Finally diagnosed.

After years of frustration and misdiagnosis, I gave up on my "probable MS" diagnosis. I agreed that maybe I did have fibromyalgia. Turns out I do not.

In July, I began driving erratically. I would catch myself jerking the wheel back and forth. My son told me to go get my eyes checked, so I did. While I was there, I notified them of the lesions in my eye that were found two years ago. I explained i have no answer for them, but other than a few flares a year where I can not see well, all was okay.

As luck would have it, ( thank goodness for electronic records) I was diagnosed by an eye specialist two years ago. The new eye doc read his diagnosis, sent pics to my neuro and told me to go see him.

I scheduled a visit- and developed foot drop for 17 days and had it when I went to neuro. I failed the gait test and was diagnosed. Of course the giant new eye lesion-- and eye doctor's diagnosis helped tremendously.

YAY! I was so happy to finally have an answer--

This definitely proves how hard it is to diagnose, and I hope this gives anyone who is suffering with limbo or a mis diagnosis courage to keep trying to find a doc that's good and who will listen.

Be well yall.

Yes, I will be. Right now we are exploring my options covered by my terrible high deductible insurance. For now, I am taking high dose d3, lions mane mushroom, baclofen, steroids, and turmeric for pain/inflammation.

My insurance only pays for generics. Anything else is $$$$$$. I am going back to doc in a few months, and plan to have info from insurance about what they will pay for so that we can work out a better treatment plan. For now, my "mix" works most of the time. But during bad flares, all bets are off it's a juggling act to try to cobble together relief. I am researching specifically about drugs for fatigue. Mine is terrible because I live in the South. I will likely also need something for the foot drop as well at some point, as it's really severe.

I am not upset that I have MS. This has been a journey and I am a bit angry that I had no access to disease modifying drugs for so long. If I had taken them, I probably would not have so many issues. Being angry solves nothing, though. I have to deal with my progression, and work to figure out how to keep it at bay.

I have RRMS. -- but it has steadily gotten more severe.

I take turmeric with black pepper. I have no issues getting it to absorb and work. I also eat it a few times a week as well. I try to take it "as needed", because long term use is not very researched, nor advised by some. ( probably those who'd rather sell expensive pain pills. )

I did take it for seven months straight once, and it was by far the most pain free I'd been in years.


Thanks!

Im so sorry that you got the MS diagnosis but I understand your relief. It took 2 years to diagnose me and I finally said diagnose me or commit me. But really when that diagnosis comes in then you can begin the effort to fight the disease. The longer you have it and cant medically fight back the worse it can get (hopefully not in your case). I was really happy when they told me because I knew I could fight back and I didnt have a life threatening disease