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Burning skin and face!

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Posted 1/27/2007 3:11 AM (GMT 0)

Hi all, 

I'm having the most uncomfortable burning sensations.  They started this morning when I was putting my makeup on and I noticed as I brushed the powder puff across my forehead that it felt like a sunburn.  This was over my checks, around my nose, and over my chin too.   

Then this afternoon, my arms started burning, and were literally hot.  It feels exactly like I have a sunburn, but I haven't been out in the sun at all.   

Now tonight, my shoulders are alternating between burning sensations and icy cold sensations.  And my face still feels like it's burning.  This is just weird! 

Anyone else had anything at all like this or know what it might be or what causes it.  Or better yet, how to get rid of it?

Posted 1/27/2007 3:29 AM (GMT 0)
Hi Lisa:

I know the burning feeling only to well. It was not on my face though. my right leg felt like it had a steel rod down the center of it and it was on fire. The bottoms of my feet like I was walking on fire. My regulapr GP gave me amytripy something for nerve pain he said. Well I got lost on my own road on the way home from work and I couldn't get out of my bedroom one day so needless to say I gave him all of those pills and I will never take that stuff again. I found low dose naltrexone and I started taking that 5 1/2 years ago and I no longer have the burning feeling in my leg or in my feet. It worked for me but everyone is different-I know the burning you are experiencing is very real. This MonSter disease really stinks to put it mildly.

Debbie

Posted 1/27/2007 12:01 PM (GMT 0)
Hi Lisa!

 

    Ohh the burning, sorry you are experiencing that.  There's lots of sensory sensations and pain issues that go along with MS and unfortunately burning is one of them.  The technical term is called Dysesthesia if you want to do some research yourself about it.  The only thing that works for Mike for this issue is low doses of prednisone but others find relief with other medications like neurontin, lyrica or tegretol.  Hopefully it's a short lived thing for you and it goes away quickly.

 

Debbie, I don't know much about low dose naltrexone, but it's very interesting it helps with burning pain.   I'm gonna do more research on it and speak with his neuro about it too.  He gets a lot of different pain issues, but the burning is probably the worst one..all over pretty  much but his feet get the blunt of it.  The prednisone takes it down to a more bareable degree when it gets particularly nasty, but it would be wonderful to have it gone completely like what you experienced.  Thanks for sharing!

Posted 1/27/2007 1:57 PM (GMT 0)
Hi,

I tried Trileptal for neuro pain and burning but I can't remember if it helped! (lol) It was several years ago and I know I stopped taking it because it made me more confused than I was already. I have burning in the back of the neck and shoulders almost constantly. I hope you find something that works for you!

Pam
Posted 1/28/2007 12:53 AM (GMT 0)

Hi all,

Shashi, I sooo know what you mean. I had this 3 months ago.

Wow it is so like you said. Sun burn when putting on makeup. Mine lasted for 3 wks but only on one side of my face and head.

MS never amazes me as to what will come next. Hang in there this to shall pass.

Take Care all

Tinydancer scool

Posted 1/30/2007 1:53 AM (GMT 0)
Hi Lisa, I also know exactly what you are talking about. Both the burning and cold sensations were my "gateway" symptoms about 12 years ago, and the hardest I have dealt with.

Being a Minnesotan I described the cold sensation as; like standing barefoot on concrete on a cold January day. The burning was like standing on concrete on a hot July day anywhere in the USA. The good news is that I went through that twice from 95 to 97, but not since I started taking Avonex in 97.

I can't offer any info on treatment. I was never offered any meds back then. I just wanted to give you one more story to support that it is "likely" MS related. Oh, in my case it was confined to my feet, at least the worst sensations. Milder burning sensations went all the way up my legs to my lower back, but they were just annoying compared to my feet. The worst of it lasted a couple of weeks for me on both occassions, so I hope you have the same short course.

Good Luck
Posted 1/31/2007 6:37 PM (GMT 0)
I never felt anything like this during my time with MS, but I thought I was going
nuts two weeks ago when, like you guys.....my lips were burning, my face
felt like I just got home from Tahati and yet......my usual warm hands felt were
ice cold.

This lasted a 10 days or so, and one of my doc's put me on predisone for week and
it seems to have gone or subsided for now. Didn't think I needed a Sol IV for it.
But since it is a new symptom they are watching it closely.

Just when you think this disease has thrown everything at you.........surprise, something new.
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