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DOES ANYONE TAKE LOW DOSE NALTREXONE (LDN)?

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Multiple Sclerosis
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Posted 8/8/2006 3:04 PM (GMT 0)
Hi everyone

I usually post on the lyme board but I am very familar with MS as I was diagnosed with a progressive form 7 years ago.

I have read about LDN being used for treating MS with much success, and it's also been used in HIV, Cancer, Lupus, and Crohns disease.

If anyone has any info on this, good or bad, I would love to hear about it.

Kim

Posted 8/8/2006 10:40 PM (GMT 0)
Hi Kim,

It's a pleasure to meet you. I'm not certain if anyone here has tried it. To my knowlege there hasn't been a study done specifically for MS yet, but the claim is that it might help with spasticity, fatigue and progression. I haven't read much negative comments about it, mostly the ones who have tried it claim that it does help. I'm not sure if you are familiar with remedyfind.com but if you do a search there for ldn there are pages of personal experiences with the medication. I hope this helps.

Kimber
Posted 8/9/2006 5:31 PM (GMT 0)

Nice to meet you too Kimber.

Thanks for your reply.  I will definately check out that site.

Posted 8/23/2006 9:09 PM (GMT 0)

I have been taking it for 6wks.  Will stop to start Tysabri.  I have seen a little improvement, fatigue gone, stiffness a little less.  No doctor of mine would prescribe it, so I had to get it unconventional methods.  Do a search of Low Dose Naltrexone, you will find alot of info.  If it does not help it cannot hurt.  Cannot be taking any narcotics for pain, naltrexone is an opiate antagonist.  Hope you find the info.

Good-luck

vanesr

Posted 8/23/2006 9:47 PM (GMT 0)

Hi Vanesr

I am glad you feel this may be helping you.  To notice an improvement in such a short time is encouraging. 

I too am having a hard time finding someone to prescribe this for me.  My LLMD was going to look into it, but she wanted to speak with Dr Bihari and he is out on medical leave.  I did give her info and the web site but from the message I got that is not enough for her to rx. When I see her in person in afew weeks I will pursue further.   

I am going to make an appointment with my neuro to see what he says. I am getting impatient, I want to try this ASAP, as I am feeling worse and worse.   

I hope you continue to see more improvement.  Keep us posted.

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