Calling in the BIG Guns

Hi All

I have been dealing with some pain, severe leg numbness, sqeezing, balance issues to the point of wall walking, etc. I wasn't sure if it was a flair or just some bad days that i was experiencing. So i have been riding it out a couple days to see if it would pass. Well, its been about a week or so, and its not passing. I feel really bad. I'm nervous. The leg pain is terrible to the point that i do not know where to put myself. I told myself (well i really don't talk to myself, lol. but you know what i mean, lol) that if i get another flair up, i am going right for the Tysabri. My neuro wanted me to switch to it my last flair in August but i just couldn't make the decision yet. So, here i am, in a Flair and i am going to call on Monday to see what i have to do to get started on it. I am scared but i never go back on my word, LOL. I am just so frustrated, a few weeks ago, i just got done saying (not to myself, hehe) that i am finally feeling a little like my old self. Finally starting to adjust to this and BAM. Here we go again. I know this is what it is going to be like but man, 3 flairs in a year. Is the Rebif helping? It does'nt seem like it is. I know there is no guarantee but when i see people going for years w/ no flairs and i had 3 my first year , that doesn't seem like it to me. So, I am taking the Plunge (sp?) and going for the Big Guns!! LOL. I made up my mind and my neuro said to call him whenever i am ready, and i'm calling first thing Monday. Maybe it will give me some relief like others are experiening from it. Its worth the shot. And if not, i can say i tried atleast. I can't stand living like this, any relief or remission will be better than feeling like this. I am crawling the walls with nerve pain in my legs, argh!

Thanks for Listening,

Love

Lynn

Hey Lynn,

I am so sorry to hear that you are feeling like this. You must be terribly frustrated.  I know that I am frustrated for you.  You really were doing so well and feeling good.  I am glad to see making changes.  I truly, truly hope and pray that the Tysabri helps you.  Keep strong dear friend. 

Love and prayers from Rhonda house!!

Good luck Lynn I hope it works out for you...I too am a wall clinger..I havent made a decision about tysbari yet..It was mentioned last year. I thinks the avonex is working but something isnt right with me..Duh lol never was lol...But i dont think I am remitting anymore. it is just one thing after another. While I am lucky not to have pain my goal is to just stop the tremors for now but not much luck...Good luck Lynn.........barb

Lynn, Hi I just saw your post and wanted to let you know I am thinking about you.  I know the tysabri is a giant  and somewhat scary step, and I hope that it works for you.  My update -- had my 3rd infustion about 2 weeks ago and had no problems this time.  I am fighting a cold right now so I can't really tell that it has helped.  I'll see you in chat in a few weeks.