Weight???

Post Edited (vette guy) : 1/24/2010 7:09:07 AM (GMT-7)

sincerley,

beverley......

The thing is let me preference it with when I was on heavy pain meds 3 years ago I had really put on the weight being not active due to all my back surgeries, so in the past year and a half I have continually lost weight, by starvation, and limiting what I eat cuz everything I eat kills me....so I have lost 103 pounds as of today.

So before I get the surgery should I try to gain as much weight as I can???

I added you to my yahoo at least I think it was you did not get your name but added you.

Do you intestines feel differently once you have the surgery, do things feel the same as stuff goes through you.  I am acutely aware of every inch on my guts as I can feel everything as it tries to go through but dont....I can tell the doc exactly where the gas is and where my bowels are stopped at, weired but true.  This process is so exhausting, I constantly am thinking about my pain, cramping, gas, and the endless war that is going on inside of me...so stressed out and the doc will not give me anxiety drugs, maybe the surgeon will tomorrow, its worth a try.

I cannot sleep, constantly wondering if I am making the right decision, trying to imagine how it will be with one and my life after, just too much going on in my mind and cannot relax.

So this must be at least week 3/4 for you...tell me about you ...what your feeling, how you feel can you eat...I just want to know every gory detail if you dont mind....?  So glad that your my friend, alone with all the fine people on these sites...

People ask me why do I come on here, I tell them we are all looking for answers and we usually have a acute problem not like the others that it just barely bothers.  We are the worst of the worst, and any little thing that we can find to help reduce our suffering is what we are looking for plus the fact that we are not alone on here.

Hope your well....Leslie

summerstorm said...
yall i have gotten so freaking fat! all i wanted to do was eat all the stuff i couldnt eat before! and at first i was working out so i could do that. I would literally go to the gym and throw away the cup my milkshake was in when i walked in, lol. But then i quit going to the gym but kept eating so i got fat!
(and btw animals are tasty, lol, went to sticky fingers for dinner!)
Anyway, so now, since we are going on a cruise next year i gotta get skinny so the cute guys will look at me, lol.
So i have been doing wii fit and trying not to eat as much, or drink soda

everyone's situation is unique, as all of you have said; this is what happened to me.

I got my ileo to shut down my large bowel while I healed from an infection.  I lost 35 lbs over about 5 weeks but almost 4 of them were in the hospital and I was on fluids only.  That weight loss put me back into a healthy range; I had gotten a bit piggy over time and needed to lose it.  When I finally went home, I found that I had lost all sense of taste!  Liquids tasted like muddy water and solids (toast) tasted like paper.  It was summer at the time so I survived on ice cream and chicken noodle soup. The ice cream needed to be Hagen Das of course :) and I was able to over-season the soup.   The loss of taste freaked me out despite being told that it would come back eventually.  But it did come back, first with pasta and then gradually with everything else.  

For the first 8 weeks with the ileo, I was able to eat bazillions of calories each day and not gain weight.    I was hungry all the time and enjoyed eating.   Then, without warning, I gained 10 lbs overnight !! Literally.  Ok, maybe over 3 days but still!!  My tummy grew or swelled up by a few inches and was very sore.  It was not a blockage because the stoma was still doing its thing.   After a few more days the weight did not go down.  I had a routine follow up with the surgeon and he said it was normal for the bowels to adjust and suddenly start retaining/storing calories.  The mistake I made then was to give up and accept the weight.  By the time I had the resection surgery in Jan/10, I had gained back 17lbs. 

In the week leading up to the resection surgery, I cut back on calories and switched to clear soups + stopped eating most carbs.  I was in the hospital for 10 days because there was a hint of a small infection so the medical team was very worried.  When I got home, I took it super easy on the food mostly to be kind to my small intestine.   Within a few weeks the 17 pounds were gone - great, right?   Then it happened again!!!  This time 5 lb gain overnight!  Same swollen tummy and pain but no blockage.  That was about 10 days ago.  This time I saw what for me was the common denominator.....bread and pasta!  I had let myself get too hungry and on one day I had a huge sub and later a big pasta dinner.   I think I also neglected the fluids I would normally have.  Presto - massive bowel upset and calorie overload.  This time I didn't give up and accept the weight gain; I have gone back to soups and yogurt etc. and have few carbs. After about 5 days the extra weight is gone and so is the soreness and most of the swelling.

So - that's just my experience.  I have no idea what to expect post-reversal but I'll let you know what happens.   I'm at a good weight now and I will work hard to keep it + lose a little bit more.

take care all,

Connie

ps - I'm 46