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Posted 8/4/2006 12:21 AM (GMT 0)
Hey Everyone

Well i guess i still know nothing...except i test neg/normal for everything ecxept ms. I don't know that it IS ms..but it's not anything else. Of course i know there is no test FOR ms, but when all things have been ruled out and still there is nothing difinitively pointing certainly to ms it leaves u with a gaping hole. So here i sit with all my neg/normal test results. Don't get me wrong...normal is great! It's just that i still have something going on and would like to know what it is. O yeah...in another post i mentioned i was gonna ask my doc to retest me for lyme disease. No need. He actually did some kind of test that included that kind of infection in it's testing. Normal. No lyme. Good again..but what IS it?? He did prescribe some new med to help with the comings and goings of the balance and numbness/tingling stuff. It's called Diamox. The funny part of that is that one of the side effects is that it can cause numbness and tingling.....????  Go figure. I agreed to try it for two weeks, so i will. I guess in a way i'm beginning to feel like one of u all here....my meds are piling up. :(  Not that many, but more than i usually take. To sum up what i plan to do from here...just leave it alone. I can't see more than the doc is seeing and i can't say for sure it's really anything more than just a funky thing that happened and left it's mark..and it may never get any worse. So i'll keep track of things as they happen/if they happen and will follow up as my doc feels i need to visit with him. I WILL be seeing him again in about 3 weeks, but that's just for follow up on the new med. Thanks to u all for reading this far and not getting anything out of it. Just wanted to tie this up and let u all know. As i've heard someone else say...'i'll be in Limboland should anyone want to come visit! ;)

rhonda

Posted 8/4/2006 12:33 AM (GMT 0)
Hi Rhonda,

I'm certainly glad you're "normal"!  I know it is frustrating to feel bad and not have any answers.  I know that you know...to keep up with symptoms anyway.  If this is MS it will show itself in one of your tests at some point.  I hope your new med helps.  Hang in there!!  Take good care. :-)

Posted 8/4/2006 1:58 AM (GMT 0)
Hi Rhonda,

I'm sorry you didn't get any definite answers on what is going on. "Normal" is a good thing, but it doesn't help when you know something is going on and need treatment of some kind.

I have a second opinion with a neurologist next Wednesday. I'll probably be dwelling in Limboland for awhile too, so we can hang out together.

I finally got a call from my primary care physician. I had faxed him my symptom list, but got no response. We left messages for him, the last being my husband telling him that the whole right side of my body kept going numb (and still is.) No response. So he finally calls yesterday and tells me that my symptoms are too overwhelming for him and that he doesn't have a clue, but hopes the second neurologist will be able to figure it out.

Big hugs from a fellow Limbolander,

Lisa
Posted 8/4/2006 2:36 AM (GMT 0)
Hey Michelle

HAHAHAHAHAHAHA Well i'm pretty happy about being normal too! Yes, frustrating, but as u know, i'm not devestated by it. I do intend to follow u'r good advice and continue to document all occurances for possible future use, but now this sorta leaves me with nothing more to do than to let it go for now. In a way, it's a relief. I can put it to bed and move on. I'll pay close attention to anything that happens both old and new symptoms, but not focus so much on it for now. Disappointing is the word, but not the end of the world. Just time to put it to bed at least for a nap. ;)

Hey Lisa

U'r welcome to join me in my parlor! Geez...i'm sorry u'r having such a prob with u'r neuro. Maybe the new neuro will have some answers or at least be concerned. It seems as tho many here also have docs who just aren't up to par. I've been blessed in that i've found two very good neuro's and am getting good care from them both. My doc gave me Cymbalta for my fatigue and it's worked wonderfully. It also seems to have helped with my other symptoms. Maybe that'd be a good med for u to try. Are u taking anything for any of u'r symptoms currently? I've seen the key is to at least find a doc who will treat u'r symptoms and help u get some relief as u'r going along this road. Best wishes to u on u'r appt wed. I hope u can get some answers or at least some relief.

rhonda
Posted 8/4/2006 2:59 PM (GMT 0)
Rhonda, I'm just taking muscle relaxers (Zanaflex and Flexeril) for the spasms, along with some pain medication when I need it. That and a bunch of vitamins is all I'm taking right now. That Cymbalta sounds good, maybe I'll ask my doctor to prescribe that for the fatigue.

Post Edited (Shashi) : 8/4/2006 9:05:48 AM (GMT-6)

Posted 8/4/2006 7:08 PM (GMT 0)
Hi Rhonda,

I must say you really do have a wonderful attitude about all of this. :-) I'm very happy that despite not knowing exactly what's going on you did find a doctor who will treat your symptoms! I haven't heard of Diamox, will you please let us know how you do on that med?

Kimber
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