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Grrrrrrr......Waste of time and money

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Multiple Sclerosis
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Posted 7/28/2006 1:06 AM (GMT 0)
Well it seems that this last visit with the "MS Specialist" was a waste of time and money.

Lysha was scheduled as the last patient of the day at 4:00. The doctor didn't make it in to see her until about 5:40 and after about 15-20 minutes of a cursory exam, she proceded to tell her that it was just the residual effects of the ear infection that Lysha had earlier this year. about 6 months earlier! She proceded to tell her that she didn't have MS.

The nurse practitioner had done a more thorough exam while Lysha waited. She had said that Lysha had pronounced "Optic Nystagmus", however when the Dr. did it, she did it in just a few seconds and said there was nothing there.

We just can't help but feel that we just got wammied by a Doc that really wanted to go home, but she did say that Lysha definitely does not have MS. Lysha is supposed to go to her regular neuro on the 31st, do we bother with that appointment? I am just really disappointed right now, this doc came highly recommended from a couple of other ppl we know with MS. Lysha is really down, even if she won't admit it.

Thanks for letting me vent,

Justin
Posted 7/28/2006 1:26 AM (GMT 0)
Justin,

I can certainly understand yours and Lysha's frustration!  We put so much faith in our doctor's only to have some of them let us down.  Tell her to hang in there, go ahead and go to your appt. on the 31st.  It can't hurt.  She needs to be blunt with the doc and tell them all that has been going on.  Help her make a list and go over each symptom.  Tell them of your frustration with this last doctor and their lack of time spent with her.

 

I'm really sorry and I hope you have answers really soon.  Sometimes we have to press on even when we don't feel like it, but it's then that we can look back and see we have traveled far thru the troubles and tribulations and we are stronger and more compassionate people.

 

 

Take care!

Posted 7/28/2006 7:20 AM (GMT 0)
Great advice that Michelle gave you Justin. This a frustrating journey and it takes time and patience. We sometimes hold our doctors out as greater than human and we have to remember that they just that human. Having said that don't give up. Lysha should go to that appointment and act as her as her owm best advocate. Could I suggest that she have a list of questions she wants answered if possible? Can you go in with her and ask questions too? Can both of you voice concerns and tell the doctor that you feel the medical system as well as her symptoms are overwhelming her. I don't know how your system works in the US but in Canada it can be a long and frustrating trip. Again Michelle is right...because we have to deal with the problems and finding a diagnosis we end up becoming better listeners, seeing the internal problems that no one else sees but that lay us low and quite frankly scare and worry us. We end up more empathetic than most. I have a sister and a daughter who are my very best friends and give me the strength to go on and because of them I have developed my own inner strength over the years. You both will too. Good luck and let us know how you make out. And Justin vent away it helps get out some of that pent up worry. That's why we are here to listen because we have been there. Dale
Posted 7/28/2006 7:40 PM (GMT 0)
Hi Justin,

I'm very sorry the appointment didn't go as well you both had hoped. It does seem from what you described that it was a rushed appointment which is unfortunate. I would definately go see the regular neuro on Monday and if possible perhaps you can go with her. Try not to let her give up, it can be a frustrating and overwhelming process getting a dx especially when you have a case where things aren't clear. Maybe you could ask her regular neuro some questions about what the next step might be and get them to address her symptoms that they haven't yet to make her more comfortable til they figure things out.

Kimber
Posted 7/28/2006 8:47 PM (GMT 0)
Thanks for the replies and support.

I told Justin when I returned home yesterday that I think I'm done. I've been to enough doctors to last a life time. I just want to give in and say maybe its all in my head. Maybe after that ear infection, this is what my life will be. I have no fight left in me right now.

I feel guilty because the whole summer I've been concerned with myself and the kids have been left with nothing. I want to try and find a norm for me so I can get back to being the mom I use to be. My family is my life but I feel like I have been selfish lately.

I love all you guys!! You've been so much help. I'll still be here checking in.

((((HUGS))))

Lysha
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