Rebif????

Just as each individual experiences different symptoms with MS so each individual experiences CRABs differently. That said, my own experience included increase in pain with shot, where was dependent upon location of shot. I have found that I am extremely sensitive to any medication. Rebif was the same. If I took the shot in my buttocks the pain flare was in my leg and foot. If it was in abdomen then odd sensations would occur in my face or arms. I also had the "normal" flu-like symptoms each night which, luckily, I slept through. But the worst "side effect" was that each symptom I experienced grew worse as I continued with the 44 mcg shot. I finally had enough and took a week off to think it over. I felt better with each rebif-free day. I am now on copaxone and so far the only side effect is a small lump at the injection site.

I tolerated the 22 mcg of Rebif fairly well but wasn't on it for very long before they bumped it up to the 44 mcg. You might want to try it at the lesser dose, just to see. I'm already questioning copaxone and took today off. I'm not certain I want to take medications which only have a 30% efficacy with the hope that I might be one who will benefit in the future. The side effects affect my quality of life now. I could get hit by a bus tomorrow! Ya know what I mean? I'm seriously looking at LDN and prokarin. No injections and apparently no side effects. I'm concerned that I'm just a cash cow to the medical community.

 

http://www.mymultiplesclerosis.co.uk/prokarin.html

Prokarin is another alternative medication that the drug companies won't mess with. Not enough money involved. Google Elaine deLack. Look at the interviews with her. She has MS and has some interesting theories concerning our condition. Also, check out goodshape.net. Let me know what you think.

Zoe, I was wondering how long you were on copaxone.  Barb

Zoe and madlou

Any Dr can rx the ldn.  My lyme dr does even though I am taking it for MS.  LDN has many uses. Best to find a Dr who is open minded.  I have not found any neuros to be, and I have seen many.

Another way might be to call the recommended compounding pharmacies from the ldn website and ask if any Dr in your area use their pharmacy for ldn. Then call those Drs.

Hi Zoe,
I am on Rebif and having excellent results. I feel real good. It has been almost 6 months and the neuro said give it 6 months to a year. Well, i feel good most days. Of course i have my bad days, as to be expected i guess, but i am starting to feel a little bit like myself again. Is it me just taking a long time recovering from my last flair or is it the rebif, i dont know but i'll take it. I had such a hard time for so long before dx that i will take any relief i can get,lol. All kidding aside, the rebif gave me the flu symptoms, but they have subsided. I wasn't pre-medicating, which i should have been. I do now and i really do not get any more side effects. I was getting red welts also. They were not raised, just red, but i do not get them anymore either. I think my body is used to it now. I do the injections at night around 9 pm or so, so am i sleeping thru them, i dont know, but god knows, i am up 3-4 x's a night going to the bathroom, and i really dont feeel sick, so i do not think so. Well if you would like to talk, my email is on here, feel free. I think you should give it a try, you never know!
Love and Prayers,
Lynn