Neuro

I had my follow up with the neuro today. The MRI was normal. All the in office tests that I failed last check were fine today, except for my eyes. My eyes are not tracking like they should. I have a lot of jerky movements. He didn't mention anything about them but my hubby noticed.

He told me that I get to "wait and watch". I have another follow up in 4 months.

Like everyone says, "If it IS ms, I will eventually have lesions". Justin is disappointed because he wants me on meds to help slow down progression. Justin also doesn't want to watch me go through another exacerbation as big as the last incident. I guess you could say that Justin is pretty convinced it is MS. While I am not totally convinced, I have no idea what else it could be. Maybe lyme, hahahaha. Those who know me will get it and for everyone else it's just a joke.

My friend, who has ms, keeps reminding me that it took her 6 years to get dx. I think I would go bonkers waiting that long! I am fortunate to have a determined husband, a supportive family and friends here on HW.

Thanks to all of you for keeping me sane, supporting me, listening and always understanding this game of "wait".

Seems strange to say "I'm sorry your tests came back "negative"..." but given your circumstances.....don't know what else to day. Just keep hanging in there, keep a log of any "strange things", and I hope you find some resolution soon.

I go see the third neuro in 5 years next week. I know I have MS. 2003, MRI showed lesions. Report said possible demylination. Neuro said "nope, I think it's mini-strokes" (shakes head) 2005 second MRI, shows additional lesions and report says demylation in progress. 2nd Neuro doesn't think it's MS.

Now, after having a year of hell and currently dragging my left leg around with a cane I will be seeing yet another Neuro. I plan on being pretty firm on this. I want the proper treatment for what is really wrong with me.

Cecelia