HealingWell
Search Close Search
☰

Clean MRI; Neurologists says no MS but I have numbness and prickling in legs face and arms!

Support Forums
>
Multiple Sclerosis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/1/2009 2:39 AM (GMT 0)
Thank-You Gretchen1 for the info I do hope they can eventually find out what it is too! I have had the evoked potentials and they were delayed in my legs, and my right arm. my EMG's were also abnormal, one neurologist said my muscles vibrate??? I know with the swallowing, often when I eat I have to stop and wait, because the peristaltic movement stops and the food just sits there, if I continue to eat or drink I choke, it is a very uncomfortable feeling and luckily only last a few minutes, .anyway the numbness and tingling in my legs, along with so many of my other symptoms, do wear one down! I have been told so many things over the years, alittle over two year ago this one neurologist, that I was sent to for Sleep Apnea, diagnosed me with Parkinsons, and put me on Senimet and Lodasyn, well I was having major problems with my sleep apnea treatment, in a year and half I had 6 sleep studies done and went from CPAP to BiPAP and everything and it didn't help! My Doctor got sick and I had to go to a different Neurologist, and I found out he was treating me for Obstructive Sleep apnea, and I had mostly Central sleep apnea, My brain would quit telling me to breathe while I was sleeping, so now I am on a type of ventilator with Oxygen when I sleep. My new neurologist is the one who sent me to Rush in Chicago, because he didn't think I had Parkinsons either. He has also mentioned the possibility of MS, or even Stiffman syndrome, but the people at Rush said that Stiffman or Stiffperson Syndrome is extremely rare and highly unlikely. So I will continue to continue, and I will keep pressing them for answers. I do want to Thank You again for your reply and advice. I appreciate!
Good Luck to You
White Beard
Posted 3/4/2009 9:06 PM (GMT 0)
I am just signing on and reading. I have blood work, an MRI and a nerve conduction test scheduled for March. I am tingling and burning all over, at different times and I am biting my tongue! Is this normal for MS? I am scared.
Posted 3/4/2009 11:42 PM (GMT 0)
Hi Storyteller,

I am sorry to hear of your problems. The numbness and tingling is a common symptom of MS. I have never heard of tongue biting. I suppose that could be caused by a muscle spasm. I am glad you have an appointment with a doctor this month. Good luck.
Posted 9/26/2009 5:27 PM (GMT 0)
I have had 3 normal MRI's and a normal LP. However I continue to have MS symptoms. about 9 months ago I started with sharp electrical shock like pains in my feet and shins. It went away and came back about 5 months later along with extreme fatigue, perception of picking things up is off or when I go to pick something up I fumble with it before I get it. I have balance issues, eye twitching (not constantly), muscle weakness in legs and arms, my nerve pains are not just in my feet and shins...it is also happening a little in my arms, back of throat and tongue. I have extreme burning in the back of neck and across shoulder blades.

I have celiac disease. I was initially told I have a B12 deficiency because of the celiac. So I had a couple of injections and took the sublingual vitamins. My level is so high and over the normal range that they don't think that is the problem. Because I still have the symptoms. I have also had a ton of blood work to rule out Lyme disease, Sjogrens, arthritis, thyroid disease and my dr doesn't think I'm a candidate of fibromyalgia.

I have been seeing a neurologist since August and he is convinced I have MS, but without the lesions and normal LP? I just got the normal LP results yesterday and I see the dr on Wed, he said we will discuss my next options. I'm just wondering if I can have MS with everything being normal?! Am I in early stages? Can lesions be somewhere that they wouldn't be seen on a MRI...don't know if that is even possible. Just trying to figure this all out. I feel like I am starting all over again and still no diagnosis. He did put me on Gabopentin (Neurontin) for the nerve pain and it helps a little...it takes the edge off. But yesterday I lifted my arm to scratch my head and it stopped by itself, the muscle or gave up, it was the weirdest thing ever.

What does everyone think? Is there something else I should be looking into. Maybe evoke test? Any others?
Posted 9/26/2009 11:32 PM (GMT 0)
We have members that say that they have had symptoms for months to years before lesions show up.  Unfortunately most doctors won't give you an MS diagnosis nor will you get MS treatment until you have lesions show up.  The evoked potentials could help rule out MS.  It is testing the central nervous system rather than the peripheral nervous system.  It really is up to your doctor.  The progression treatments are very expensive and insurance is just not going to pay for it if you have a case of "you might have MS."

Hopefully, you don't have MS and it turns out to be something much more treatable.  Good luck.

http://www.mult-sclerosis.org/diagnosingms.html


 

Posted 12/13/2009 12:06 AM (GMT 0)

hi im 28 and i suffer with most of these symptoms that are on here i have done for 3 yrs ive just had an mri and nerve conduction test which all came back fine which is good but it still doesnt give me an answer to whats causing all this i really feel like im going mad now n over past few weeks started suffering from anxiety cos i am absolutley terrified that it could be something serious i am due to see neurologist again after xmas but already know im gonna be fobbed off one way or another after all theyve only just done the mri n nerve test after 3 yrs of going back n forth to doctors does anyone know if anxiety on its own could cause all these symptoms?? although i have had anti depressants when i first started suffering and it didnt make any difference, unless i needed stronger ones!!

Post Edited (kay3) : 12/12/2009 5:35:59 PM (GMT-7)

Posted 5/19/2013 2:49 AM (GMT 0)
For one thing, yes one can have swelling with MS esp if its related to kidney failure which goes hand in hand with it. MOST Drs just care about the almighty buck rather than delve deep into the root problem. And lastly, our air is being sprayed with heavy metals , has been for years but most are just to ignorant to believe it or even NOTICE it. This also can cause these very symptoms. Don't think that "your" so called "government" wouldn't do this.......your dead wrong. If you think they are for us (the majority) u are asleep .
Posted 6/12/2013 12:11 PM (GMT 0)
Could any of you have ME/CFS, Fibromyalgia, Autonomic/Peripheral Neuropathy?

I have all of the above and the symptoms certainly overlap with MS and many other conditions.
Posted 1/25/2014 6:49 AM (GMT 0)
You have a lot of the same symptoms as myself. I thought I was getting MS and/or RA and had blood tests and MRI's. I was given no answers with the results of these tests..After going to several doctor's,I finally found one that brought up Lyme Disease....Well, Come to find out I have Lyme Disease.

I tested positive through Igenex Labs in California. I also have bartonella and babesia. MS can be caused when Lyme enters into the central nervous system.

Did you already get tested? If not, please get a Lyme test through Igenex as they test for more than one strain of lyme, while conventional labs only test for one. Conventional lab Lyme tests are very inaccurate.

The heavy metals being sprayed are very harmful to people with Lyme. The Lyme uses the metals to form cyst shields to protect itself from herbs and antibiotics.

PS- I had been diagnosed with fibromyalgia as most Lyme pt's are before we find out the root issue at hand..What is the deal with doctor's never wanting to get to the root problem, instead they try to mask symptoms....

Post Edited (LYME2013) : 1/24/2014 11:53:17 PM (GMT-7)

Posted 7/23/2014 8:56 PM (GMT 0)
Do you sleep on a memory foam mattress? I exhibited many of the same symptoms as you have detailed after purchasing and sleeping on a memory foam mattress pad. As soon as I moved the mattress out of my room my health improved and many of my symptoms disappeared completely. The off gassing of the chemicals in these mattresses make many people very sick. Good luck
Posted 11/27/2014 8:34 PM (GMT 0)
Hello,

I realize this is an old post, and I am sorry to reopen it, but perhaps someone will find it helpful.

The person above posted their story with possible MS. I want to tell you something, if you are still on this board or for anyone else out there:

My story and all my symptoms were IDENTICAL TO YOURS. And it wasn't until an LLMD in Pawling NY took 22 vials of blood, did a spinal tap, and sent it off to the BEST LYME LABS in the country (I had tested negative in many other labs). Results: HIGHLY SPECIFIC LYME BAND REACTION ACROSS THE BOARD!!! Also: BABESIA DUNCANI!!! And in fact, my doctor, in 1991, published a paper which showed that a patient of his with Lyme FILLED EVERY SINGLE CATEGORY OF A CHECKLIST FOR MS!!!!

If you are still out there: what has happened? Are you at all okay?

I am better after 1.5 years on ABX--energy back, muscle swelling down, pain joints reduced, no more mycologic jerks, no more shooting pains in long bones, etc. Still have tremors, muscle twitching and a few stabbing pains here and there, but I am slowly getting there, I believe.

Wishing you all the best.
Posted 3/31/2017 1:31 PM (GMT 0)

Shashi said...
I've been going through something similar for the past six months. My symptoms have been extreme fatigue; numbness and tingling sensations in my face, head, hands, and feet; tremors, vibrations, and buzzing sensations all over my body; painful muscle spasm and stiffness in my arms, back, and legs; shooting nerve pains throughout my body; squeezing sensations around my rib cage and top of my head; bladder and bowel problems; blurred vision; slurred speech; cognitive problems such as slow word recall, substituting the wrong word, forgetfulness, etc. I also have messed up reflexes in my legs, including hyperactive knee reflexes, absent ankle reflexes, and present Babinksi reflexes in both feet. All of these are typical MS symptoms (if there is anything typical about MS.)

I've had brain, thoracic, cervical, and lumbar MRIs, and they've all come back normal. I've had EVPs, all came back normal except for the SSER on my left leg. My last test was an LP, which was also normal.

The answer to your question is yes, you can have MS and have a clean MRI. You might want to check on having EVPs or an LP, just to be thorough.

Good luck!

Dear Lisa,

I've been having the exact same symptoms you had (including neck spasms, stiffness, numbness, blurred vision only when I look at words, etc.) and I wanted to know if you found a doctor that could tell you what was wrong with you?

I am super anxious about whats been going on with me in the past month and I have been trying so hard to find someone with similar experiences!
✚ New Topic ✚ Reply
12