MS or Lyme?

Hi Everyone,

I'm new to the MS forum and I'm going to seeing my doctor on Thursday concerning some MS symptoms I've had for years.

Could you give me some advice on what I should ask him? I read through some of your posts and it sounds as if testing for MS isn't very accurate? Is there a way to get around that? A specific kind of test to take?

I'm very medication sensitive so I wouldn't be open to be put on steroids for MS. I do eat a very healthy diet and I take nutritional supplements.

Finally, what about lyme? Is there a test I should bring up to test me for lyme that would be accurate?

Thanks!

Almost, My husband was diagnosed by one of the top neurologists in my state for ALS in 2011. If it were not for the Lyme board and other vital info, on the web, I would not have known about it possibly being Lyme. He had lost function in his hands and arms and it was starting to affect his legs when he spent 4 months using alternative therapy. His symptoms stopped progressing. If you know anything about ALS, you would know it is basically a death sentence. If it wasn't for all these wonderful people and doctors who believe chronic lyme exists, I believe my husband would either be in a wheelchair or dead now. I know another woman who has ALS symptoms and she is using the same protocol as my husband and slowly healing. At any rate,testing needs to be done by a lab that uses the best methods for Lyme and it's coinfections. Igenex Lab in Palo Alto, Ca. is the one recommended. My husband got his workplace doctor to send blood samples for him. Some get the testing done through a a lyme literate doctor. You can also go to the Lyme forum to ask questions. Many people on there are very knowledgeable about treatment so it's good your are keeping your mind open and checking out the Lyme forum.

Gretchen, You never know if another person reading this post can be helped by the experiences of others. It happened with a member of Healing Well who has ALS symptoms like my husband and discovered Lyme was the root cause of her illness. She didn't start out at the Lyme site because she didn't know anything about it. If I didn't post, she would have never know and would have continued with her progression. You certainly can come on the Lyme site and post. Telling me "It is not necessary for you to post on the MS board" is not what the Healing Well forum is about. It's about sharing ideas and experiences and if someone with similar physical issues feels their experiences and knowledge can help someone on a different forum then I think that's a good thing. The members can then weigh this as an option to look into.
Now Almost brought up this question about testing for Lyme on the MS forum. According to your logic, this member should only be asking this question on the Lyme site right?