Would love your help ruling out possible disorders & MS

Hey everyone,

I don't have an MS diagnosis as of yet. I have UC, unrelated to my post here today. I'd love to hear thoughts about possible options/diagnoses and tests I should consider to guide my neurologist, who has been baffled by my symptoms and does not have any answers for me. I tried two neurologists already and am still undergoing testing.

2.5 Months ago, I developed facial numbness that then turned into widespread full body numbness on both sides. It's 24/7 with no change at all, aside from spreading more overtime. No other symptoms. The neurologist had no idea what this could be and is still running a few tests. Here are the tests i've done so far.

MRI brain (normal)
CBC, ANA, ESR, Complete metabolic panel, Lyme blood test, B12, (all normal)
MRI, spine (scheduled)
Sweat test for small fiber neuropathy (have to wait till jan due to long waits)

Any ideas of what I should ask for/what other issues in addition to MS to consider?

Also, can MS present with widespread, bilateral numbness that is 24/7 for months?

Hi Jane.

It's not necessarily common for MS to present bilaterally, but sometimes it does. Bilateral symptoms, in MS, are usually due to spinal cord lesions. I am glad to hear your Neurologist ordered a spine MRI. Straydog gave you a good resource (The National Multiple Sclerosis Society). Thank you Straydog. Best wishes Jane and take care.

Thanks for the suggestions everyone. As an update, MRI of brain and Cervical spine is normal so neurologist doesn't think I have MS at all and does not want to pursue additional MS testing. I will fu and get the lyme tests.