Myasthenia Gravis

Hello I am new here I could not find my disease on here M S is a little like it so hopefully I can find someone on here going thru the same as me and we can help each other.

Thanks for your reply. I was diagnosed with MG in 2010. It started with my speech being whiny and becoming really weak when I would get in my car I would have to pick up my legs and put in car. I thought it was because I was just doing to much and my body was tired I was taking care of 3 sons 2 grandbabys and my mother in law. But one day I could not get into my house after I took my son to school. I could not even crawl in the house my son had to pull me in. I could not hold up my head my arms where getting weaker and weaker so was my speech all of my muscles where shutting down so ambulance came to get me and I was put in ICU where a neurologist ran all kinds of test on me. After I told him that when I get out of shower or bath I get REALLY WEAK is when he diagnosed me. He told me there was no cure so I thought I was going to be bed ridden that was not true there are medications that I take that helps my body function but even with the meds what I can and can't do is limited. To go from being very active to being limited is very hard. Doing regular household chores is a challenge that bothers me soooooo bad. I also have back problems herniated disc L5 S1 and also my neck. There is so much I have not put on here. Again thank you for your post .

Hi Gretchen1, Thank you for the kind words daily chores drive me crazy because one wants to help me clean the house. For some reason every time it's time to do work I hear door close. It drives me nuts not having a clean house. Sorry I had to vent. I take pyridostigmine 60 GM every 4hr and azathioprine50mg 2times a day and prednisone20mg 1 time. I also do IGIV Treatments if my speech or eating gets week.i do 6 hours of IGIV FOR 3 TO 4 DAYS. most of the nurses I have met know nothing about my MG or the IGIV which is crazy. That is always a big worry for me Going to hospital and not being able to talk and tell them what's wrong with me not being able to breath or talk walk or even put hands on my head. I know they have id bracelets and so on but if they do not know how or what to do to Treat me it's so scary. I look forward to talk