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Posted 1/19/2008 11:23 PM (GMT 0)
 

Hello everyone,

I am hoping I can find some relief or even just answers on this site as I am scaring myself more and more everyday. 3 weeks ago I was diagnosed with bells palsy and from there my day to day life has just been not normal and I am not sure why. From what the doctors have told me Bells Palsy should only affect your face however mine does not just affect my face. Right after noticing my face was not feeling right I noticed that my neck and arm were extremely sore.The only way I can describe it is as if my arm is not really part of my body any more and I am having to drag it around with me-its like I have been holding a baby in my left arm for hours -very weak. I am getting really really bad headaches everyday almost all day in the back of my head and pins and needles in my feet quite a bit along with tingles of almost numbness. The main thing though is my fatigue everyday around mid-day after being up for a few hours I feel like I cannot go on anymore and I must lie down or I feel like I will fall down. I sleep for a couple of hours and then continue on with my day.I have never had to do this before or feel so helpless. Everyday it feels like what is going to be the new symptom today? Yesterday I had blurriness in my eye all day-I have lower back pain at night all the time along with the sweats. All of these things have just occured since this Bells Palsy has come around. My face however is back to pretty much normal but I continue on a daily basis to be confused as to why I am feeling so cloudy all day long. Not myself at all. The doctors have ordered an MRI which I go to in 2 weeks and they have thrown around the "MS" word a few times which is why I am here. Can anybody either way help me to understand if I could maybe have MS or if my symptoms sound way off base from MS. I know many of you suffer a great deal and my symptoms are like a walk in the park but I am the very beginning of this battle with my body and I am scared and just looking for some insight. I would really appreciate anyones honesty and help at this point.

Thanks to anyone who is willing to take the time to maybe help me out!

Kelly

Posted 1/20/2008 12:43 AM (GMT 0)
Hi Kelly,

Welcome to the board. I am sorry you are having such a tough time. I really do not know to much about upper body ms symptoms. Mine are all lower body (legs and back). Some of your symptoms do sound like they could possibly be MS, however there are so many other diseases that mimic MS, that it is hard for them to diagnose. It took me 1 and a 1/2 years. The numbness, and fatigue are a big symptoms.The numbness for me is very bothersome.Also i have alot of spasticy (tight and stiff is how it feels to me) in my legs. But, like i said, the Bells Palsy i'm not sure. When you say about your arm feeling like your just dragging it along with you, when i first started having symptoms, my left leg felt as though it weighed a thousand pounds, is that how it feels to you? If so, maybe it can be a symptom, not sure. Just throwin around some stuff, you know. What part of your body are they going to MRI? Your brain i hope. Well let us know. I  am sure others will be along soon to offer their help and support. You found a great place here. I hope this helps a little. Take care and hang in there!

Love

Lynn  :-)

Posted 1/20/2008 1:03 AM (GMT 0)

Hey Kelly,

Welcome to the board.  Those are some scary symptoms and not at all to be minimalized.  Your symptoms are definitely not a walk in the park.  Many of us diagnosed started out just like you with nagging little things that just screamed out for attention.  That is NOT to say that I think you have MS.  I am not a doctor nor will anyone diagnose you here.  But we will stand by and support you while you go through this process.  Please know that it is not usually a quick process.  It can be long and frustrating. 

Try to relax as much as you can and take it one day at a time.  Many here keep symptoms journals.  Keep your symptoms listed with dates and you may even want to list them in order of severity.  Do not try to self diagnose - this really puts some doctors off.  It sounds like you are off to a good start with the upcoming MRI.  If you have never had one before, it is painless but some who are claustrophobic find it uncomfortable.  I have never had a problem with it.  Good luck and keep us posted. 

Love and prayers,

Posted 1/20/2008 2:01 AM (GMT 0)
Hi, Kelly. It sounds like you're doing all the right things -- keeping in touch with your doctors (if you haven't already, you need to call with any new symptoms that come up), getting that MRI, which will be able to give them some ideas of what is going on with you.

For now, there's not much you can do except keep track of any new stuff that comes along, and if any of the symptoms subside, you probably want to note that, too.

Your symptoms could be MS...but could be a lot of other things, too.  MS is one of those disorders that..everything else has to be ruled out, before doctors will settle on that as a diagnosis, and that's what the MRI is about -- to rule in or rule out other things. 

do keep in touch, and come back with any questions, and then when you get  your MRI results. Take care.

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