A-lot of DR appointments Still NO Answers!!!

It's been awhile since my last posting, I hope SOMEONE can tell me something????


I have seen a new neurologist He is the only person thus far who seems to care.

He sent me for more lab work and MRI of the cervical and spine, he has NO answers. I have results from my brain MRI and it showed multiple white matter, the exact wording of the impression is:

There is T2 hyper intensities are greater then expected in patient of this age.

There is grossly normal flow-void in the major intracranial vascular structures.

Spotty T2 hyper intensities in deep white matter in the cerebral hemispheres, differential diagnosis includes small vessel ischemic disease, remote traumatic and inflammatory insults or demyelinating disease

Spinal tap: findings: Oligoclonal bands,SF The patient's CSF contains multiple restriction bands that are also present in the corresponding serum sample. we are unable to define whether these gammaglobulins are of systemic or intracerebral origin.

Abnormal involuntary movement Nec/tremors

MRI #2 Findings:

Normal thoracic spine pathology

Cervical stenosis:
There is straightening of the cervical lordosis, There is minimal central protrusion at C3-C4, minimally indenting in the thecal sac, there is minimal bulging at C5-C6 the other disks are normal
There is facet and uncinate hypertrophy with at least moderate right C#-C4 neural formanial narrowing.
Correlate for right C4 radicular symptoms.

Eye Dr. I have Dry Eye Syndrome, and start of Cataracts


So Yes I'm as confused as before, So my new Neuro. has now referred me to a Movement Disorder specialist. he cant find the answers... So any Hope anyone????

Hi Gretchen,

I hope all is well with you.
No he said he had nothing, he said he feels this is the best solution for me. (which I agree), he said he does not want to guess at what it could be. at first he thought my Hoshimoto, because my counts were way off. But then he said no so I'm happy as I said he seems to be the Only Dr. that seems to care for the results. On my second visit my blood pressure was high and my pulse, he called me later to see how i was and wanted me to make sure i let my Dr know. so He is a very nice caring Dr.

I hope to have something soon. Do you have any ideas as I posted my exams so far??

My Dr. already know about it.
I'm waiting for them to call it usually takes a couple of weeks for the insurance approval.

They (my Dr's.) all have done so many test and they came back normal they said

My Primary think PD, last Neuro. said the Fibromyalgia, new Neuro, thought Hoshimoto, and Rheumo. seen my MRI and asked have they mentioned MS. so I really don't know.

Hello Harleybug1,

I appreciate your comment. I would Love to hear more about your Journey.
How did your symptoms start ?

Did you have any of the same issues that I have?

I have spoken to several people and I have seen so many videos of people with MS, and they are all the same thing I've been going through. Some have a little different.

I finally see the movement disorder specialist on the 22nd. I Sooo can't wait.

Hello, harleybug1, and Snoopy

I had a MRI in 2012 that showed spotty white matter in the subcortical, and then I had one early this year and it showed white matter in the cerebral. I don't know if you have read my full story, sorry it is a little long, and then i have posted updates here and there. I had a spinal tap and the results are on the post.

If you'd Please read my history and give me an opinion I would So Appreciate it. Thank you...

My mri said the same thing ...could be other infectious cause ...see cpnhelp.org

Hey all sorry it's been awhile my movement disorder dr. has diagnosed me thus far with
essential tremors, cervical dystonia, spasmodic dysphonia, depression/anxiety .

Hello Gretchen,

There are no cures for it like MS they can try and treat it with meds. so far none have helped.

I have good days were I have no tremors. I'm constantly numb and this feeling of currency and spasm's through out. this is so frustrating. did you read my last post about the mri showing demyelinating process?

I see a new neurologist on the 11th of Feb. my neuro is leaving to Virginia so I dunno. and I see the movement disorder again on the 8th.