HealingWell
Search Close Search
☰

Just Need to Whine & Vent

Support Forums
>
Multiple Sclerosis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/20/2006 1:53 AM (GMT 0)
Sorry I have been away for a little while.  I was in the hospital for a few weeks and then just in denial.  I keep thinking if i just ignore the Sx's that they will go away and that it will just be a wrong Dx but that just is not happening.  I have started avonex and it makes me feel worse than the infection and wound that I have now.  All I want to do is lay by the toilet and vomit.  (Sorry a little graphic)  Does this ever get better on these meds or could it just be the infection?  I know I have a lot of nerve to post again after being gone w/o explanation but I really just need some help and encouragement. 
Posted 6/20/2006 11:24 AM (GMT 0)
You can always find help, support and encouragement here...so don't worry about that being an issue.  The time after diagnosis is probably the most difficult, because then you have to try to learn to live with the reality that you really do have Multiple Sclerosis.  For me I spent a lot of time in denial and refusing to learn anything about the disease.  I just had to finally make a resolve with myself that I wanted to feel better and it wasn't going to go away, so I had to learn to adjust my life and come to terms with it.  Everyone does this at some point in their own way. I can so relate to you on the Avonex,  I was on it for 2 years after I was diagnosed and I also layed on the bathroom floor for pretty much the whole weekend just praying I would die.  Some people tolerate it very well, I didn't and my symptoms were severe and unbearable.  Finally, I just stopped taking it and went unmediated for a year.  During that year I got 3 more lesions.  Now I am on Copaxone and have no symptoms what so ever.  You should call your physician and let them know how the interferon is making you feel.  I don't know what kind of infection you have going on or wound but it is really more difficult to deal positively with your MS when your medication is making you so ill.  My thoughts and prayers are with you....
Posted 6/20/2006 1:40 PM (GMT 0)
Hi missing, know that you aren't alone and can always come here to get support. I am gone for a month and then get back to feeling normal and everyone is still here for me - what a great group!

As for the Avonex side effects, I am so sorry you feel so lousy!! I felt that way in the beginning when I started treatment with Avonex but now just have kind of achy stuff, no more vomitting - whew! Was really rough in the beginning though and is still sometimes hit or miss. Tylenol rapid release gels are my dear friend on the night of my injection and that seems to work for me.

I went 4 years being dx'd before starting meds. I always said that I wasn't in denial but probablly was. The good Lord was looking out for me though as I only had minor episodes during that time. If MS is a solid diagnosis (well, as solid as MS diagnosis' can be) then you are smart to get started on preventative meds. Though it isn't a cure and won't repair any of the damage that has already taken place, it can hopefully stave off any debilitation for the future.

I'm thinking of you and hoping that you get through that initial Avonex adjustment quickly! Every week when I give myself my injection, I think of the people here on healing well and know that I'm not alone. Somehow, that helps!

Karla
Posted 6/20/2006 8:12 PM (GMT 0)
Hi Missing,

My heart goes out to you! The emotional process after getting diagnosed can be difficult and I'm sure many people here can relate to how you are feeling. It's good that you have decided to start treatment but I'm sorry you have trouble with it. You may want to give your doctor a call and let them know the trouble you are having and see what they want to do. Don't worry about how often you post, we'll be here for you if you need us. Hope you feel better soon.

Kimber
✚ New Topic ✚ Reply