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A question about nightime pooping

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Posted 10/8/2008 4:04 PM (GMT 0)
HI to all who have had tc with ileoanastomosis - do you have to get up in the night to open your bowels very often and if so, is it over and done with nice and quickly.??

the reason i ask is that i am on large amounts of senna which dont work too good, and when i get backed up i find from time-to-time i am up in the early hours feeling the urge for the loo, but not much is there and i have to spend about 30 mins on the loo, as it is comes in dribs and drabs and just not much is coming. so frustrating.  sad

So, is this what it will be like for me after a TC?? i really hope not i hate getting up in the night so much.  i wouldnt mind if i felt like i had 'been' properly...

i wonder do you guys who had the t/colectomy feel nice and light like you have emptied proper? 

Posted 10/8/2008 4:23 PM (GMT 0)

hi 2much, i only go during the night if i have had my oats too early. i have quite wet oats before bed and i feel empty in the morn but it doesnt agree with everyone. i never spend that amount of time on the toilet either, as soon as i feel i need to go, i rush and it comes straight away, no faffing about. lol im glad its like that though as before i could be on the toilet forever, with nothing happening, i take it the tc was not a complete sucess if you are still on senna? good luck hope you get good advice

amanda xx

Posted 10/8/2008 10:03 PM (GMT 0)
I can sympathise with you, I had my resection done 15 months ago after having BC and even now I suddenly get bouts of night time pooping,  I have to get up (really quick) about 4 -6 times and only do a little bit, then no sooner get back to bed and have to rush back again.  It starts off as just a small "pebble" then builds up to what I describe as "cow flops" eyes   By the time I have finished my poor bum is that sore it feels like I have been cut with a razor blade!! This happens during the day also which is really embarrasing if I am out somewhere.  Then if I take medication to stop the frequency I bind up for days and end up having to take Coloxyl to open the bowels again.  I really thought after this amount of time it would have settled.

Good luck with your next op, it must be so frustrating knowing that you were incorrectly diagnosed in the first place ....but what can we do?  confused

 

Posted 10/9/2008 9:52 AM (GMT 0)
oh dear lifescar so sorry to hear all that. thats not good and it must get you down - there is nothing worse than having to go to and fro and not knowing when the next explosion will happen. so sorry - i feel for you and yes i can sore too - i hope you get it sorted - did you have a total colectomy?? :(

AMANDA No i havent had total colectomy yet - i was put on the waiting list a few weeks ago so it wont be until early next year - hopefully - you know the NHS. i am having the op in The Royal London and St Barts in London, which is one of hte best apparently?? - i dont trust anyone anymore and i dont feel at all positive about it, but what else can i do. i really hope i end up like you - living a pain-free and happy life living it to the full. xx
Posted 10/9/2008 9:22 PM (GMT 0)
Wow, after reading you guys problems I think I'll shut up and be happy with my sore butt and frequent BMs! It makes me feel like a real whinger when I read of how much you have all been through.
May the Universe be kind to you........My thoughts and best wishes are with you all.

Life Scar
Posted 10/10/2008 11:06 AM (GMT 0)

hiya 2much

yeh i know the nhs only too well, they papped me off to loads of different folk for years. Different hospitals etc...... not knowing what was wrong with me, then they diagnosed what i knew all along, severe slow transit, well i knd of guessed that when it takes about 3 weeks to do a poop. lol I was on the waiting list for a year, then the doubt set in, should i should i not, will it work, blah blah blah. But the op was horrific, i suffered a lot of setbacks post op, my surgery was june 29th last year and believe me when i say it is the worst thing i have experienced and i have 4 kids. one labour eas em c-section and then lost 2 litres of blood, It ws a very long recovery. Sometimes thought i wouldnt get through it, But i would do it again knowing what i know now. I was still suffering in july, but along with my meds that i was put on and keeping a diary i was able to see it was foood making me worse. But the meds did help for the adhesions i had. Now i am 6 weeks pregnant and feeling brill. I do so much now its hard to believe i was laid up for a year, but theni think what is a year compared suffering my full life, i am 29 tomo, and i have plenty of healthy good years ahead. Have you tried quite a wet consistency of ready brek? see if that helps you go? i find it my magic food,as even post op i felt constipated, now every morning i am empty its great. "28 years" of pain and i could have tried the wet oats thing. I wish i had tried a food diary though before the op to see if it would have made a difference. good luck you are not alone, i may be better but the c is all i know, still trying to get used to being able to do things. I do still have the odd sore day, but who cares its not evey day

amanda xx wink

Posted 10/10/2008 12:44 PM (GMT 0)
Hi worsenow,
Happy 29th Birthday. I am also 29 too, but I will be 30 in Nov. Congrats on the pregnancy again. Happy birthday.
Posted 10/10/2008 4:24 PM (GMT 0)
thank you psygirl. just having a quiet birthday tomo, gonna have a nice dinner with my hubby and maybe go to the cinema,  thankyou also for your kind wishes on the pregnancy xxx

Posted 10/11/2008 1:26 PM (GMT 0)
Hey worsenow or should i say worsenow is better now!!

You had a horrendous time - you are still young at 29 u lucky thing - i cant believe you are on your 5th child!! you must be amazing to deal with all that.  i had two kids - the first when i was 20.  my eldest is 26 now.  i am glad i had them young cause i certainly couldnt cope otherwise.   my trouble started around 10/11 years ago.

Yes i have done it all Amanda - you name it - every diet going - exclusion diet for over a year where i gave up all gluten, sugar and dairy (and ended up underweight but didnt realise it). candida diet, no raw food diet, high fibre diet, low residue diet....Yep i had sloppy porridge in the morning for years... i did feel better on a 'hardly eating anything' diet though, but i was getting ill....yes it goes on and on.  i never knew slow transit constipation existed until 2 years ago when i was told i had it - i 'went' everyday would you believe, but obviouly not properly..now life is awful and i hope i end up ok like you and some others.. i want to know how 2 ris k is doing, as her history is like mine...

turn  **** tongue HAPPY BIRTHDAY TODAY tongue ***  turn   hope it was a goodun !!

karen x

Posted 10/11/2008 9:35 PM (GMT 0)

hiya thank youxxxxxx  had a great day. I am glad that some people are getting hope from  my story i know that i certainly had none left and was all for giving in.

Its awful trying everything isnt it??? i even tried reiki, done nothing just relaxing, you know the chinese herbalist shops you get in the shopping centres??? went in there explained what was happening, got told what to buy, so i did. £20 for huge green ogre looking pills. They were monsters. OMG i went from being severely consti, to cant stop going, that would have been fine, had it not been the extreme pain and mucous those pills brought.

Its amazing isn't it, you think you know what is wrong, but dont get diagnosed for years, then when you do its what you thought in the first place. I would just like to know why on earth was i like this???? why did my body want to be like that. Thankfully i suppose i dont need to know now, just happy im on the mend. I am sure you will be soon, just keep harassing your doc, and the consultant. Keep phoning, and getting on their nerves.

Haven't seen a post from 2risk for a while, hope she is ok.

As far as deling and coping i don't know how!!!! amazingly it just seems to happen. This is 1st pregnancy while healthy, so far so good. 1st born 9 years ago, twins born 6 years ago, baby of the bunch 2 years ago, all boys!!!!!!!!!!!!!!!!!!!!!! i really dont know how i cope lol

take care hope to hear from you soon

amanda xxx

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