Not diagnosed

this is my first time on any site like this....not really sure what I'm doing!

I have not been diagnosed with MS, but the neurologist has said that "if he was a betting man, then he would certainly put his money on it being MS".

I have had a negative MRI...it showed only one lesion, and my lumbar puncture was clear too.

I am waiting for my evoked potentials tests.

October last year I started to get weird sensations in my arms and legs....tingling, hot/cold etc.  Then got "fuzzy" eyes and weakness in limbs.  Also had some serious pain in one arm....kinda like tooth ache, felt too weak to move it.  This is what started the testing process. 

Once they started asking about my history I connected bladder issues from about ten years ago.....needing to go a million times a day.  Had heaps of tests etc back then, but I think the general  conclusion was that it was all in my head!  It has continued, but not so severe....so living with it fine.

Now I'm at a "wait and see what happens stage".  Feeling major fatigue in the afternoons, and toothache in my limbs????  Comes and goes.  Some days panadol takes the edge off, but usually it does nothing.

I have difficulty with grip...I.e. brushing teeth, shaving legs, opening bottles etc.

Because none of my symptoms are visable to others and I don't have a diagnosis, I think my friends and family think I'm being a hypochondriac!  Would love to hear from others in the same situation.

The site is amazing....the only problem being that I have spent my entire day on here reading and haven't got anything done....it's addictive!!!  Have gotten so much physcological help though, like you say there are so many people on here who's lives seem to mirror each other!  "We are not alone..."!!

By the way, I wanted to ask you about your heart issues.  about 10 years ago I had a few episodes where my heart would race ridiculously, ended up in hospital a few times.  I haven't had anything since.....but after reading one of your replies I'm starting to wonder if it could have been MS related????

   I am so happy that you both find this forum helpful!  We really do have a great bunch of folks here all willing to help out and support one other, indeed a wonderful thing   We also have chats every Monday evening also in addition to the forum itself.  I hope you both can check that out sometime too, we would love to have you join us.  Take care.

Kimber

 Hello all,

This is also my first post on this site! 

I have also not been diagnosed with MS - So far I have had an MRI scan on my head and spine, which showed up two lesions on my brain and one on my spine. My Lumber Puncture showed up all clear and am now waiting for the results of a recent evoked potential test.

My first two doctors said that they thought it was highly likely it was MS but my Nurologist has said he did not think it was. He wants me to wait and see what happens a few years down the line because some people only have one relapse and it can never happen again????? Is this true?

It all started in June last year after finishing 4 exams I went to the hairdressers and started to have pins & needles in my left foot, on leaving the salon the pins & needles had extended up my left leg - I thought nothing of it and expected it to eventually go - It didn't - It eventually moved up the whole of my left hand side and I also experienced a tooth ache/shooting pain sort of sensation down my left arm and leg. I was also feeling awfully tired and weak. I had these symptoms for approx 2 weeks so I went to my local GP who told me to go home and come back if it got worse as he had no idea what it was - I went back after a few days to another GP who did loads of blood tests etc all showing up negative apart from my Thyroid gland (for which I now have to take Thyrokine) - Eventually my whole left hand side was numb and freezing cold and the pins & needles had also started in my right leg, I was struggling to walk and had to go on my hands and knees going up and down stairs - So I went to the casualty at my local hospital were more tests were done and eventually I was sent home with a promise of an MRI scan within 4 wks. This is what started all the testing...... 

The whole of the symptoms lasted between 6 & 7 wks. And eventually I just stayed at home and rested and they started to go away. I still get shotting pain sensations down my left arm and leg but its nothing compared to what it was!!! 

I feel like people think I am making it all up - Why would I?

I am only 25 years old and can't believe this is happening to me as I am so young!

I would love to hear from people in similar situations to me. And also from people who know of ways to relieve the symptoms through diet or herbal supplements etc.... The Nurologist has given me some sort of Anti-depressent/muscle relaxant sort of tablets for the shooting pains but I have not as yet taken them - because the side effects are very similar to my MS symptoms.

Sherry

Post Edited By Moderator (Kimber) : 2/24/2007 6:08:25 PM (GMT-7)