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Posted 5/8/2009 4:25 AM (GMT 0)
Hi, I first had an episode where I had double vision for 2 weeks last November and was treated with methylprednisone in hospital. I had other symptoms at the time and also two other autoimmune disorders - rheumatoid arthritis and hoshimotos thyroiditis.

I had a lumbar puncture, MRI of brain and spine which didn't show anything. The Neurologist thinks it may be MS but nothing is showing on tests. I have right leg numbness when walking, standing and hands and at times feet go pins and needles. I am extemely tired to the point that it's ridiculous.

I just had an EEG and EMG - EMG normal but the EEG showed a slowing in the left frontal temporal area of the brain. I am having a repeat MRI of brain and spine in June.

My question is has anyone else had this slowing show up in an EEG and is this something that may be the start of a lesion? I know it will take time and I know I have to wait to confirm anything. I guess I just want to find out if anyone else has had this symptom.

Would appreciate any help you can give.

Thanks

 

Posted 5/8/2009 10:57 PM (GMT 0)
Hey Dynamik

Welcome to the board. I have not heard of a slowing of the temporal area in relation to MS. Of course it just may be something i don't know about, but generally lesions show up as lesions to begin with...not slowly developing. Multiple Sclerosis is literally multiple scars...scarring occuring from damage to the myelin covering the nerves. That said, this is not a slow occuring process. Once the damage is done the scar appears and that's it. Progression in ms can be slow...thank goodness!...but i wouldn't expect this slowing of function in u'r frontal lobe to be part of ms.
Posted 5/8/2009 11:00 PM (GMT 0)

Hey Dynamik

I am sorry to see you finding yourself looking at a possible MS diagnosis.  You have some disturbing symptoms that we can relate to.  It does happen that damage from MS does not show up right away on an MRI.  It sometimes takes years for the accumulated scarring to result in a lesion visible on an MRI.  Typically, you won't get an MS diagnosis until that happens.  It can happen but it is rare.  Things can change quickly so I am glad to see your neuro taking this seriously and getting more MRIs. 

As you probably already know, for some reason once you develop one autoimmune disease, you are at risk for more.  Lucky us!!

I had lesions on my MRI from the get go.  I can't give you much more than that.  My lesions were there by the time we tested central nervous system response time.  We will stand by you and offer you support while you go through the diagnostic process.  Good luck. Feel free to ask lots of questions and post your experiences.

Posted 5/10/2009 11:51 AM (GMT 0)
Hi Rhonda, Gretchen, thanks for your replies. I think the fact that I have two autoimmune disease is why the neuro keeps looking for MS to show itself. I asked him if this can happen, that there are all these symptoms but no proof - he said it happens alot. Who knows? It is mysterious but I've been down that road before and it's just as frustration as it was then.

I am glad that the doctor is not just sending me away saying I'm imagining things. He knows there's something going on and I'm also glad he doesn't want to just give me a diagnosis when that is not the problem, I'm on a bucket load of medications as it is, I don't need more for no reason.

I do appreciate the offer of support very much! After all, you have all had to live with this and who else knows exactly what it feels like. I may be lucky and miss out on MS or I may not - whatever the case is, I will treasure each and everyones words of support! Thank you.
Posted 5/12/2009 8:51 AM (GMT 0)
I wish things would hurry up - I am having days where I just can't stay awake, so exhausted that I keep going  back to bed for 3 hours at a time and it's just not me to be that bad.

My words are getting jumbled lately too. Know what I want to say but can't get it out properly. This is a little scary and is starting to really make it hard with working.

I guess this is just part of the frustration of it all and I need to just get used to it I guess. Time is such a horrible four letter word sometimes!

Posted 5/12/2009 1:18 PM (GMT 0)
Hang in there.  You can ask for something now for that fatigue.  There are several meds out there that can treat fatigue no matter what the cause.  Good luck.  Rest when you need to.

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