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Need ladies advice please!!

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Multiple Sclerosis
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Posted 7/26/2007 2:11 PM (GMT 0)
Hey everyone, it's been a while since I've been on here.  I had started (at least I thought) to feel better up until the last couple of days.   I thought I was pregnant because I was almost a month late...all tests negative and now (of course) I started, however, it seems as though my muscle twitching has intensified, my muscles burn, I am so tired I just want to sleep all day, and I tried to take a warm bath last night and when I got out my skin hurt so bad I could barely dry off.

I guess my question is do any of you experience worse symptoms around that time of the month.  I had put the thought of MS out of my mind b/c I had started to feel better but now I just feel so horrible!!  I don't want to go back to my doc and tell him all this, he already thinks I am nuts! 

Posted 7/26/2007 6:47 PM (GMT 0)
i can't say -- truthfully i feel better around my time of the month -- i don't know though it is different for everyone-- i mean i have all the usual "girl" pain and cramps maybe it just takes my mind off my other pain

Posted 7/26/2007 10:29 PM (GMT 0)
I have had burning sensation in my stomach and trunk area because half my body was partly numb and tingled from a MS attack. The burning was constant for a couple of weeks. I had to take very cold baths or the burning was worse. Also during that MS attack I was extremely tired. Maybe your are having a ms attack in your reproductive system area. It would explain why you didn't have a period, maybe your reproductive system shut down for a month because of the MS.

Don't be afraid to go to your doctor. If he thinks your nuts, shop around for a new one.
Posted 7/26/2007 10:58 PM (GMT 0)
Hey TurtleGirl

Good to see u again!! I'm sorry...no experience here, but i've heard both ways, mostly that symptoms improve with hormonal issues. I hop u'r feeling better very soon. I'd think aobut what AnitaLynn said...see another doc if u'rs won't give creedence to u'r complaints..and maybe it's a flare? Take care friend and don't be such a stranger!
Posted 7/27/2007 6:12 AM (GMT 0)

hey TurtleGirl,

Ditto to what Rhonda said, it is good to hear from you again.  As for me, my worst symptom to manage is my chronic vertigo.  It is much worse when I am having my period.  I just wobble and stagger around for the first two days of my period.  I hope you feel better really soon.

Love and prayers,

Posted 7/27/2007 11:41 PM (GMT 0)
Hey TurtleGirl,
I am with you. I seem to feel way worse when i have mine. Honestly, it seems as tho my spasticity gets worse and the nerve pain is way worse.I'm with you girl.
I guess we need to research this and/or get with our docs on this huh?
Take care
Lynn
Posted 7/28/2007 1:26 AM (GMT 0)

Hi there,

I definately notice that my symptoms are worse around my period!  It often takes me a while to pin point the connection each month....but it seems to be a few days before, and during my period that I feel worse.

Hope you feel better soon!

KAS

Posted 7/31/2007 9:32 PM (GMT 0)
I also noticed that my symptoms are worse around my period. I asked my neuro and he had the classic male reaction. He looked like he could not believe I asked him that question. And of course he said he heard that from some patients but he doesnt really know and he would assume that due to hormonal changes this could be the case. Isn't he smart? :-)
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