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Just informed I have MS

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Posted 5/20/2008 2:12 AM (GMT 0)
Katie,
I want to welcome you too! I am in a similar situation myself.. waiting to find out if I have MS.
I picked up my MRI films today and took a peak at them myself. I saw two lesions right up against my periventricles in the lateral portion of the scan (back). It doesn't look good but I don't think this meets the criteria for MS. My appt. with a neuro isn't for 9 days!
Keep us posted as to what happens with your latest MRI
best wishes
Carolyn
Posted 5/20/2008 3:44 PM (GMT 0)
Hey Carolyn

Wow...i do hope this is a mistake. Try to leave those mri's alone and hold on for the doc to read them. Have u seen the radiologists report?? Does it indicate any demylinating lesions of other sort that would point u in that direction? We've all been where u are friend...anxious and ready to see what's in those reports...but try to hang on and not go there just yet. The doc may look at that film and see something totally different. Nine days seems like such a long time, but it can fly by with those babies u'r loving everyday. Hang in there friend and breathe deeply for now.
Posted 5/21/2008 2:38 AM (GMT 0)
Rhonda,
I have the report here too. This is what it reads:
IMPRESSION:
Several small oval-shaped faint areas of increased signal intensity are seen in the periventricular white matter adjacent to the right and left lateral ventricles. In a patient of this age this finding most likely represents multiple sclerosis and further investigation is recommended.

So like it says.. I have to have further tests.. It's not definate.. I'll just have to wait
Carolyn
Posted 5/21/2008 4:36 AM (GMT 0)
O Gosh Carolyn! Well it seems rather clear i guess. I"m so sorry! Please do let us know what the doc says and how u'r tests go. Take good care friend and try to relax.
Posted 5/21/2008 1:05 PM (GMT 0)

Hey Carolyn,

You are absolutely right.  More tests are indicated.  I had two lesions on my MRI and even though those were in the "right" place, I had to wait for further testing as well.  I had a lumbar puncture, evoked potentials, scads of blood work, and a complete neurological exam.  It can take a while so try to be patient and know that it really will be ok.  It can be very hard.  It unpredictability of the future can wear you down but try to live one day at a time.  Count your blessings everyday, being grateful for what I had really helped me.  I see that you have four wonderful blessings in your life!  I have a James too!! Mine just turned 14. 

We are here to listen, support and answer questions.  Let us know what we can do for you.

Love and prayers,

Posted 5/22/2008 2:44 AM (GMT 0)
Gretchen,
I feel like I have taken over some one else's thread here. Is it okay for me to post about my stuff or should I go back to my original thread that I started.
I will go post on my Spots on MRI thread that I started. okay?
Carolyn
Posted 5/22/2008 4:23 AM (GMT 0)
Hey Carolyn

Gretchen will be along later, but i'm sure she won't mind me answering in her stead. Yes, it's perfectly fine to post here! U can start another thread or continue on ur other if u prefer. We try not to let the original posting member's question or concern get lost, but that doesn't mean u can't post here too. Take care friend and don't worry!
Posted 5/22/2008 2:05 PM (GMT 0)

Carolyn,

I appreciate your care here.  Rhonda hit the nail on the head.  You can post where ever but your questions usually get more attention and responses if they don't get buried in long posts like this one.  You are doing just fine with your posts.  I am enjoying reading them and getting to know you a bit better. 

love and prayers,

Posted 5/22/2008 8:38 PM (GMT 0)
Gretchen Smiles
Carolyn
Posted 5/31/2008 5:12 PM (GMT 0)

Kate,

I am sorry to hear about your ordeal with all this...I can relate! I was just dx'd in January '08. My ordeal began in October '07 when I woke up one day with blurred vision in my left eye, which turnd out to be Optic Neuritis. I had no pain then, and never have. I went through alot of tests through a regular Opthamologist for 2 months until they agreed that there was something wrong, but couldn't put their finger on it, and sent me to a neuro-opthomologist, who ordered the MRI and told me it could be MS or a possible tumor. When he read the MRI he said that it was most likely MS and sent me to a neurologist. The neuro, was pretty sure it was MS and immediately put me on Copaxone. He said he could do a spinal tap to verify, but he didn't think it was necessary. I am surprised at all the MRIs you've had, and all the doubts your doctors are having, but its better to be sure. I was really nervous about the shots, but it really does become part of your daily life. I was surprised when I had my first shot to discover that it was totally painless, and feels a bit like a bee sting about 2 minutes after. The waiting is tough, and getting an answer is both a relief and something to grieve about for awhile, if it turns out to be anything serious. God bless you while you wait, and I hope and pray that you get good news!

Pam

Posted 6/2/2008 12:17 AM (GMT 0)

Hi Katie,

I was diagnosed with MS on march 17th of this year (2008 ). I knew a year before that I had it because I had sooo many of the symtoms that it couldnt be anything else...I was sure...and I was right :P After being diagnosed all I could think was....Oh my goodness....How will I give myself needles ??? I JUST CANT do it!!!! But I was given a nifty little pen that I place the needle in ( nice small needle ) and I inject with that....its fast and only burns a little bit.....sometimes worse then others. the worse is the back of the arms:( But If I can handle it....anyone can!!!really....I have had 4 boys and with just about EVERY needle Ive recieved...I pass out...or close to it :P
I started out with my problems as slurred speech that sounded like I was just tired,When I looked down my eyes wiggled,I would get sharp pains in my head accompanied by pain and burning and dizziness that would make me stumbled.I get numb spots in my back and behind my ears and back of my head, and pain so bad behind my eyes that I cant move them:( I am dealing with it, But I have a BIG problem thinking and sometimes cant understand words or think. Ive lost 2 really good jobs,Both saying that I wasnt catching on fast enough. (Before I was actually diagnosed ) so at least now I know why I was let go. I like being able to talk with other people and find out thier views on this. I do hope that things work out for you. I will keep you in my prayers and thoughts:)
Take care!!!

Katie7 said...

Thank you all for your support. I am determined to deal with whatever happens and not let it stop me from moving forward with life. I am not very good about needles ( I have always had trouble with IV's, they have a hard time finding veins in me and poke me often to get one). I understand, so it seems, many of the meds used to treat MS are shots? Are there Oral meds that are just as good? I hate to be a pansy, but...hey...I am...lol. Just wanting to know so that when I talk to the Doctor next week and IF this is MS....I am prepared to ask about meds that can be taken orally rather than injections.

I will be sure to let you all know as soon as I know, what the Docs say . If this is MS, I will stay on this forum to become more educated for sure.  You all are TERRIFIC! I have never met so many compassionate people online before as I am new to the forum stuff,,,and well...MS. I wish you all well and God Bless ~Kate


Posted 6/2/2008 12:23 AM (GMT 0)

Hey Leah,

Welcome to the board.  If that is your full name, you may want to change that.  This is a public forum.  For your own protection you may want to change that.  I am glad you are managing those shots!!!  You have four boys!! Wow!!  So we know that you are exceptionally brave!!  I look forward to getting know you.  Feel free to post often and ask as many questions as you like. 

Posted 6/2/2008 12:43 AM (GMT 0)
 

along with some other health issues

as I read  a thread here

im thinking wondering

i should mention to my doctor

about the  blurred vision i am having

and the   slurred speech, loss of words,    trouble finding words

etc...

about 3 months ago i staret having  a veil like  blurred over my left eye

no amount of blionking  chages sight

and i use drops for dry all the time...

I have also started to drop thigns with my right hand/ fingers

like suddenly  im  clumsy

worried

gona ask dr at nect apt

must make a note to ask her

 

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