Hello Everyone!

I hope all of you are doing well.  I just wanted to drop by for a minute and let you all know that I have been thinking of you and miss chatting with all of you.  I haven't had much "spare" time on my hands lately.

My husband's diagnosis still remains the same - ALS (Lou Gehrig's Disease), though we are still awaiting one set of labs to come in from a specialized lab in Massachusetts to let us know if IV Gammaglobulin might be a treatment for him.  We should know that answer any day now.  I have noticed more fatigue, and muscle loss over the last several weeks.  But, we remain positive and hopeful.

The stress of all of this has finally caught up to me.  I have been battling a partial blockage or kink in my intestine since Wednesday morning.  The oral pain drugs and muscle relaxants haven't worked well at all this time.  Last night, I finally gave in and switched over to a transdermal pain patch and actually have had some relief over the night.  It's quite a bit stronger than the oral and keeps a constant level in my system.  I'm hoping to be off of it by Sunday, if my gut cooperates.

Our house building is coming along.  It is being drywalled now.  We are supposed to meet a landscaper there at 10:30 this morning and then go look at countertops today.  We ordered our cabinetry yesterday.  We also need choose which painter we plan on hiring too.  Been really busy with organizing all of the workers since we are acting as the general contractor.  I was hoping that we would be moved in by the end of July if at all possible.

I just wanted to drop you all a note and say "HI" and to let you know that I think of you often.  I noticed that we have lots of new members posting now.  Welcome to all of you!

 

Hi Peggy,

You're so missed here! Thanks for checking in to let us know how things are going. You definitely sound like you've been one busy lady. I'll be hoping and praying that your husband will be a candidate for the gammaglobulin treatment.

Peggy,
My thoughts and prays have been with you and your husband. This has really had to be hard on you.You are such strong wonderfull person and have help me so much thew my problems.
This had really been hard on you and I don't know how you do it all.
Ihave been outside this past month and seem to be doing better as time goes on. The output has slow down some and I just hope it keeps it up.
Once again tinking of you and was wondering how you were doing.
Jan,

gosh, i didnt realize i hadn't replied. I will keep you and your husband in my prayers and send good thoughts your way

peggy113 said...

The stress of all of this has finally caught up to me.  I have been battling a partial blockage or kink in my intestine since Wednesday morning.  The oral pain drugs and muscle relaxants haven't worked well at all this time.  Last night, I finally gave in and switched over to a transdermal pain patch and actually have had some relief over the night.  It's quite a bit stronger than the oral and keeps a constant level in my system.  I'm hoping to be off of it by Sunday, if my gut cooperates.

Hello again ---just a quick update.  The discomfort in my lower left quandrant of my abdomen is still there.  I did a stool sample for culture on Sat a.m. and the results today showed that it is NOT a bacterial infection.  I am pretty certain that it is not a blockage...  I'm not sure exactly what it is tho.  My dr. wants me to do a 7 day round of Flagyl.  I picked up the RX this evening.  Unfortunately, this is the drug that I have to be careful about how I take.  It makes me really nauseous at the regular dose which is 1 pill 3x a day.  So I have to cut the pills in 1/2 and take them 6x a day with food at each dose.  This will be a long 7 days but I am hopeful that it will make the pain go away.    Always good news and bad news.  Good news is that it is not a bacterial bug.... Bad news is that the doc is not sure what it is but is working with me to get rid of the pain.  Don't get me wrong, I can still function and work, but am worn out from the discomfort by mid afternoon.  I sure hope that it isn't the CD coming back.  I think lab work will be next to rule that out.  I just can't be sick right now.  Too much other stuff on my plate.

Have a good rest of the week.  It is so good catching up with you all.

Laura,

AHHHHH jeez, how nice of you!!!

And everyone else out there dropping in to say hello.  You all are truly like my online family.  I miss not having the time to chat more frequently tho.  As you can see, I am up in the middle of the night again ....  this has got to stop.