CCSVI followers (what a Interventional Radiology does and can do)

I have to laugh at all the Anti-CCSVi people saying the liberation procedure is dangerous and can kill you. Angioplasty has been around since the 1960's and is used EVERYDAY. It has all the same dangers as the rest.

Below is a link to a video on what a Interventional Radiology does and can do.

www.facebook.com/video/video.php?v=1497016233925

Dave_NC said...
I have to laugh at all the Anti-CCSVi people saying the liberation procedure is dangerous and can kill you. Angioplasty has been around since the 1960's and is used EVERYDAY. It has all the same dangers as the rest.

Below is a link to a video on what a Interventional Radiology does and can do.

www.facebook.com/video/video.php?v=1497016233925

 

 

Please don't laugh at people saying the Liberation procedure is dangerous and could kill you, not unless you have concrete proof that the procedure is safe. I can say with certainty that it is dangerous and can kill you because in my case it would and that information comes straight from my neuro. This procedure is not new by the way, it was called Marie Tooth Charcot ages ago and was part of my studies in my chosen field.

The prodecure itself might not be dangerous but what no one seems to ever mention is the isotope dyes that they need to inject to do the procedure. This is the dangerous part. Saying this I must add that it isn't dangerous to everyone but to those who cannot tolerate the dyes.

I found out the hard way that those dyes were not meant for me when I had a CT years ago. Nobody bothered checking if I could be allergic to the dyes. As it turned out I was severely allergic and the last thing I remember is trying to tell someone I felt ill. To make a long story short I flat lined almost immediately. Long details, not necessary to go into them but they were able to "bring me back" .

So, for anyone allergic or having a reaction to the dyes it is impossible to get the treatment. If I hadn't had the previous experienced and rushed out to have the procedure done I would never have survived because the dyes are injected so close to the brain itself.

I say if someone is looking into this treatment be aware and please get tested to see your reaction to isotope dyes.

Dave_NC.

I don't like to make issues out of certain things but there have already been four deaths from this procedure. As for checking the isotopes from what I was told they don't bother checking anyone for that, which is wrong IMO. But what about the two patients that died of heart attacks when the shunts inserted into the arteries became displaced and travelled to the heart? As for MRI's requiring the isotopes that is false, never have they used the dyes in MRI's. It's a totally different test than a CT and doesn't require dyes.
Any new discovery in medicine usually has had double blind studies before being marketed and exposing patients to it. This procedure has had no such testing.
One lady who did rush out to have the procedure done at a cost of $18,000 (paid for by herself) since it hasn't been recognized as a safe treatment was ecstatic when she returned home. This was last year...now, 8 mos later she's exactly at the same point she was before having it done. I would say she is worse off because after relapsing she became so depressed that she is now on antidepressants.
I would love to see this treatment be the miracle we are all looking for, if not for us, maybe for someone close to us in the future. But if our doctors and neurologists have no faith in the treatment then I would play on the safe side for now. After all, no doctor or neurologist wants to deny anyone the chance of a cure for this horrid disease, their hesitation comes from leading facts about many untruths about the procedure.
And no, you can't compare this procedure to the common angioplasty that doctors perform routinely, this is a very different procedure. But even heart angioplasty can be done with different dyes and rest assured that the doctors have everything on hand should you run into a problem.
When the untruths and lies have been cleared maybe the medical field will look into this procedure, for now they owe us the assurance that they will continue treating us with the utmost safety....after all..we are not guinea pigs , do the testing reqired first and then present the facts to the medical assoc. and don't sell it to the media to make big $$.