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Posted 6/21/2006 11:20 AM (GMT 0)
hi i went to the doctor complaining about a limp. actually my toes on my right foot except the large toe are all numb. I had an mri and because I had 6 lesions on my brain and I was 42(female) i was diagnosed with ppms. I have had no other symptoms except im up 3 times a night to use the toilet. I have no pain in my leg/foot just this daft limp. I have had no other signs of ms. The nuero said because I was a female over 40 and because i had 6 lesions in his opinion I have ppms. What do others think?
Posted 6/21/2006 12:40 PM (GMT 0)
Forgive me if I sound a little stupd but what is ppms? I also have six lesions on my brain and have been going through diagnosis for about six years still with nothing. They haved ruled out just about everything except MS.  I also have problems with my feet and legs feeling very heavy and numbness around my knees. i have dizziness and numbness in my face...I wish you luck and a fast diagnosis.....beannie

Posted 6/21/2006 5:08 PM (GMT 0)
ppms is Primary Progressive MS -People with this type of MS experience a slow but nearly continuous worsening of their disease from the onset, with no distinct relapses or remissions. There are 4 basically classifications of MS. Relapsing-Remitting MS, Primary-Progressive MS, Seconday-Progressive MS, and Progressive-Relapsing MS. Initially 85% of MS cases are dx's as Relapsing-Remitting MS.
Posted 6/21/2006 10:23 PM (GMT 0)
Hi ella,

Welcome to the MS forum. Whtedragons is correct in his definition of PPMS and that is the type my husband has as well. It is set apart from the other 3 classifications because instead of having relapses and remissions, in this form of MS you just have slow progression. In the beginning the symptoms may not even be noticable but over time things slowly get worse. My husband's problems started in his feet as well with numbness and burning.

Only 10-15% of people diagnosed have this form and is commonly seen in people in their 40's, although my husband was much younger when diagnosed. The fact that you do have a positive brain MRI, no flares, with slow progression definately fits the PPMS catagory.

Take care of yourself and if you have any further questions or just want to update us as to how you are doing please feel free to do so.

Kimber
Posted 6/22/2006 8:38 AM (GMT 0)
Thank you all for your replys and kind words. Perhaps I should have explained clearer. I was diagnosed with primary progressive multiple sclerosis in August 2005. It was after reading beanies post that made me write to this forum. As he to had 6 lesions on his brain and he hasnt been diagnosed, it made me wonder why the nuero had been so quick to diagnose me. The only symptoms i have is a limp and I wee a lot getting up exactly 3 times every night for the toilet. Unlike Kimbers man I dont have burning sensation in my leg and I have no pain at all. My right leg feels heavy and my 4 toes (except large toe) seem numbish. I had a VER and my eyesight is fine. I had a lumber puncture and Im not too sure but think that was fine too. I feel it was cause of my age (42) that made the nuero diagnose ppms but ive had the bladder problems for years. Its just all so confusing eh? sorry for rambling on.  Good health to you all.

ella xxx

Posted 6/27/2006 11:43 AM (GMT 0)

ella123 said...
hi i went to the doctor complaining about a limp. actually my toes on my right foot except the large toe are all numb. I had an mri and because I had 6 lesions on my brain and I was 42(female) i was diagnosed with ppms. I have had no other symptoms except im up 3 times a night to use the toilet. I have no pain in my leg/foot just this daft limp. I have had no other signs of ms. The nuero said because I was a female over 40 and because i had 6 lesions in his opinion I have ppms. What do others think?

From reading this and earlier posts -- your speech patterns might indicate that you are not an American? British, perhaps?

The only reason that is an issue is that doctors in Europe tend to use somewhat different criteria to diagnose MS than American doctors. Or if not criteria, then different reactions to signs and symptoms than American doctors.

I don't know that an American doctor would so quickly decide that you have ppms, for example...but it does sound like you have MS.  As for the problem with urination -- there are meds you could be taking for that, that might lessen the need for so many nightly visits. You should ask about that at your next visit.

Posted 6/29/2006 3:31 AM (GMT 0)
ella,

i was diagnosed with ppms in march of this year. i have noticed a hesitancy in urination, and a definite worsening of all of my pain and other symptoms. fatigue is the worst one for me right now, and it causes me to be extremely forgetful. i have had many of what i call " i feel stupid today " days, because i can't seem to do anything right.
i had an appt with a neuro scheduled for tomorrow, but due to my job, i had to cancel. i am switching jobs, so now i will have to wait another three months before i get to see an ms specialist. :(
good luck

hi to all, and sorry i haven't been here for a while, i have been working for a month straight, with no days off. that will change in july when i switch employers. god bless
Posted 6/30/2006 4:18 PM (GMT 0)
Hi you are right Im not American but Scottish. I re-read my post wondering how you figuered this out but I sill dont know lol. Anyway thank you for your replys and well wishes to you all xxx Im jus home from hospital after major surgery (nothing to do with my MS) but surgeon did tell me that it would worsen my symptoms for a while and it certainly has but overall i'm well.

Posted 6/30/2006 6:39 PM (GMT 0)
We Americans wouldn't usually say "use the toilet", or "wee", or "daft" -- all expressions I grew up using (my mother was British, although raised in the US). I'd have to go back to your earlier posts for other examples.. lol..

Again...not that it matters, but -- oh, wait... you said in this last post, "..just home from hospital".... we'd say, "home from THE hospital..."

Just colloquialisms that I picked up.

I hope you recover uneventfully!
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