hi. just found your website and am glad i did.....im sorry some are having so many problems with leaks but i am glad we're not alone. im gonna throw all my questions into this email.
mom had her entire colon removed last november so she wears a pouch. she is able to empty it but is not able to change it so i do it for her. we use the hollister pouch, adapt ring and flange (wafer). ive tried one piece bags and they just didnt work for us so we're back to the above mentioned. sometimes she can go for 4 days without incident and other times i will change her one night and that next morning she is calling me at 4 am saying shes leaking. its happened 6 times in the last two weeks. she feels bad for me having to go to her house and do it (especially at that time) and i feel bad for her cuz she says she feels like an invalid when this happens. i have never made her feel like shes a burden or doing this is a burden but when it does happen, she makes comments like, 'well im just not gonna eat today...then it wont happen again.' so i have to assure her that its not a problem and im here to help and she NEEDS to eat.
i gotta say this deal is not only physical, its emotional too which i know you all know already.
i just watched the video about the eakin seal. it looks like its the same as the adapt ring from hollister...just a different brand name. what i found interesting was the fact that they molded it around the stoma. ive never been told to try that. do most do it that way? we were just told to attach it to the flange and stick it to her.
i did have to change her one morning after doing it the night before and that adapt ring was glued to her and i had to scrape and wash and scrape and wash to get it off. sounds terrible but dont worry i didnt hurt her by scraping....just took a long time.
what are CONVEX wafers? sorry if i missed it in the chat.
as i was changing the bag yesterday morning at 3 am :o( i found that i didnt think i was getting all the adhesive off of her skin. it felt very rough. of course we've never been told about an adhesive remover before either so another reason im glad i found this site! something i will get out and pick up today if i can find it.
one more question (i think). might sound strange to ask this but do you all shower or bath WITHOUT the bag on sometimes or all the time? this is something ive been telling mom for quite a while that she needs to do to cleanse the area around the stoma. she refuses....shes afraid she will start to go while shes in the shower. well i told her, 'you will be in the shower so you can just wash it off.' but she wont do it. she really needs to tho to cleanse that area....at least thats what i think.
well i think thats all for now. thanx for any input. i appreciate the ears. :o)
greeny