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Headache MS? Please help I feel like I'm dying

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Posted 5/11/2012 1:28 AM (GMT 0)
Hi All,

I need help ! 6.5 years ago I was at mygranddaughters 4h event. Suddenly

I felt nausous with flu like symptoms, chills and aches. Went home and to bed

symptoms lasted for several days to long to be the flu. After several days it

went away. Weeks later I got up one morning and found a rash or what I thought was a spider bite on my upper thigh after several days  I went to the Dr and he treated for hives that lasted off and on for a year. Later I began to develope pressure headache in back of head, nausea and shaking on the inside. I continue to get these headaches had hot spots and edema around ankles. Along with pressure in ears. Saw ENT who said it was high bood pressure. At one time I could take Sudifed and headache would go away. Not any more. Had MRI (clear) I get deathly sick to my stomach.No fever Going for another MRI Monday.Sed rate was 40 first time second time 20 doctor seems lost?

Any ideas, if I lay down put ice on the back of my neck headache and pressure

usually goes away but will start back in if I get up and start moving around.Dr

thought maybe migraine but Imetrex doesn't help. These symptoms with

the headache come and go can be there one minute and gone the next or

like now stay for 2 or 3 weeks

Help please?  Gretchen ?

Bri

 

Posted 5/11/2012 1:34 AM (GMT 0)
I may also wake up one morning and legs feel weak then wake up the next and it be my arms instead or maybe nothing It appears to come in waves of tremors and

nausea hear one minute and gone the next.

Bri

Posted 5/11/2012 2:00 AM (GMT 0)
Hi Bri,
I'm sorry you have been in limbo for so long. Your symptoms don't really sound too much like MS. They sound more infectious. Have you been tested for Lyme disease? Pop on over to the Lyme board and check their info. They have a new to Lyme section.

MS doesn't usually have chronic rashes or edema. Symptoms also don't typically move around from legs to arms. My symptoms correlate to the damage to my nervous system. For the most part, the symptoms I have are permanent.

Please ask as many questions as you'd like. Best of luck. I hope you're better soon.
Posted 5/21/2012 11:17 PM (GMT 0)
Hi  turn

Been dealing with MS for a while, and also with the headaches - right occiptal(sp) lobe.  I was given the same drug as you to treat them, and they did no good at all.  Best thing I've found, is take an ice pack, lay down on it and get the neck cooled.  Put another flexable one across your eyes, and try to make sure that it extends from temple to temple.  THEN, do your best to fall asleep.  9 cases out of 10 with mine, the headache is gone when I wake up.

Best wishes,

MSkid

Posted 5/31/2012 2:41 PM (GMT 0)
If I am reading it correctly, your symptoms sound like what happened to me when I had a spinal tap for medication. Just wondering, has there been any changes with in you life? sometimes stress can play a part in our lives that we never knew about.. What does your Dr say about everything?
Posted 5/31/2012 6:23 PM (GMT 0)
Sorry for taking so long to write back - I travel multiple directions on most days.  All 3 of my Dr.s agree that my headaches are basic migraines, but believe that the MS is responsible since I have an active lesion in that area (it never seems to take a break).  They all agreed to put me on a different drug called "butalbital" for them, but honestly, I've learned that if I take 3 tablets of Bayer Back & Body, it does better than the script stuff. Only problem is that it is 1500mg of asprin, and it makes me hyper - Dr. said I was getting hyper because of the caffine in it - also said it was one reason it worked so well, and she told me to use it if it worked better.  As for stress in the life, WELL, that seems to be an everyday event. It's a major adjustment for me having to go from the role of caregiver to the role of "caregetter" (as I call it). I have spent the last couple years trying to adjust to the fact that I can't do what I always did in the way that I used to do it.  I've had no spinal taps (although I think I've been put through every other test ever invented including a Psychiatrist), and the drugs I take have been ruled out as being the cause of the headaches.  So far, there has been no explanation other than the MS.  The MS along with the glaucoma have really made life an adventure, and I still get 3 - 4 of these wonderful headaches a week.
Posted 5/31/2012 6:38 PM (GMT 0)
I have never head of "butalbital", I guess, if you find something that works, stick with it. I understand about not having you past life, I was an STNS and as soon as I got the DX of MS, I was doing home health care and I got all the MS paitents, so I got to see what was a head for me I guess. Like you, it is a change from being the "giver" to "getter".
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