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Questions about EVP Results

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Posted 8/5/2006 7:13 PM (GMT 0)
As many of you know, I'm still going through the diagnosis process.  My brain MRI was normal, as were my auditory and visual evoked potential tests.  My somatosensory evoked potential was essentially normal for all areas except my left leg (the same side where I had the present Babinski reflex) which, while within normal limits, was notably delayed when compared to the response of my right leg. This is thought to be from a conduction defect located somewhere between the base of my spine and my cerebral cortex.  Due to this delay, it was ruled an abnormal EVP.

Would the normal visual and auditory EVPs positively rule out MS?  My symptoms seem to be classic MS, but with a normal MRI and EVPs, I may be in Limboland for a very long time.  I desperately need some answers, as I'm starting to wonder if I'm crazy or imagining all this.  And my poor husband of five months thinks I'm making these symptoms up. (As if I would!)

 

Post Edited (Shashi) : 8/5/2006 1:16:17 PM (GMT-6)

Posted 8/5/2006 8:10 PM (GMT 0)
With everything coming back essentially normal..while it doesn't *positivelyI rule out MS,

what it DOES say, is if it IS MS, it's not evident on the tests. Maybe, over time, it will develop more classic and definitive symptoms, or maybe enough other symptoms will appear to more clearly identify what might be going on, but for now, it doesn't appear to be MS.

I'd have to go back and look through your other posts -- have you had all the usual blood tests, to look for things like thyroid problems, or hormone imbalances, or diabetes, or some of the other things that look like MS?
Posted 8/5/2006 8:29 PM (GMT 0)
Hi Shashi,

You're not crazy :-) When you "look" ok it's very hard for people to understand that you really aren't especially when a lot of the symptoms are of an invisible nature. My hubbys first test was the SSEP and that was abnormal too. Since his symptoms were mostly in his feet and legs at that point they diagnosed him with peripheral neuropathy and sent him to a neuro. After more tests came back postive for MS it was then that he was given that diagnosis. Unfortunately it might just take more time for other things to show up if this is MS that youre dealing with. Try to hang in there, I realize its hard though sad Are they doing anything to treat your more troublesome symptoms at this point?

Kimber
Posted 8/5/2006 10:24 PM (GMT 0)
Uppitycats, yes, I've had all the usual blood tests to rule out everything else. All normal. My main symptoms at this point are numbness and tingling on my right side, numbness of my tongue and lips and chin, extreme fatigue, muscle spasms which sometimes make walking difficult, tremors (which feel like a constant vibration), a frequent "buzzing" sensation in my muscles, burning sensations throughout my body, band-like feeling across the top of my head, lack of sweating, vision problems including increased floaters and light sparks, slurred speech, constant constipation or diarrhea, etc.

I'm also having cognitive problems such as slow word recall, wrong word substitution, forgetfullness, etc. All of these symptoms are exacerbated by being outside in the heat or by having a hot bath or shower. I'm also having a gastric acid reflux problem for the past few weeks, but I'm not sure if that is connected or not. Some of these problems have been going on for several years, most started this summer.

Kimber, the first neurologist prescribed Zanaflex for the muscle spasms, but it makes me so sleepy that I've been taking Flexeril instead, which was prescribed by my family doctor. That's all I'm taking right now.

Thanks again for your help. I'm just so danged frustrated! I feel so awful most of the time, but it's hard to convey that to anyone. I "look" okay, I just don't "feel" okay!

Post Edited (Shashi) : 8/5/2006 4:55:44 PM (GMT-6)

Posted 8/6/2006 10:18 PM (GMT 0)

Shashi,

 I am sorry you are not feeling very well right now. It is interesting to hear your symptoms, as I had almost the exact symptoms you express. I am a victim of Lyme disease, I know alot of people have been hopping over here from the Lyme forum, but it is because so many times our disease gets misdiagnosed as MS. If you or anyone else would like more information on Lyme I suggest checking out healingwell's site on it and feel free to email me with any questions. I have been on treatment for 9 months and function at about 90% versus the 30% I was functioning at last year at this time. Good luck and I hope you find some answers soon. Peace!

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