Just back from the Neurologist

You might want to try a supplement of magnesium.  That might help just a bit.  Other than that, I can't offer up and solutions.  I am sorry this is all moving so slowly.  MS is a very hard thing to get diagnosed.  We have many on here that have been in "limbo" for years.  Even without waiting on MRIs and other tests, sometimes it just takes a long time.  And MS is not all that common.  Many, many people go through the diagnostic process to find out that they do not in fact have MS. 

Good luck.

Thanks so much for your advice. It is very comforting to know that there is someone who can relate to what I am feeling. I know I don't have a diagnosis for anything but I am going through an awful lot of things that are not common to most people so it makes it a bit difficult to share your experience. Here I know that each of you have been in my shoes at one point, dealing with the unknown and waiting for someone to come up with a solution. I have always seen myself as a very patient person, I have an autistic son and I had to learn quite quickly that any advancement was going to require a great deal of patience, but in this instance I can say that I don't feel patient. I feel as if I have been telling the GPs the problems and they haven't been taking it on board. You will know yourself better than anyone how strange it feels to have increasingly unexplainable things happen to your body. This morning my lower eyelid on my right eye turned in on itself. So my eyelashes were actually all on the inside. I have been having a lot of spasms in my eye recently and I get the sensation of it sticking but never turning in on itself. Have you ever heard of that before??? LOL. My biggest complaint is feeling so lousy and not being able to get around for the pain in my legs, but it is the weird things that keep happening that alarm me the most. Like my toes on my left foot feel like they are tied with a rubber-band or I feel like I'm shaking on the inside, or my tongue is numb. It is the silly wee things that get me going. I think the other thing that bothers me is that I know that I have to wait so long to the next step and that is where my patience is wearing thin, our National Health Service is the envy of the world but there are certainly a few wrinkles that need ironed out and waiting periods is probably the main concern and much more so for those folks that are waiting for life saving surgery. But enough of politics. I would appreciate any advice.
Gooster

As for your recommendations, could you please tell me about magnesium and are the other tablets you talking about just quinine tablets or is there some other ingredient? I am asking because we can't get quinine at the chemist we have to have a prescription for it.

Thanks very much I will get to the health food store sometime this week and pick those up. The fact that you got your testing so promptly was really good in that your wait wasn't prolonged (Sorry, unsure of how long it actually took you to get a diagnosis, so I'm not in any way being cheeky)but in a way it must not have given you much time to get your head around things. I guess you can't have everything in life, we have a very good medical service for the majority and I haven't much to complain about but I do wish the process would speed up just a wee take. After that episode with my eye this morning I was quite frightened and I e-mailed my neurologist. He was kind enough to reply and let me know that it wasn't anything to worry about in particular and that I should just wait and see. Which is right enough, but that is just so easy a said remedy but the actual following of that advice is another story all together. My kindest regards

Hey Gooster, here's the website ( http://www.hylands.com/products/legcramps.php) for the natural product I use with quinine.. my neuro was quite surprised I could still get this but says I can't tell how much quinine is in it, and that's true but nonetheless whatever they're doing, it helps. And it's natural and it's not interfering with my other meds so I'm good with it. He is too ... amazed but ok with it. Still for the really bad nights he prescribes Mirapex for me, better than Requip I think since it's less harsh on the liver... if you're prone to liver issues.

I also use Hylands Calms Forte for night time sleeping help... it's a natural anxiety sleep helper we used at the Detox Center I worked at as a Tech Supervisor. When you're detoxing drug addicts you find every possible natural way to help them cope and this was a good one... it also works daily for anxiety if need be.

I admire the health care your way for sure but my patience would wear thin too though, depending on your doc, sometimes I've got long waits too... my neuro is one of the highest in demand in our city so my appts usually get scheduled and end up a month or two out... but he's worth it. So I wait. Fortunately for me I'm a "mild but annoying case" ... :)

I would suggest the journaling of the symptoms/events. It takes all the info together for the doc to come to a conclusion. It wasn't until my ON set in that my dx was clinched and when I asked why... he said, you've just got it all now! (multiple numb spots all over, spasticity, tremors, eye tics, swallowing, headaches, GI tract/urinary, and then the ON) but none of it debilitates me to nonfunctionalness... it's just such a nuisance to cope and deal. That's where I wear thin til I remember those worst off than me.

 

I looked it up for you.
It's Malic Acid. Works great for muscle aches
Carolyn