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Posted 9/2/2009 3:01 PM (GMT 0)
Hi everyone, I hope all is well. This is first time I have used this site. Very cool. I have lived with MS for the last five years and always felt that I was one of the lucky ones. Aside from the occasional bouts with fatigue (due to heat), or the fun flu like symptoms after a shot of Rebif, I have lived a pretty normal life. However this year is certainly different. I'm not sure if I'm venting or looking for feedback. Probably both. Here is what I'm experiancing:

1)Dx with Optic Neuritis

2) Always tired. I can sleep for nine hours and wake up tired. Every muscle is tired all day.

3) Dizziness. If feels like I have just stepped off a roller coaster. This sensation is getting old.

4 Lack of strength and energy. This is really hard considering I have been very active up until this year. Is this due to
the fact that I am experiencing a flare up, or the fact that I am forty five years old?

I have an MRI scheduled later this month. Your input is greatly appreciated and I hope has a great day.
Posted 9/2/2009 4:55 PM (GMT 0)
Hi there and good morning....sounds like u are managing your MS very well, with the help of Rebif, and of course some things which I am sure that u do to minimize fatigue, etc.....

Then all of a sudden things go into the toilet abit - my guess is that you are going thru a relapse.  I am very much like your self, as I do pretty darn good almost everyday - if I rest when I get tired, and stay out of the heat, I can have symptom free days.

However about a month ago, I started to have vision problems, some dizziness came back, really tired, etc - and as it turned out, I had a scheduled neuro appointment during this time - perfect timing I must say.

He advised me that I was having a flare up, and buried or old symptoms and even new ones will surface.

But that all past in a short period of time, and back to where it was before - hurray!

So my guess is that you are having a flare up...

Regards

Gary

Posted 9/2/2009 5:25 PM (GMT 0)
Hey Jerold,

I am with Gary.  You sound like you are flaring.  Do make sure you are keeping the doctor informed to your symptoms.  You may need some symptom support meds.  There are some decent meds for fatigue.  You could try provigil, or one of the many psycho-stimulants such as ritalin or adderall.  It take adderall and it is a God send for me.  It really really helps! 

Vertigo and dizziness was my presenting symptom.  I have had it now for three years.  It is not a fun one.  There is not a lot you can do about that one.  You eventually get your sea legs.  The only time I treat it, is when I have nausea.  Over the counter Meclezine helps so does ginger.  You do have to be really careful with the dizzies....you are now a falling risk.  Be careful and monitor your movements so you can avoid a fall. 

Certainly your level of fitness can be a contributing factor in the fatigue.  Exercise is pretty critical for us MSers but wow can it be hard when you are tired all of the time! 

Good luck.  Let us know what your MRI says and how you are doing.

Posted 10/17/2009 4:12 PM (GMT 0)
Gary and Gretchen, thanks for the reply. It turned out to be a new lesion. Now that I know whats going on, I guess I just go on and enjoy this roller coaster like life of MS.
Posted 10/17/2009 4:20 PM (GMT 0)
Jerold,

I hope your flare is cooling a bit.  I hope you are feeling better.  This is the way of MS.  You go along for a while feeling ok, adapting to what MS has taken from you, then it takes a bit more.  You will have to adapt again.  That adapting is the hard part.  But know you can do it.  Keep us posted.

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