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Posted 10/6/2006 2:15 AM (GMT 0)
Hello everyone,
I was wondering if anyone has or had endometriosis and how it was treated. I have read that endometriosis is 6-7 times more likely in a person who has MS. I had a GYN appointment today and she did a biopsy and is also having me do a vaginal ultrasound. She said there is a possibility that I might need a DNC. Anyway, I was just looking to you guys for some help and words of wisdom.

Thanks,
Lysha
Posted 10/6/2006 3:02 AM (GMT 0)

Hey Lysha

Geez, i hope u don't have this. I've never had it, but have heard it's pretty painful. I haven't seen this as a commonality with ms, but that doesn't mean anything because I haven't looked for it. I'll be watching for u'r update and i hope u'r results are clear!

rhonda

Posted 10/6/2006 3:30 AM (GMT 0)
Hello bgd2me,
I was diagnosed with MS in march of 2006.In June of 2006 I was diagnosed with severe endometriosis,so July 28 I had a complete hysterectomy. As for being related to MS I am not sure.The only thing I can really tell you is endometriosis is a very painful thing. Good luck and keep us posted.
Posted 10/6/2006 4:17 AM (GMT 0)

Hi,

I had severe endometriosis and had a complete hysterectomy in 1995 at age 29. Now I am beginning to wonder if it may have been MS related.

Soulflower

dxd june 06

Posted 10/6/2006 9:57 AM (GMT 0)
I've not seen a connection between MS and endometriosis, either (I haven't seen any literature about it). I've known lots of women over the years who have had to deal with this, indeed, very painful, and apparently can affect your ability to have children, if it is severe enough. None of them had MS, though...
Posted 10/6/2006 12:39 PM (GMT 0)
I didn't know the connection between the two either before the GYN told me about it. After my appointment I looked it up and sure enough there is.

This link is pretty interesting
http://www.findarticles.com/p/articles/mi_m0CYD/is_7_37/ai_84875727

Down twords the bottom it tells about how common MS and other autoimmune diseases are common with endometriosis. While other autoimmune diseases are more common, the link between MS and endometriosis is still there.
Posted 10/6/2006 1:02 PM (GMT 0)
Very interesting! Another one of those bits of information that one day might come together to actually find the cause..or causes..for autoimmune diseases...
Posted 10/6/2006 2:48 PM (GMT 0)
Lysha,

I was wondering, do you have MS?  I thought you had been diagnosed with lyme? 

 

 I had a hysterectomy 16 years ago when i was 26 for polycystic ovary disease and then they said I was beginning ot show signs of endometriosis but I didn't have any symptoms of it.  It is an interesting connection.

Posted 10/6/2006 4:19 PM (GMT 0)

Thank you for sharing the link. I will read it when I return home in a few hours.

I had been previously misdiagnosed with lupus or MCTD and I once read literature that there is a direct link between that and endometriosis. I had it really bad with SEVERE debilitating pain. When my Dr. finally decided upon the hysterectomy, (she initially refused because of my young age) I had progressed to the point of no return. I had endo, fibroids, adhesions, and cysts. My reproductive organs were fused together and my fallopian tubes were closed. She told me that I had had it for a long time. (I knew that lol) I started menstruating at age 11 and the excruciating pain was there immediately.

Ps. I just read in a book last night that there may be a link between the roseola virus and MS. My antennas went up again because I had the measles for the second time at age 15.

Soulflower*

Posted 10/6/2006 10:29 PM (GMT 0)
now i remember what i was going to say, i read this yesterday was going to respond and **poof** gone couldnt remember lol I never was diagnosed with endo but while going to a infertility dr and have laproscopic surgery to figure out why there was now spillage of ink on my right side. a procedure that was supposed to last maybe 2 hrs ended up 6, he had found that my falopian tube and ovary on that side were fused together and twice the size of my uterus. then when he inflated my abdomin more found tons of adhesions all over even on my liver. he removed them too. i too started at a fairly early age 12, but dont usually have problems with it. used to be irregular but since the surgery 28 days on the clock. gee lucky me hehe. he did state that the adhesions were probably from a kidney or liver infection that went undetected and treated for some time.

ok ok, now i forgot where i was going with this whole story lol.
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