Confused.....

Scared and confused......last year I went to the Dermatologist   because my face was tingling.  She thought it'd be a good idea to apply ointment (it's like a chemo....I've had melanoma so I have to be careful) to take care of any sun damage that could have been there although there was nothing obvious..... It's been over a year and  I keep getting that tingly feeling more often and more noticeable.  I finally called derm last week thinking it was effects from the ointment and she said that I need to call my dr..  2 days later my ear started to hurt and after an hour a so I couldn't tell what was more numb my ear or my hand. Facial numbness on the internet kept bringing up MS....it was like putting a puzzle together when I did even know I had one........I've been getting this spasm thing around my ribs....almost takes by breath away....It's really uncomfortable thot it was from gaining some weight.......I get a feeling from time to time like someone is touching the back of my head....maybe I have a ghost......my left hand just plain feels weird all the time....can't explain   Long story short.....

Went to Doc Tuesday and she was very concerned and wanted to do a MRI asap.....(I'm closterphobic) I asked that we do blood work to rule out other stuff 1st.  Blood work was perfect but B12 was low on the normal side.....decided to try shots. Went in for shot  wed and talked to doc #2 (other was off)  asked what he thot, he said it couldn't be MS because my vision is fine  and my b12 isn't that low. My sis is a MRI tech and said a woman was dx last week and she woke up and couln't talk......every patient she's seen had headaches and vision problems......Now I feel like a idiot

Problem for last 2 days is I feel like I got hit by a train......I ache from head to toe and my limbs feel like concrete.....I really don't feel right......I'm concerned....any advice? 

Is there always vision problems?   Am I a hypochondriac????

 

Post Edited (swim mom) : 5/2/2010 2:22:36 PM (GMT-6)

What you are describing sounds like fatigue.  That is a very common MS symptom.

Hehe.  You will start hearing that from doctors as well.  Stop reading the internet, stop self-diagnosing.  If it make you feel better, keep a symptom journal. Write whatever you want that you think is relevant.  Try to do it as a log and not an emotional diatribe.

Monday @ 5pm - during a short nap, arm twitched hard enough to wake me.  Felt like an electric shock. (that sort of thing)

Then if you want, you can share these with a doctor.  He/she can decide what is important and what is not.  By the way, it is extremely common to twitch just as you fall asleep.  It is called myclonic jerk (google it, just don't tell hubby;).  It is just a weird thing that happens and it usually means nothing.  I have done this off and on for a long time.  It seems to have nothing to do with my diagnosis.  I was doing it way before I had any MS symptoms. 

Gretchen
I am 48 and also get the hot flashes...would love to talk (write) with you..can I have your email address?

Pennye

Hi swim mom,

I have lyme disease and suffer from all the numbness that you describe, especially in my face. Last summer I had Bell's Palsy which resolved quickly after a few weeks of antibiotics. I now have numbness over most of my entire body. The intensity seems to vary from day to day but I always have it in the same areas. Caffine and Stress directly stimulate the intensity of the numbness.

In your persuit to find answers, I recommend continued testing for MS. Get an ELISA or Western Blot blood test to rule out Lyme.

I have read that some medications can also cause neuropathy.

Hope you get some answers soon.