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Posted 10/5/2006 3:49 AM (GMT 0)
Hi all.

I havent been here for over a year now, but remember and appreciate all the info and support I received from the caring people on this board. I'm not too happy to be back, because coming back means I have to acknowledge, and talk, and read, about things I'd much rather ignore, or pretend I don't have!

I'd like to hear from those who have problems with their legs/walking. Can you describe the problems, or put in to words what it feels like? If you wouldnt mind -please include how you cope with the leg/walking problems.

May be a strange question-but I'm having problems with my legs, and find the feelings very hard to explain, and also have no idea what to do about it. Getting the runaround from the doctors--but will save that for another thread!!   

I appreciate any/all responses.

Thank you.

~KSG

  

Posted 10/5/2006 4:00 AM (GMT 0)
Welcome back KSG!

 

Have you been diagnosed with MS? I have trouble with my legs feeling very heavy at times, also wobbly and weak.  Some times it feels like my knees are going out.  You can't really look at me and notice anything.  I'm on baclofen.

 

I also have noticed in the last month that when I'm relaxing by either sitting or laying down, I'll have a little twitch....it will move my foot or knee or finger, very weird.

 

Take care, we hope you stick around!

Posted 10/5/2006 4:21 AM (GMT 0)
Sounds like some of what i experience, the twitching, heavy, wobbly and the knees giving out at times. Sometimes they even fall or feel like they are asleep, and it doesnt matter if im sitting standing or laying down. On a few occasions they even felt floppy, like they werent really there. Well it mostly effects my right leg. Best of luck and hope you get comfort soon.
Posted 10/5/2006 10:36 AM (GMT 0)
My legs felt heavy. The sensation was like I was walking through deep mud -- I could move forward, but slowly. Numbness and tingling, which started at the ankle, then moved up through the calf to finally encompass the whole leg, then into the torso and down the other leg.

The knees would give out -- I'd be standing, or walking on a perfectly flat surface, and the knee would just stop working to support me.

Often my left leg (which, at the time was my worst leg) would just not support me.

Now (I've had MS for 23+ years) I use a wheelchair full time, so this isn't so much an issue.
Posted 10/5/2006 2:14 PM (GMT 0)
I am like Shellypoo. My legs feel wobbly and weak. Sometimes
like Jello almost. Floppy is a good word, whitedragons

Every now and then, a knee will just colapse like
Uppity and take me down with it.

I keep a fold up cane in my briefcase now, and on days when I am
really exhausted or feeling the effects of Vertigo, or my legs seem
so wobbly or so heavy that I think I may fall, I pull it out to
stablize myself.

At night when I am watching tv or in bed, they feel numb and when I
stand up I can't seem to make them work for a few seconds.
Posted 10/5/2006 9:59 PM (GMT 0)

Hey KSG

Probs with my legs is one of my biggest complaints. Like Shellypoo, i have the weakness, heaviness, wobbly, jello feeling, like they're going to give at times (tho they haven't) and lots and lots of pain at times. U can't look at me and see anything either unless they're hurting..then i find myself rubbing them, tho it does no good. I have definitely felt at times that my knees would not hold me up, tho they haven't failed me yet. They can be so weak that they feel 'soft' at times...like they would not 'lock' in place to hold me and i've had them actually flex and get to the point of not holding several times, but it's like it's obvious to me then and i can focus on holding them straight and they're ok. Make sense??

rhonda

Posted 10/5/2006 11:07 PM (GMT 0)
Hi ~KSG,

Leg problems are my #1 issue currently. If I walk the length of a hallway or walk too fast my legs begin to snap crackle pop and sizzle. It feels like a mini electrocution. This also happens when I bend my neck forward. (L'Hermittes sign) anyways, as a result I only walk short distances and use my wheel or powerchair otherwise. I am in PT but that is not helping with that problem.

My Dr. prescribed Lyrica 50 mgs twice a day for 15 days and then up to 100mgs twice a day. It worked well but left me spacey, hungover, and drowzy constantly. It became too much so today he prescribed Topamax. I will take one at bed time for 5 days, 2 for 10 days and then 3 from then on.

Has Topamax worked for anyone else?

Anyways besides the neuropathy stuff I sometimes have stiffness. I sometimes have heaviness but that has since subsided. I am scheduled for an EMG next month.

Hope that you feel better soon.

Soulflower*

Post Edited By Moderator (Kimber) : 10/7/2006 4:39:25 AM (GMT-6)

Posted 10/6/2006 10:59 PM (GMT 0)

Thanks everyone for your responses. I appreciate the info.

Well, I have 1 doctor saying yes, MS--and one doctor saying not  enough symptoms to diagnose MS. I, of course, prefer the latter!

I have a lot of trouble describing whats going on w/my legs. Seems like there's no exact words for it. My knees don't give out. It started from the knees down and is now the whole leg and butt/lower back (--probably sore because of the way I'm walking). It's not even that I can say they feel heavy, like jello, or like walking through mud. They are painful but it's not nerve, muscle, or sharp pain. More like weakness, like maybe I've walked 20 miles, and they're really tired. Feet hurt too. Stairs are a killer. Before this started I could shop for hours, walk all over the store--now when I leave the supermarket I'm hanging on the basket, walking real slow, exhausted, like I dread another step. It stinks. I have a real problem with not being able to do things like I always have. Very upsetting.

I'm so glad there is this site where others know what you're going through, and can help and be supportive. I guess I'll be sticking around for a while, as I really have no other support whatsoever.

Thanks!

~KSG   

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