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Welcome to Aguirre66 (Chris)

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Posted 9/29/2007 12:03 AM (GMT 0)

Aguirre66 said...

Wow. about a week and a half ago, I received my CIS diagnosis (blind spots for 3 days). This was after about a month of the doctors and tests I'm sure you're all familiar with (MRI, LP, etc.). By the time of the CIS Dx I'd made my peace with the likely imminent MS Dx but I'd be lying if I didn't say I've been a bit concerned about the future implications of the disease (How 'at peace' I'll be with another exacerbation remains to be seen.)

Anyway, I understood that we'd caught it early in the progression of the disease but didn't realize how early (Super-Early) until I found this site, this thread and the articles linked herein.

So, as my first ever post as a CIS/MSer I'd like to say, 'Thank you.' to all of you in this thread for giving me a little more 'peace'.

Chris

(Chris, I bumped you to your own thread so others could meet you and say "hi")- Gretchen

Post Edited By Moderator (rhondab) : 9/28/2007 6:08:14 PM (GMT-6)

Posted 9/29/2007 1:31 AM (GMT 0)
Hey Chris!

Welcome to the board! I"m so sorry for u'r recent experiences and dx...but very glad u've found us. Yes, ur right, the ms 'journey' as we call it sometimes can be very long and eventful. Many tests....many symptoms...much time. Fortunately we don't have to go thru it alone. We are all here to support each other...to support u. This is a great site as i see u've found and i think u'll also find u can ask any questions u have and see that the other members will do all they can to help u find an answer. Many here, myself included, are in limbo...that gray area of symptoms, but no or not enuf signs (failed/positive test results) to dx...and still again many here are dx'd and able to give u great advice on possible drug therapy choices. Please feel free to ask questions or post u'r thoughts or opinions. Also, we have live chats on Mondays at 6:00 pm (cst) each week. There will be an announcement made each week that includes instructions on how to get to the ms chat room. I hope u'll join us. It's a great chance to just get to know the other members as well as getting some real time answers to u'r questions. Again, welcome and please let us know how u'r doing!
Posted 9/29/2007 1:33 AM (GMT 0)
Hi Chris,

Thinking of you. This is a wonderful place for support and information.

Blessings,

Paris Girl
in LimboLand
Posted 9/29/2007 1:41 AM (GMT 0)

Hey Chris,

I was diagnosed a little over a year ago.  It is quite a job to accept the implications of life with MS.  I hope you hold steady with your CIS and never get the full blown MS diagnosis.  I believe there is some hope in that with early treatment.  Welcome to the board.  I am glad you posted.  Stay and get to know everyone.  It is loads of fun and everyone is very supportive.

Love and prayers,

Posted 9/29/2007 1:43 AM (GMT 0)
Hi Chris,

 

   Welcome!  I'm glad you found the site helpful to you.  I look forward to getting to know you better. 

 

 

Kimber

Posted 9/29/2007 3:35 AM (GMT 0)
Wow. Again.

Thought I'd take a look back here before shutting my laptop down and there I was with my own thread and there you all were. Thank you very much for the surprising and kind welcome.

Today was the first day I really 'dug in' to my new mysterious future. It hasn't even been 5 weeks since I woke up with the aforementioned blind spots – as far as I know my first symptom – which I mistakenly wrote off as an ocular migraine for two days (I'd had one once before.) I realize I've been very lucky in the speed with which the initial CIS diagnosis has been made. I had a successive string of great doctors move me quickly on to the next who might confirm what is now clear they each suspected. I finally landed with a Neurologist whose specialty is MS – all within 2.5 weeks. So, now weeks from my 41st – and 5 months married! – I've seen my brain (25+ lesions, most 'wee'), my spinal fluid (crystal clear but apparently 'full' of oligoclonals), and I've been 'blind' (couldn't work for 3 days but cleared completely within 8).

I'm going in on Tue (10.02.07) to discuss (and I assume choose) treatment. I'm a bit overwhelmed by the options (CRABs) and not sure I have any specific questions at the moment, but if anyone has any specific advice, I'd be glad to hear it. Though I do realize that treatment is as unique to the individual as the disease.

After lurking around a few different MS forums, I finally decided to jump in here – I'm glad I did. Thanx again for the welcome. Sorry for rambling.
Posted 9/29/2007 11:44 AM (GMT 0)

Yes, welcome indeed.  I've been on Betaseron for 14 years or so, so can offer some help with that.  The decisions can be overwhelming.  The good news of course is that there are now meds that might help -- back 24 years ago when I was diagnosed there was nothing!,

and you can always switch meds if one doesn't seem to work out for you.  Usually a doctor likes a patient to keep on one med for 9 months to a year before switching, but there is still that option.

Don't hesitate to come back with more questions..

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