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tingly legs? and scared of this all, please help

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Multiple Sclerosis
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Posted 8/31/2009 3:39 PM (GMT 0)
hello all,

we are on the search to find out of my fiances lyme is MS, or if it was ever, or maybe was always.

its such a sticky battle back and forth.

last october he developed optic neuritis in his left eye, thankfully though, we took care of it and with steriods eventually got his sight back..

two days ago he started to complain that the top of his left leg was numb, not painfull, but could not feel his the touch of his hands as well as the side or even the other leg.

hes been putting off getting his other MRI. lets face it, this is a scary thing, im scared for him, hes scared for him, you never want to be sick...but is it a symptom?

do we begin taking precautions and treating for MS? how do you really ever know if you have it or if its Lyme or MS, maybe both...its just so confusing, and im struggling to find the best answers i can for him..

he is on Lexapro, and for the past few days has doubled his dose, i wonder if that could cause the numbness in his legs, but the back of my mind tells me its time to back to the MS doctor and get this follow up MRI becuase its been a year since hes had one...

other than all of this he feels great, if theres no lesions, is there no MS?

sorry for babbling,  im just trying to seperate this all out in my head still

 

Posted 8/31/2009 5:01 PM (GMT 0)
Hey Amanda,

It is nice to hear from you again.  I am sorry your bf is still having problems.  I would encourage him to get that follow up MRI.  You can develop lesions in a very short time.  I once had MRIs about 4 or 5 weeks apart and I had a new lesion in that time.  A year could definitely show changes.  I hope not!  I hope he holds steady and you can hope for something treatable/curable. 

Unfortunately, that numbness is one of the most common symptoms of MS.  Is he being treated for lyme?  Does he have anxiety and or depression?  Is that why he is taking lexapro?  I don't know about that med so I have no idea if numbness is a possible side effect. 

Your questions about treating for MS are all questions for the neurologist.  I do know your bf won't get treatment without a solid diagnosis.  If he has a possible or probable MS dx then it becomes a watch and wait game.  Good luck to both of you.

Posted 9/16/2009 9:17 PM (GMT 0)
Fear! I think it is the biggest obstacle I faced when I was in the diagnosis process and still 4yrs later, it rears it's ugly head for me to fight and chop off. I think the best thing you can do is understand (read, research) MS and lyme disease, and pray for wisdom and guidance. Understand the treatments, medications, risks, and the disease process. This will allow you and your fiancé to talk intelligently with the doctor about treatment options. And puts you in the driver seat, not the disease, or the doctor. I fully respect the medical profession, but you would be wise not to blindly put your faith in all they say. Your fiancé needs to be confident, all medical recommendations are in his best interest. I don’t know much about lyme disease, but for MS the prospects for controlling the disease and living a full life are very good. As difficult and scary this is, try not to let fear or "what ifs" control your thoughts and emotions. There is always hope.

Romans 15:13 May the God of hope fill you with all joy and peace as you trust in him.
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