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TOTAL COLECTOMY PART 19

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Posted 5/14/2008 6:49 AM (GMT 0)
Dear all,

I have an important question want to ask.

Anyone of you who had total colectomy, why do you all choose to go for surgery at the end ? If some laxative (e.g. Miralax, Dulcolax, Senokot ) work, but just you need to take it everyday and forever, would you still choose to go for surgery? Have you all considered the risk of taking operation? and the side effects after the surgery? I believe that everyone would think twice before had total colectomy.

Many appreciate if anyone can share with me what he/she thinks about the "total colectomy". Thanks


Cheers,
mimi.
Posted 5/14/2008 8:22 AM (GMT 0)

Hi Mimi,

For me, I was desperate..  I had what was called pseudo-obstructions....I absolutely couldn't move my bowels and the Miralax and the lactulose were barely working.  This is a very big operation and not to be taken lightly.  I had my surgery in 6/06.  I go 8-15X a day but am thankful for each BM I have. Presently I have ileitis which is inflammation of the small intestine near were they put me back together.  I have finally found a GI doctor who is helping me.  It is true that many doctors are not familiar with this condition.  I had doctors tell me to take fiber and that made everything worse.

It was a big decision to have my colon removed but I am very thankful that I did.  I waited over a year making my decision to have the surgery and weighed the pros and cons and I just couldn't go on the way things were.  I went to the Cleveland Clinic were this is a routine surgery for them.  They have so much experience.  I live in New York and traveled to Ohio to have the surgery.

Is there a University hospital near where you live....If not perhaps you can contact a doctor at a university hospital using computer and they may be able to help you.

Best regards

Phyllis

Posted 5/14/2008 10:06 AM (GMT 0)
Dear Phyllis,

Thanks for your quick reply. Sorry to hear about that. I really hope you are doing well now. I will pray for you too.

I think i have similar case with you, intestinal pseudo obstructions, decreased ability of the intestines to push food through, and often causes dilation of various parts of the bowel. This caused that i have a chronic and slow transit constipation due to the lazy bowel movement. The difference thing between us is i still can rely on laxative called Dulcolax. I never know about Miralax until you told me. But i guess they are same sort under laxative that help bowel moving.

11 years ago, my sickness became serious. That moment my small intestine is very weak and could not absorb nutrition. As a result, i was very weak and only have 25 kg. I really thought i could not survive as my body weight drop day by day. It was very lucky i met one of the doctors in my country. However everytime i have to travel 3 hours to go to the specialist hospital, waited for 6-7 hours and only can consult with doctor for 15 minutes. The doctor is quite famous and he has a lot of patients. It is very hard to meet a good doctor here. I have continuously check up with him for 2 years plus. At the end, he has cure my small intestine and stomach problem, and i have put on weight at last. He has saved me. However the lazy colon i still have to depend on medicine.

All the years, im suffering from stomach burning, stomach full of gas, blockage inside intestine, chronic constipation, and a lot of bad terrible experience. I just wish that i get use to it as i know there is no way to wake up my lazy or dead colon, but recently, my colon gets more painful and i consulted with doctors again. Doctor said it's bacteria infection and now my small intestine seems getting weak. I read some article said, over years using laxative will kill your small intestine too. At the end, all your organs, stomach, intestine and colon will totally rely on the laxative. This is very bad and i was shocked when i read it.

That's also one of the reason i have decided to have total colectomy. I found a doctor who can perform total colectomy here, he said it is joining ileum to the rectum. He never tells me any side effects. But he said he has done 7-8 colectomy so far. The amount is very few.

Phyllis, i know it is very hard for you, and everyone who has such illness to go through it. Do you mind if i ask you, have you ever regret after you had total colectomy? What do you mean by "BM" ? i read that you need to go to washroom around 8-15x a day, is it every 2 hours after you have your meal then you need to go to washroom? Will you lost control when you feel like go to washroom nowadays?

Yes i have heard that people who had total colectomy cannot take fiber. Is it because it will cause the intestine blockage? Others than that, what else you cant take?

Sorry if i really ask a lot of Questions here...

We have University Hospital here, i went there before but the doctors said he never see my case and lost their way.


mimi.
Posted 5/14/2008 11:19 AM (GMT 0)

Hi Mimi,

I have no regrets having had the surgery.  BM is bowel movement.  I have to go to the washroom with 30 minutes of having a meal.  Then it is about every 2 or 3 hours. I have never lost control.....  Many people who have had the surgery go only 2 or 3 times a day...Miralax and lactolose work differently than the ducolax...You may want to ask your pharmacist about it.

There are many people on this forum that have been through the struggle and then the surgery.  So if you have questions, just ask..someone will answewr you.

Take care

Posted 5/14/2008 11:38 AM (GMT 0)

Hi All,

I am brand new to this site and I'm writting because I have many questions/concerns about TC. My 11 yr. old daughter is having this done on 6/12/08...We have been dealing w/ CI/motility problems since she was born. The first 6 yrs of her life we had no idea what was wrong w/ her...then after DR after DR,hospitalizations,all kinds of diets,and medications we finally went to Boston Childrens Hospital and Dr.Nurko...and that is all he deals w/...we finally had a light at end of tunnel!! In 2003 she had a ACE done and we thought that would be the miracle s/x,but my daughter never does anything by the "book"LOL...so we have struggled w/ that trying to make it work and make her go but it never didI mean it is amazing she gets 1000cc of golytly into her colon daily,4 capfulls of mirilax daily,dulcolax daily,amitza daily,plus other medications for chronic pain/spams,and 1000cc of IV fluids daily because her body has changed abd started to absorb the golytly making her very dehydrated/losing weight etc... So May of 07 we did a colon resection and they took out 50% of her colon (which the surgon said was the size of a 50 yr old mans)ahnd were able to connect her end to end w/out a bag. We were hoping after that we could make the ACE work...still didnt/doesn't work and where they reconected her has formed a stricture. They have tried to open it up but it keeps on closing...so we have decided to go on and do the TC...and hopefully w/out a bag at this time. I have been reading the website and was amazed to hear that she still might not go to the bathroom even after the s/x. Does medication and diet work better after the s/x? It does make me less nervous to read that most of you would have the s/x again,and quality of life is much better!!! My husband thinks we should just have the TC done but w/ a bag He is afraid that this won't either...She does not want a bag unless it is the last resort...Have any of you heard results of s/x on people my daughters age?? Any input would be great!! I totally trust our docs at Boston Childrens...I know that they afe doing an open TC,and she will have a epidural...it was a God send last yr..and also she was supposed to be in the hospital for her resection 7-10 days,and we ended up there for almost 6 weeks,do you think that it will be the same w/ this s/x? Thanks for any input. It is great to talk to people who understand this illness tongue   Thanks,Booka

Posted 5/14/2008 1:39 PM (GMT 0)
MIMI - My heart goes out to you!!  I'm one of those who suffered with chronic constipation my entire life - from a baby until I was 43 years old.  Like you I was lucky IF I had a bowel movement once a month.  The ONLY way for me to have a bowel movement was to take laxatives, Ex-Lax was the only one that worked for me.  Dulculax was a big NO NO for me due to the severe cramping is caused me.  As I eventually found out - laxatives will STOP working eventually.  I was taking 48 tabs within a three DAY period, not  to mention, precription medications Zelnorm, Amatiza, MiraLAX, and any other you can think of.

On 11-09-06 I had my TC - which gave me a life I never knew existed.  The surgeon left in a very minimal amount (VERY MINIMAL) of colon for the sole purpose of keeping things from going straight thru.  The small intestine was attached to the rectum, avoiding a bag, so basically the small intestine now does the job of the colon.  It can take a year for the body to get accustome to this change and over time the amount of bowel movements one has gets better with time and also the time between meals.  For me personally, in the beginning post-op, I was going 8 to 12 times a day.  Now I go 1 to 3 times a day, if not, every other day.

I will tell you that this is a HUGE surgery and recovery is different for everyone.  Yes, there are risks with even the most minor of surgeries but it's a decision only you can make for yourself.  I weighed my options and decided I could not live any longer with the pain, bloating, and in general, being so sick all the time. 

What worries me about the surgeon willing to take on your case is the amount of surgeries he has done.  But you're in another country and I guess you don't have any other choice.  Is there a possibility that you can come to the United States to have the surgery?  I was very blessed to have one of the best colorectal surgeons in my area.  He has performed hundreds, if not thousands, of this surgery.  If I had to make the choice again, I would do in again in a heartbeat.

God bless you sweetie and continue praying.  God is so good and He will see you thru!!

BOOKA - My heart goes out to you and your daughter.  I'm sorry, but I don't know what the ACE is, so forgive me.  For me personally, I've not heard of this surgery being done on someone your daughter's age - but if they would have had the knowledge and technology they have today in my day I'm sure my parents would have opted for it.

I've read somewhere that when they do a "partial" colon resection for CI it usually ends up that a total will eventually need to be done.  Hopefully your daughter will not have to have a bag and when they do the resection they will be able to correct the stricture. 

Personally I don't think she'll have problems not having bowel movements post-op.  There is a possibility that things could slow down eventually, as in my case, but what did not work prior to the TC, i.e. MiraLAX, will get things moving - yet this is not the case for most people.  If it would happen the amount of MiraLAX wouldn't be what she's taking now, rather a capfull once a day or every other day.  It would be more of a trial and error type thing. 

Although I have to take the MiraLAX I still consider my surgery a TOTAL SUCCESS and would do it again in a heartbeat - no question about it. 

I don't have any answers regarding the hospital stay or how long she will be in.  With it being an open procedure it will take longer than if it were done laparoscopic.  Is there a specific reason why the surgeon is choosing open vs laparoscopic?

I wish you all the best and please keep us updated and/or feel free to ask questions. Someone may have more answers to your questions.    

  

Posted 5/14/2008 2:18 PM (GMT 0)
Booka

I had my ileostomy surgery done when I was 10 years old, but mine was due to UC. I've had my bag for 32 years now and have never regretted it at all. Often, it's a lot harder on the parents than the kids in my experience - they're usually the ones that do all the worrying.
Posted 5/14/2008 3:43 PM (GMT 0)
Hi again!

Dear stuck42long-  an ACE is also called an apendacosty,or The Malone Procedure, They used her appendix,by-passed most of her colon,and create a stoma,but she has no bag. I put a catheter into the stoma daily and thats when I put in the 1000cc of golytly. Alot of kids w/ hirch-bronx or short guy sndrome have this procedure done. I,m not to soure how many kids w/ CI get it done though...but from what drs,and other parents say this usally is a life saver because the kids can now go to the bathroom everyday...It made me happy to hear that about 1 yr post -op you can controll your BM,instead of it controllng you :-) Do you still have cramping/bloating etc...? My daughter right now w/ all that we do goes to the bathroom maybe 1x every 10 days...but it is always a tiny amount of liquid. She does leak liquid right now and does have to wear pullups,because she does not feel when she leaks...I worry that she may post-op just pour out w/ no controll..and then we will have a whole new set of issues to dealw/...but the drs says it is easier to fix that problem than the problem that we have now.  As far as them doing the open,it is because to much scar tissue,They tried to do all of her other s/xs w/ the lap procedure but every time they could not do it...even her gallbladder s/x ended up being an open one,and this time I think w/ where the stricture is may be playing into that also. How soon after your s/x did you know that it worked? Did you go to the bathroom right away? Thr drs and me are hoping that she goes something right away...we think that she may have a slow small intestine also due to all of the medication...Anyway thank you for any help...It's all in GODS hands anyway is'nt?w/out Him my daughter would not even be here,so I have to trust Him that He has a plan through all this so He can be glorified,and TAkera healed!! Talk again soon-Booka

Posted 5/15/2008 1:18 AM (GMT 0)

MIMI- It breaks my heart to hear what you are going through. I myself opted for the surgery as a last resort. After eight years of chronic constipation, throwing up, bloating, and shear misery (hence the name) every day I decided to go with the recommended total colectomy. I had my surgery Jan 28 of this year and I did have quite a few complications, but even with those complications I do not regret my decision becuase I have my life back. The surgery has been the answer to all my dreams. I had the whole colon remved and they connected the ileum to the rectum. I go to the bathroom about 4 times a day and occasionally I have to take Miralax, but unlike before surgery it works wonderful. I had tried every med out there for multiple months and years before the surgery. I will not deny that the recovery is a long process and just in the last month have I started to feel like myself again and get back my energy.

JANIEPAIN- I had my surgery January 28 of this year. I was in the hospital for 9 days with and ileus (small bowel took eight days to wake up) and fevers. I was discharrged and almost a month later after 3 weeks of 103 degree fevers every four hours I called my surgeon ( I thought I had the flu at fisrt when I called him in the beginning) and I had a CT which showed 4 abscesses. I had two drains placed and had them for more than a month after developing a fistula attached to my bowel from one of the abscesses. 22 lbs lost later and drains out I am feeling great. I truly hope things get better for you and I will keep you in my prayers.

BOOKA- I am so sorry for you and your daughter. She is so young. I hope that you all decide what is best for her and figure out what is the best option. I had a total and I am doing great and with all the technology out there it is probably no issue about her age.

Hope you all are well.

Lizzie

Posted 5/15/2008 6:32 AM (GMT 0)
Thanks Phyllis, Robin, Resa, Lizzie & everyone,

I'm very happy to receive all your replies and advices. I really appreciate it. I'm glad to know all of you because you all share everything to me. Sometimes i explain to my friends about my sickness, they all look at me like I'm alien. hahaha...

Phyllis, Thanks for your advices. yes, i would check Miralax tonight at pharmacy. Usually i depend on 3 tables of dulcolax, but sometimes i take 4 tablets. Other laxatives do not work on me. I took a lot of fiber supplementary but none of them working. Once before, i think i could work as Pharmacy Sales Ppl because i could tell you which laxative, which medicine, or supplementary work and how would you feel after taking it bla..bla..bla... :)

Yes, Resa you are right. I have thought of visiting doctors in Singapore. Singapore is quite near to Malaysia. It just the operation cost might be higher than here. Total colectomy would approximately cost RM 25,000 in M'sia. Quite high cost.

Robin, i wish i could fly to US and have operation. But i can't imagine the total cost of air tickets, operation, hospitalization cost, etc. Yes, it is a major operation. A doctor told me the risks of the operation are leaking and bleeding too much. I feel that it is hard to predict what would happen after the surgery. Because it is just depend on our luck and individual response. It is really a blessing if you could get a good and experienced doctor in your country. :)

I would discuss properly with my parent tonight, and take my next step to visit Singapore Hospitals. Hope everything goes well. It's really my dreaming when one day i don't need to suffer anymore and i could eat whatever i like. :)

Booka, have you heard of "Hirschsprung disease"? I found this good website :http://www.hopkinsmedicine.org/geneticmedicine/CR/Hirschsprung/WhatisHirschsprung.html
when i do my research about my illness. It is quite similar to slow transit constipation (lazy intestine). But it is most often diagnosed within the first week after birth. One of the first signs in a newborn is failure to pass meconium (the first bowel movement) within 24-48 hours after birth.

Thanks again for everyone. And i hope all of us are fine and can fight our sickness at the end.


Cheers,
mimi

Post Edited (mimi82) : 5/15/2008 4:51:49 AM (GMT-6)

Posted 5/15/2008 10:50 AM (GMT 0)
Hi Resa,

A question just came to my mind. I just want to ask you that the lady you mentioned earlier (from Burma), is she has same problem as me? If yes, is it possible for you to get the Singapore doctor contact that could perform total colectomy? Even though my country is near to Singapore, i have no contacts/ friends/ relatives from Singapore. It will be good if i have a good reference for me to go Singapore myself to heal my sickness. Thanks a lot.


Cheers,
mimi.
Posted 5/15/2008 11:36 AM (GMT 0)

Hi again everyone,

MiMi- We thought that my daughter did have hirshbrox(sp?)-but they say no,so she then went into the catorgory of CI...she did not ever have her first bowell movement like you have said...but we are going ahead w/ the TC ,she will have it on 06-12-08..We are hoping that this will be life changing for her!!  My daughter goes to Childrens Hospital Boston...I know they have programs that help people come from all over the world...maybe you could contact them they have a web site also...WWW.bostonchildrenshospital.org. I will also talk to the doctors there,when we go back. The head of the motility program there is my daughters doctor,so maybe he can tell me adult hospitals here in the USA,that have similar programs for people that live in other countries...You are in my prayers,having the right Dr is so important :-)   I know the feeling of people who think you are crazy...people here don't understand eitherLOL.  This web site is the first time that I have talked w/ people who understand!!! It is nice to know that you are not alone!! Talk again soon

Booka

Posted 5/15/2008 4:45 PM (GMT 0)
Booka,
Your daughter will be in my prayers. Such a young thing to have these kind of problems. Doesn't seem quite fair. But I guess a lot of it isn't fair. I think you are smart going with the TC. From the comments I have read, some people have a sub total and then they have to go in again and remove the rest.

Mimi,
Laxatives work for me for a while and then stop. I guess my body gets used to them. I have been to the hosptial numerous time for blocked small intestine, very painful as many of you know. My GI says it is due to my lazy colon. According to him it is dead and never gonna wake up. So I am in for surgery tomorrow. Yes, I am sooooooooo scared and I know it is gonna be a long recovery. But I figure I need to get it done now versus later. For the people that say Yes recovery didn't go excellent but would still have the surgery, THANK YOU!!! I need that. It will give me something to look forward to. For the last couple of days, I have been trying to talk myself out of the surgery. Like "Do I really need it?" I guess that is normal.

May I ask those that have had the sugery, either a sub total or a TC, how long your hospital stay was? My surgery will be open. I have no choice. If you could give me an idea of how long, I would appreciate it. I know that complications can change things, but a rough estimate would be appreciated. Thank you.
Posted 5/15/2008 5:59 PM (GMT 0)

Stormy-

I was in the hospital for 9 days my first admission and then 7 the second after complications. I would have been in less the first time, but I developed an ileus and my bowel did not wake up. I had a rough go....but NEVER would regret it now.

lizzie

Posted 5/15/2008 9:23 PM (GMT 0)

Stormie-  My daughter was in the hospital w/ her sub -total  which was also open for almost 5 weeks...but that was because of complications. It should have been 7-10 days... They say that her TC stay should be about 7-10 days also,her TC will be open also ,no choice for her either...but w/ my daughter nothing goes by the book,so I plan on more hospital time than they say..I think though w/ an open w/ no problems your stay should be 7-10 days...Hope that hepls.  

Does anyone know who already had s/x why they would be doing another colonoscopy on my daughter before her s/x? Forgot to ask thr dr when he told me that.

Talk soon,

Booka

Posted 5/15/2008 10:41 PM (GMT 0)
Thanks Lizzie and Booka for the information. It seems like few have escaped without complications. I do wish I would have gotten a specialist to do the surgery. But it is too late now. I am supposed to have two surgeons working on me, so hopefully between the two of them, they can figure it out.

Booka, FIVE WEEKS!!!!!!!!!! Geez. I can't even imagine staying the the hospital 5 weeks. I was in there 2 weeks in 2006. That was enough for me. Had the NG tube down me for 9 days. I was sneaking off to the bathroom to get sips of water.

Well, I am rambling now because I am scared to death. But, a friend called me and told me about another friend. It made me realize that my problem can be fixed. That is the main thing. It can be fixed. Well, I had better start getting things together. You all take care and I will come back on line as soon as I am able. Thank you ALL for your help. stormy
Posted 5/16/2008 6:06 AM (GMT 0)
Dear everyone,

Booka - I will keep your daughter in my prayer. I feel your daughter is blessing. Because she is diagnosed when she is very young. about me, when i was small, around 8 years old, i always feel my stomach full of gas, painful, and all the children, my friends teased me having a big tummy, like a pregnant girl. I do not know anything about constipation and health issue. I only told my parent that i always had stomachache. None of us found it was a big issue. My parent brought me to hospital check up, yes i remember i was brought to specialist children clinic in hosp, the doctors scanned my stomach for 2 times, but end up saying found nothing, everything is normal.... That's all. So we just thought it's not a big issue, and i thought my tummy big because i was a fat girl :( Until i was 14 years old, then only i knew that i have a chronic & slow- transit constipation, but everything was quite late. i remember when i was small, i only go to bathroom once per month. And 7X ++ times each & i stayed inside the bathroom for whole day. Silly me, i thought every month i would have so called food poisoning. So, don't worry Booka. She would be doing fine. I feel very painful everytime i saw my mom crying, she always complaint is her fault to bring me in this situation. I always tell her i never blame on her and anyone. It's just my luck and i believe it must have a reason that God brings me to this situation. We all are born to be love, love from God! :)

Resa - Thanks again. I will also try my best to find the surgeon in Singapore too. I would be looking forward to your reply if your co-worker could get for me. Many Thanks!!

Stormyakared - I wish your surgery will be doing well!! Don't worry, you will recover soon. Cheers. As what i know in my country, the total operation only takes 2-3 hours and patients are required to stay in hospital for around 8 days. However if there is a leaking, then will go for 2nd surgery. Of course none of us wish it would happen. :( Hope to hear from you soon!

Oh ya, last night i checked MiraLAX but it is not available in any pharmacies in my country.

God bless everyone! ^.^

mimi

Post Edited (mimi82) : 5/16/2008 12:10:17 AM (GMT-6)

Posted 5/16/2008 10:42 AM (GMT 0)

Hi Mimi

Ask the pharmacist about Lactulose or Zelnorm......pesonally they did not work for me but I had my condition for over 40 years...perhaps they will work for you

Best regards

Posted 5/17/2008 11:02 PM (GMT 0)
HI EVERYONE!!!

I haven't been on in a while b/c life has been really busy.  But, I must say, I have never been so happy and healthy.  I have one question though...

My gas REAKS!!!! I start back to college full time the summer and I don't know how I am going to handle holding it in...I tried and just can't do it b/c it makes my stomach hurt.  It needs to come out.  I even bought the flat-d innovation thingy (a pad like thing that you put in your undies).  As you pass gas, it is supposed to go thru this bad and activated charcoal center and disipate the smell...didn't work for me.  I could still smell it, even though it wasn't as strong. 

Any advice????

Posted 5/18/2008 1:14 AM (GMT 0)
Hi everyone- I am a 25-year-old who has battled severe constipation all my life. I am finally getting a subtotal colectomy on June 17th.

I have a few questions for those of you who have had a total/subtotal colectomy. I am still deciding if I am going to get an epidural. Does everyone recommend getting one? I am so scared that it will be painful... But, I guess in the end it will reduce the pain from the surgery. Also, on a scale of 1 to 10, how much pain were you in after the surgery? What medication were you given? I want to prepare myself.

Also, besides being bloated, I feel as if I've gained a few pounds in the last year since my constipation has gotten much worse. I wonder if there is a correlation between weight gain and constipation... Anyone know??? I also wonder how much weight I will lose after the surgery... considering I will have most of my colon removed and have regular bowel movements. I am a little worried about that because I am a petite girl- 100 lbs. right now. I used to be about 95 lbs. before the constipation got much more severe.

Thanks for your help!
Posted 5/18/2008 5:03 AM (GMT 0)

Hi Sub-Total here I come,

I can't speak from my own experiancd,only what I saw my 11 yr old daughter go through...she has had 2 colon s/x,one of which was a sub-total,and she had an epideral,but her s/x was also open and not laporscopic. She said she loved the epideral...it really helped w/ her pain control,and me as a mother I saw her deal w/ the pain better w/ the epideral. She is having a Total Colectomy done on 6/12/08,which will be open also and she will be having another epideral for pain...everything that I have read on this site people say it is a HUGE s/x but they all say they would have it again...that even w/ the pain and certain side affects it changes their life...We are hoping for the best for our daughter because nothing has worked since the day she was born...I will keep you in my prayers...Also read through this forum "ToTal Colectomt Parts 1-19" It will give you alot of usefull info!!

Talk soon,

Booka

Posted 5/19/2008 2:59 PM (GMT 0)

Subtotal,

I had my surgery back in September but it was done under a general. I have had epidurals before and it was fine. Didn't have much pain at all during the insertion - just pressure. My surgery was laparoscopic not open, so my pain wasn't bad at all - maybe a 3-4 at its worst. The big thing is to walk a lot as soon as you're allowed.

Posted 5/19/2008 3:50 PM (GMT 0)

BOOKA - I'm sorry for the delay in getting back with you.  Thank you for answering my question regarding your daughters other procedure.  I will admit that I do at times have bloating and cramping, however, it doesn't seem to be as uncomfortable post-op.  My colorectal surgeon believes it's now due to a lazy small intestine.  I return to my GI Thursday to discuss the transit test for the small intestine.

On the second day post-op I had my first bowel movement, so I knew immediately it was a success.  I pray for a successful surgery for your precious little girl and yes, all things are in God's hands and ultimately He will be glorified!!!!

WOW - It's been a busy board the last few days.

 

My prayers are with all those preparing for this surgery.  May all of you have all the success you so well deserve with little to no complications.  Just keep in mind this is a HUGE surgery and there will be pain and discomfort - there's no way of getting around it.  However, the outcome is worth every bit of the pain and discomfort.  It's a day to day recovery process.  Some heal quicker than others - it's an individual thing for sure.  Just keep forcused on what is to come - regaining a life lost due to CI.

 

My thoughts and prayers are with each one of you!!! 

Posted 5/19/2008 7:32 PM (GMT 0)

Dear Stuck42Long,

Hi, how are you? Thanks for the info,every little bit helps!! There has been a change in plan for Takera...our s/x was supposed to be 6/12/08...well my daughter hasn't had any BM since we have been back from Boston for testing and tring to open the stricture...that was 5/5/08...so today talked w/ drs and we are moving the date up to next week!!5/30/08.so please pray that I can work out all the ligestics of everthing...financial,airfare,insurance approval etc...I know that GOD won,t leave me hanging...I truly belive that this is another step in Takera's healing so now the enemy is trying to mess that up..but THANK GOD he is defeated and under our feet!! I just have to remind him of that fact :-) . What is the test for the small intestine? What do they do if that test is postive?I have wondered that,because takera's drs have said something about her small intestine being slow also..Let me know what the drs say. When we go back to Boston for s/x she will have a care page and I am bringing my laptop so I can keep in touch w/ all of you...God sent all of you like little angels tongue !! Talk soon.

Booka(Krista)

Posted 5/19/2008 11:04 PM (GMT 0)
Thank you so much for the prayers, Stuck42Long, and everyone's insight. It is so nice to hear from people who are going through the same thing and have had this surgery. I think I am going to go with an epidural, but I am still scared. I know this won't be the most fun experience, but it is so worth it, I know. I would love to continue to hear from those who have had the surgery and have any advice or information at all. Thank you!
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