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Posted 5/23/2008 12:40 AM (GMT 0)

oops, Gretchen sorry for the reference... didn't know and don't mind at all, edit whatever, I goof I apologize completely.

Hey Gary, I wouldn't go any longer without Provigil, I hope your dr gives you some samples to at least try it out then hopefully the script.

And Gretchen, yeah, I'm being really careful, I just get so excited to find some success! I deplore meds to tell the truth but since '99 having to adjust to the daily regimen of thyroid meds etc I've just accepted what I cannot change and managed everything else since.

However, today was a bit disappointing this afternoon as the energy waned a little though gettng to sleep last night was easier. So I think I could alternate from whole one day to half the next and let it  work itself out that way.

Adderall may be something to keep in mind for the future if the fog gets worst at some point but for now the this is my answer, if I have energy I have all my brain back and it feels great! :)

Posted 5/30/2008 7:37 PM (GMT 0)
I am newly diagnosed (January 2008), and the fatigue has been the worst part of this, so far. I currently take Symmetral and Adderall, which seems to be working pretty good so far. At first I was on Concerta, which worked good for about a month, then fizzled out, so my family doctor had me add Ritilin in the late afternoon. That didn't work very good, either, so told my neurologist, and he suggested dropping the Concerta and adding Symmetral.This worked for the fatigue, but but made me irratible and caused alot of anxiety, so I switched to Adderall last week (20mg 4x a day), and its been great so far. The Symmetral did not work by itsself, and the combination of Concerta and Ritilin did not work by themselves, but combining the Symmetral with a stimulant seems to be working, so you might want to try that if the Provigal doesn't work out for you. Benedryl helps with the sleep problem.
Posted 5/30/2008 10:17 PM (GMT 0)
I'll keep that in mind... so far so good still on the Provigil... I'm noticing some waning of the initial super charged energy but it's not letting in that narcolepsy-like sleepiness so I'm still good with it. The winding down is difficult at night still but flexeril helps .. and benadryl is odd for me, it's works for helping keep the restless legs at a minimum someitmes... especially when I'm out of my mirapex. Being hyperactive, benadryl has never made me sleepy... sometimes some things that make regular folks sleepy won't affect hype folks and other times it'll make us the opposite not sleep at all!

But it's good to understand the combinations too. Thanks!

Posted 6/2/2008 4:46 AM (GMT 0)
Nope you're not imagining anything here... I just removed my post from Sunday, I solved my own mystery Monday. It's called brain lapse I guess... I totally forgot my meds... everything... didn't even think of them until the normal routine Monday.

I guess I've got my indirect answer now to whether or not they're doing their jobs and I need them to function because I sure shut down fast!

Now I have a note on my computer, the refrigerator, the med area of my kitchen and my bathroom mirror! Goodness how incredibly embarassing to be so lame... but at least it living proof to hubby (once again, did this once with my thyroid meds and didn't realize it a long time ago but he witnessed the energy drain when I missed my meds during a Disney stay for two days in a row... my "window" is 48hrs and it hit me like lights out then too.)

Living and learning, what an adventure... now to convince the insurance company who's decided the Provigil is "unnecessary".

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