MS or?

Hello,

I've posted in a few different forums (anxiety / migraines) but I wanted to try here too because every time I get a new symptom it points to MS... I am 24, female, and do have OCD/GAD. I have always had them, since I was very young.

My journey begins in 2016. From the get go, I had costo and asthma/pleurisy all DX. This was Jan - May. In March I noticed a weird gritty feeling off and on present behind my right eye only. It was very strange, I thought I had something in my eye. It would only happen off and on. It wasn't until August of last year that I began having pain. It was behind that right eye, my temple throbbed, and the corner when the eye meets the nose hurt so bad. I was told sinus infection, the meds did help but it continued and stayed until December. I had a CT scan of sinuses, it was normal. I had seen an ENT who scoped my nose, and eye area. Normal. I had seen a eye doctor, said my eyes were fine. I was lost, saw my doctor again he said migraines and put me on Topamax.

It actually made me worse, I had weird feelings in my right arm and saw blue dots. I got off quick and it all went away. I was put on another in the same class, it helped some. Eventually it all went away in December.

Now, I have had problems with nerves in my right leg since I was 18. I had always had these issues off and on with burning and it feeling just "weird". I could walk fine. It comes and goes but I think I have nerve damage in that leg. It is just weird how it is all on one side of my body. Anyway--

Fast forward to June of this year. I had very little issues up until June from December. Suddenly, my headaches came back. I wasn't super nervous at first. I had seen another doctor, she automatically put me on for a MRI no contrast. I did that in July of this year. I had an appointment with a Neuro in August. From the beginning of July until now I have had a TREMENDOUS change in symptoms. At first it was the right back of my neck, throbbing pain constantly. Half of my face (right side) seems swollen a bit compared to what it was before. Like it almost sags... but not extremely noticeable unless I take a picture straight on. There is pain in my temple, my jaw, my upper and bottom teeth (pressure pain not so much stabbing). I have had burning sensations in my ears, my throat, the skin of my neck to my collarbone. My voice is going out slightly. My throat feels tight like I am about to cry. My arms are weak, shoulders have pain, back hurts off and on, my tongue is off and on tingly, I've had RIDICULOUS brain fog and dizzy feelings. I feel like I cannot talk right half the dang time. I'm not sure if this has to do with my jaw pain or tongue weirdness... My muscles have been twitching a lot. Everywhere, all over my body.

When I saw the neuro, he said he was 99% sure I did not have MS because my mri was normal. I did not have a LP. It put me on some antidepressants which I am not sure about taking. He seemed to not really take me seriously. Idk... I just feel super lost. I am so concerned I have MS or something really bad. I haven't had any bladder issues but I get UTIs super easily. I also can see just fine besides some blurriness here and there but nothing crazy. My walking and balance is okay, I just feel like my arms and legs are a bit weak. Especially my right arm, I even feel like my fingers (middle and ring) joints are stiff.

Idk what to do or think. I was tested for lyme but he said it was negative. All my bloodwork was fine besides vitamin d was low. I am so very stressed with all these health issues. I've seen many many doctors these last few weeks.

I am not sure if I should push for a LP or not...

I concur. Testing is awful. The results may be interpreted as CDC "Surveillance" negative when you actually are lighting the test up.

That was the case for me- 4 positive bands. 5 required to be CDC "surveillance" positive. It may be a good idea to copy your post in the Lyme forum and see what everybody else says.