No test results....very frustrating!

Hi everyone,

I am so frustrated, and feel like I need to vent to people who "get it"! 

 I have waited for over four months to have an VEP test done....finally I got it on the 4th of this month.  Before I had it done I was told that the results would be back within the week.  Then at the test I was told to expect a two to three week wait.  After almost a month I called to hurry the process along.....and was laughed at....the woman said that I could not realistically expect my results now...she said they would take "months".  She explained that they had only one person who can report on the results, and they only worked part time!

I understand that finances and resources are limited.....but surely this is unreasonable?????  I felt that at least the woman I spoke to could have been a wee bit understanding....instead of making me out to be an idiot!!!

I'm not expecting any of you to be able to help me with this....but kinda needed to get the frustration out!!!

Thanks for "listening"!

KAS

Try calling your neuro directly, and ask him to call. Doctors can usually get other doctors to move faster than patients can!

Awwww Kas!!! That stinks!! I agree, the lady on the phone could've been nicer and more understanding. I think we assume that since they work in a doc's office SURELY they understand someone being ill and needing answers...but seems we give them too much credit sometimes. :( Like the gritch says, don't let someone like her make u feel bad. Push on to get those answers. The squeaky wheel and all! Keep calling and make it an appt for u...each day. ;) This has gone on way too long. I'm not sure of the 'norms' there in NZ, but even if it is normal for things to take a long time, this seems to be just a little drastic. Follow Uppity's advice too..call the neuro. Surely they have recieved a report of some sort or can get those results faster for u. It's all worth the effort and time to get the answers u need..and they need to spend the time and get them! YES!!!!! We all do understand u'r frustrations and welcome u'r venting..we all have to do it as we go thru this whole affair. Vent as u want and we'll be right here to prop u up friend. If all else fails...the gritch and i will come beat 'em up for u boss. ;)

Hi Kas,

 

    I don't blame you at all for being upset about this.  I do hope you hear something soon, months is entirely unreasonable.  Maybe your doc, as others have said, can help speed things along.  Let us know when you find out anything.

 

 

Hi all,

thought i'd let you know that i finally got my results today. Turns out that my right eye is fine, but there is a significant delay in the left....."suggestive of demylination".

To be honest I'm really glad that it's a bad result......I knew there was an issue, I'm just glad that it's now visable to the doctors.

Back to the neuro, still probably not enough evidence for a diagnosis, but at least it's another piece to the puzzle!

thanks for your support while I waited!

KAS

Hey Kas!!

Gosh...u have proof! That feels so good. U already knew something was going on and now u can prove it to u'r neuro. That will be so helpful. Maybe not a dx now as u said, but at least more to the pic and closer to that dx. I'm so happy for u! As for Gretchet, i wouldn't keep company with the likes of her...u know she has this thing for people with worms...she'll only bring u down. Just say thank u to her and walk away. hahaha I am so glad u've come this much closer to a dx and u know i'm here in u'r corner friend. Hang tough and get that neuro on this soon! Let us know how that appt goes!

Hi Kas,

 

    You have such a good way of looking at things, and although your exam was not such good news at least you have some verification that the doctors are heading in the right direction with your dx.  I hope you get into the neuro soon, and please keep letting us know how you are!

 

Kimber

Hi all,

thnks heaps for your replies.....nice to have people who understand the results, and what they mean.

Denda: wish it was an MS specialist.  We only have about 10 neuros in the country.....so they pretty much deal with everything.  He seems pretty up with the play though....he's involved in a few trials, so hope to talk to him about that.

Cheers

KAS