What does MS leg pain feel like?

Hi

I am a person who does not know where she belongs, except that I am with Christ. i started out with lyme disease in 1996 pretty obvious because i had the em's/  Now they say fibromylagia but i am having leg pain SOOOOOOOOOOO bad I honestly think about cutting them off .  it is so  hard to explain they just acheeeeee and weigh 100 million pounds and this is with neuronotin and darvicot.  My brothers are sick too the one closest to me in symptoms was diagnosed ms from a catscan or an mri, i have never had one nor will as i don't have insurance.  what do your legs feel like?

I have found that the only thing that helps my leg pain is cannabis either in cookie form(a couple bites) or just a few smokes! This is why I can not wait for North Carolina to become legal for Medical Marijuana. It is the only thing that helps me!!
And yes...you do feel like cutting them off! Terrible!

Hi there, as far as I can see brnsug, you have described nerve pain perfectly.  I get nerve pain in my neck and my hips, and I describe it as someone holding a lit cigarette to these areas, or another example that I use is it is like getting stung by a wasp....it comes and wow, really stings, and then it goes away, and then a few minutes later it hits again....

Gary

You poor thing, I cannot imagine your neurologist not giving u meds we live in the United states. Thank God u are getting some from another source. Do your legs consistentlty hurt all of the time? (god I hope not)

I'm the moron who doesn''t know what she has, my legs hurt so bad too the only releif is if i can sleep i think the pain meds help if u take it before the pain gets to a certain level and if u take enough BUT mine do not always hurt, oomes and goes. I am lucky in that regard.

You gave a good description of your leg pain Mine don't feel like they are on fire they just ache, hurt like crazy i do not want to walk and they feel like they are very very heavy,


I have tried neuronotin tramadiol nothing, darvicot in a double dose would help, I never got addicted as I don't use them when I am not sick mine comes and goes like a cycle/ But lately its been pretty persistent not so much the legs the overwhelming fatigue, so I am going to try doxy again ( i am probably a late lyme) I only know one woman who has ms and she told me there is no pain, later I read that is highly variable. and the pain can be life damaging.

Im glad u posted, i like your euphamism if u don't got it u dont get it (or something like that) my hubby and kids are supportive BUT it seems like they would do more of the work i have to play catch up on when I get a break from being sick. Another thing among lymies is they often look "normal" which makes people doubt their validity, I look like crap when Im sick I scare myself. anyway thank u for the description while i didn't ask I have often wondered. And good luck I hope it isn't always.
lisa

Well, I kinda gave up after about I don't know how many years of the lyme doc, he thought i would always re? what is that word, it means fall back and get sick and need abx then go off then on, a cycle because i was quite dissemanted and I have no spleen which is important for fighting any infection.

So I started just high vitamin c and homeopathic stuff. I am officially back on doxy as of today and I am going to make dr.appt. I really think i have late lyme whether its active or residual i have no idea. MS and old or late lyme are quite similar but I just remembered another difference, I was sicker than a dog during my pregnancy with my daughter I think I had it then, while I believe I was told pregnancy with multiple sclerosis will often get rid of the symptoms whereas lyme exacberated them. who knows? my brother is double diagnosed ms and lyme, poor guy on top of it he has spinal bifada real bad.

I feel bad complaining I have it so much better than some, I am just going to have to try to get back to where I had some good days, Its just hard when u are so tired maybe i'll go to the doc in mi robe!

I have had known I had MS since 1986, and in 2000 it won the inning and 8 ended up dosabled. What I have found is in the areas where the MS attacked (nerve damage) I get cramps just like I worked out really hard. I lost my ability to walk in 2000, and with drugs I can walk without any aids. I still do not have feeling from mid thigh down, and my back and right leg hurts all the time. The one thing I found that helps is exercise,but I had Calmare treatment that worked well, but I haven't gone back to get a booster so I will need to start from square one again. Acupuncture worked well, and the guy that gave me that treatment was not very experienced so I would imagine a true acupuncture doctor could make a difference. I would love to get off all drugs, but having MS as long as I have had (30+ years) the MS drugs ruined my organs so I unfortunately can't expect miracles to happen again.I caught ulcerative colitis and had a complete colostomy which the drugs they put in my spine for pain caused my MS to go crazy. Try to find humor now matter how bad you feel since this disease will take you down if you can't handle what it does to you. It is hard, but my recommendation is not to blame everything on your MS and get to know your bad since it's up to you to take care of yourself

I have had MS for 24 years. Burning in my legs occurs but rarely. Pain down the sides of my legs is a lot more frequent. Enough to wake me out of a sleep. Pain meds seem to do the trick short term but this is a recurring problem. My most recent problem is feelings of electricity shooting through my breast. I haven't heard of anyone else with a similar complaint

I'm new to all this, supposed to see Dr soon for ms testing. There are times when my ankles feel like they are swollen and have weights on them and times when it feels like my legs are breaking. Anyone else experience these things?

Hi Gretchen. Holy wow, I posted in this thread in 2011. Gees.

I bet you are surprised to hear from me. I hope this finds you doing well. As well as well can be. I am doing great. Life is good, the MS has not progressed much since I last spoke with you. Still get the nerve pain - that burning sensation in the back of my neck, and now in my toe, and get this, the end of my tongue. Yes, the end of my tongue. It feels like I burnt it on a very hot cup of coffee. Never comes during the day, only at night, and usually when I am sleeping. Crazy eh. It wakes me up!! When it does get crazy, the nerve pain that is, I take gabapentin. It works really good for me.

I will pop in more frequently and catch up. Remember back in 2006/2007 how the chat rooms were buzzing. Wonder if we could get them buzzing again.

Talk again soon!
Gary