finger, and I get an internal vibration running right through my body.
I usually feel exhausted, weak and lightheaded, and sometimes quite nauseus.
I did see a neurologist in February, who carried out a neurological assessment, which I passed. She said she didn't think it was MS, as I wouldn't have good and bad days if it was, just bad ones - I've since learned that this statement was not really correct. I think I was a bit naive, as I don't know much about neurological conditions, and didn't mention the incident 17 years ago, or the fact that I'd woken with blurred vision a couple of times; I thought my current symptoms would have sufficed to have further testing and didn't want to seem overly paranoid - I really wish I had told her everything now. My own fault, I guess.
I have another appointment with a doctor shortly, and am going to push for more testing, for MS and Lyme.
Any advice would be very much appreciated. Thanks.