IV Steroids...round one

ok- today started out as a good day! I felt better then I have for along time... But that can be misleading when I wake up so I am going through with the the IV steroids. Home Health RN came out today and I got my first dose. However, my phone went south and I needed a new one. Silly me, I went SHOPPING! (From a wheelchair though... the ones at the door of stores).

You know when your feeling good and you just want to do more? BAD IDEA! I hate reminding myself of that =/, but I did... Anyways, I started sweating, heart pounding, feeling dizzy,  seeing spots, six hours after the infusion was complete. Called my sister, who is THE head nurse (house supervisor) in the runnings of a level one trauma center and she said it was because the high dose steroids can cause the fight or flight response and I need to drink more water ( I drink a TON of water, but right now it tastes very bitter because of the meds). At least I know I am ok, it is just hard to focus with the headache I am getting. Steroids are what they give people when they have an allergic reaction to a medication too, so there you go.

The didn't happen last time, but then I didn't go shopping last time either =O. Two more days left, of this IV stuff ( 3 days total ), and I am refusing the prednisone taper because the side effects WAY out weight the benifit in my opinion.

My eye sight is blurry, I am sweating, shaking and have a pounding headache at the moment, so i hope I make some sense here lol. I know I over did it today and that when I am done with the steroids it will be worth it because I will feel better. Just need to take it slow... ewww Being 25 and going slow is not what I planned on, but here I am, and I am learning and relearning everyday =(

 

Thank You Rhonda for your support! I am starting to feel better already =) Just took 50mg of Benadryl to help with the sleep thing (Steriods can cause insomnia and this is the latest I have been up in awhil considering I woke up at 6am PST). Thank you again...OH YEAH there is plenty of shopping that can be done online!!! LOL My husband says I need to sleep now =)

Thanks again

Hi Sandy,

 

    If my phone went out I'd be at the store shopping too! LOL  Try to rest up the next few days, hopefully there won't be a need for you to venture out again and you can concentrate on getting better.  Keep us updated

Sandy C: DON'T STOP THE STEROIDS COLD TURKEY!!!! CAN BE VERY DANGEROUS!!! If your sister is a nurse, she should have told you. It can cause heart palpitations, etc. I can't believe no one talked to you about this. What doseage of IV steroids were you on? The IV steroids can cause hot flashes and sweats just like you're going through menopause. You're going to feel crappy during the time you are on the steroids, but believe me it is well worth it! I couldn't walk without falling and constantly losing balance. After I finished steroids, it was like I was a new person with my balance. Please contact your MD AT ONCE. If you've had a high dose of IV steroids, you are putting yourself at danger if you don't taper. Still cannot believe no one told you! Let me know, I'm worried about the effects of not tapering!

Sandy: Glad you're doing well. My IV dosage was higher, I guess that's why mine was tapered w/severe warnings not to quit. Hope you have the same good results which I had. Take care.