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Posted 11/21/2011 2:50 AM (GMT 0)

I was dx Dec 29 of last year.  It has been almost a year.  I am on Copaxone and I feel like that is going well.  Besides my initial exacerbation that led to diagnosis, I've experienced balance issues, muscle spasms, fatigue, and cognition issues that persist.  Overall, however, I feel very good and I am thankful.

I rely on forums like this to stay connected to people who understand me.  While my family is pretty supportive, I still feel alone.  Do others feel that way too?  I am worried about my future.  I don't wan to "borrow" trouble from tomorrow but I do worry about what my life/health will look like in 10...20...30 years.  Or even tomorrow!

I had vertigo for a month and a half prior to diagnosis, went to the emergency when my right side of my body wouldn't behave correctly...and then three days later - YOU HAVE MS!

I don't know.  I'm blessed.  Healthy.  Thankful.  And I know there are many of us with MS doing waaaaay worse.  But I guess the feeling of being by myself is a little tough.

I appreciate any thoughts you all can share.

Posted 11/22/2011 1:15 AM (GMT 0)
It gets a bit easier to wrap your head around as time goes by. You have a good head on your shoulders and you are actively seeking support to deal with the MonSter. Good for you!!

A much as you don't have control over this disease, you do have control over your reaction to it. Keep fighting!! Live for the good times.
Posted 11/22/2011 4:21 PM (GMT 0)
Thanks for the encouragement. I'm glad to hear it gets easier as time goes on. Sometimes I feel just fine emotionally - strong and joyful, and other times I start thinking about my mortality and future and my daughter and.......
Anyway, I'm thankful for this forum and I appreciate your words.
Posted 12/14/2011 8:10 PM (GMT 0)
Hi there I have not posted here for some time, so nice to be here reading and participating...

to start off with, Merry Xmas and the best to u this holiday season.

It does get easier...I was dx 4 years ago this month. You learn to cope.  Things that bothered me 4 yers ago do not bother me any more, they are still there, I have just grown use to them.  The copaxone seems to be working for me as well.  I am not worst off then I was 4 years ago, and in some cases, I am better.

What lies ahead of me in the years to come, who know...no body knows....in the small town where I live three kids were killed in a car accident here last week...no one seen that coming, and who would have ever expected these young lives to be cut off so soon, so quickly...

I have a good friend who has been battling cancer for 15 years now. He was told that he would not see 3.  Bet he or us never seen this coming either...so no one knows..

All I can say is embrace what you have right now, hold onto it tight.  Love it. Cherish it...and let tomorrow be what it will be, without worry , or concern, cause there is not a dang thing we can do about it...

Hope u have a wonderful day...

Gary

Posted 12/15/2011 5:24 PM (GMT 0)
Thanks for that Gary! It's true, there is not a dang thing we can do about it. Most of the time I am joyful and enjoying life but every now and again, the seriousness of this diagnosis just slams me. I'm glad to hear it gets better and that I will settle into a new reality. I have a friend with Lupus (for 8 yrs now) that says the exact same thing.

Blessings to you! And MERRY CHRISTMAS!
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