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Total Colectomy Part 34

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Posted 5/4/2010 5:30 PM (GMT 0)
oh.. and Sarah, i read the article, but honestly, i'm having hard time understanding these medical terms.. :( well i'll have to read more thoroughly and with a dictionary. it's so frunstrating to not be able to understand.
Posted 5/4/2010 10:29 PM (GMT 0)
Hodaya, thanks for all of your encouraging words.  I hope that you can convince your doctor to run some of the tests that I gave you.  They are the ones that Dr. Wexner gave me this spring to see before having my re-ileostomy in July. confused

I have been trying to remain strong, but I still have my daily crying spells and wonder why it has to be us?  My ileostomy tube that is velcroed to my leg isn't producing any stool lately and if my husband tries to flush the tube, it collapses inward on him.  So, I'm not having any stool leaving me, my abdomen looks like I'm pregnant, and my cramping is unbearable.

 

I called Dr. Wexner's office today to see if there is anything that I can do or if he can get me on his surgery schedule earlier.  He is supposed to call me back, so I'll be waiting.  Actually, I would love to have surgery now and get it behind me vs. worrying about what I can't change and what might happen to me.  My outcome doesn't sound rosey, but I am going to try my best to be positive. rolleyes

 

Some positives:  I have a wonderful and supportive husband and family, I have one of the best colorectal surgeons in the world, surgery might improve my quality of life, and I'm a good person.]

 

butterfly yeah

Posted 5/4/2010 10:44 PM (GMT 0)
Lori,

You do have lots of positives in your life, so you just have to believe that things will be much better after surgery. You are being VERY brave, and under the circumstances I'm surprised you're as strong as you are. Go ahead and have your crying spells because it's better to get your feelings out. The last thing you need now is an ulcer from holding your feelings in!!

What day is your surgery? Do you at least have any liquid leaving? If not, Dr. Wexler should at least see you to try to repair the tube.

Don't have much time tonight, but just want you to know I'm thinking about you.

Hugs,
Janie
Posted 5/4/2010 10:50 PM (GMT 0)
Butterfly,

Thinking of you and praying for you. Hope your doc can do this surgery sooner.

I have some weird bowel slow down issue. Lots of cramping. Poop coming out of ostomy, but much delayed.

I gotta get back on a cruise ship I guess. Was fine until I was home a week.

Anyway, best wishes. Rosemary
Posted 5/4/2010 10:52 PM (GMT 0)
Hi Janie.  You're always so dear to me and I believe too, that we all should get together and go on a cruise!  We've had enough to go thru, that parts of our lives should be enjoyable, too.

I am supposed to be in Weston on July 12 to mark my stoma and get my pre-op instructions.  I have my surgery on July 14 if I can last that long.

Nothing is coming out of my tube on its own.  My husband is even using coke, which my previous surgeon said would work.  I'm hoping that Dr. Wexner can schedule my surgery earlier or can give me ways to get this stool out of me.  I don't want to hurt my small intestine, too.

butterfly

Posted 5/4/2010 10:56 PM (GMT 0)
Rosemary, do you think that your ostomy worked better on the cruise ship, because your activity level was higher? 

I wonder if I am not as active anymore as I used to be and that may have some effect of what I'm going thru now.  I have problems walking with my velcroed leg and can't go up and down stairs without my velcro straps popping apart and falling down.

butterfly

Posted 5/4/2010 11:12 PM (GMT 0)
Butterfly, yes, we all need to count our blessings....

I thought all of you would get a kick out of this....

So, I went to a new GP today....I needed a medication form filled out for work and I needed some prescription refills. He asked many questions...like why I was taking zofran, etc. I told him I have colonic inertia...he asks me what I take for this...I said I take miralax....he says, how much? I said a 30 dose bottle every week. He looked very shocked and then asked me about fiber. I said no fiber, can't take fiber! He asks me if I eat vegetables, especially green leafy vegetables. I said, sometimes salads with romaine lettuce and tomatoes, but I do better eating the "white diet". He went on and on about what foods help with constipation, etc. He then asked me if I had tried amitizia?????? I said, of course, but right now nothing really helps. He said, well, what do you mean? I said, well, I can't get it out, even if it is water diarrhea. The poor man looked so shocked and confused I told him I had a defogram....do you know what that is? He says yes....I then told him I was seeing the colorectal surgeon Thursday. I have a rectal outlet problem that no diet or med can help....

There were no more questions about my diet after that.

I felt very frustrated and I may quit telling people I am constipated....I need to start telling them I have obstructed defecation syndrome....this should shut them right up, don't you think? It also hurts my feelings when friends ask me what is wrong and I try to tell them and they stop me and say uh-huh, too much information.
Posted 5/4/2010 11:21 PM (GMT 0)
Rosemary, hopefully your body has realized there is no colon and your small intestines are slowing down????...and I am hoping the cramps are from the mucous in your rectum. How quick can you schedule an appt to have that mess sucked out of you? My abdomen will cramp if I leave a glycerin suppository inside and it turns to liquid. This can make me miserable and I have to be very careful not to leave one in if I am going to be out because I can't just sit down on any ole toilet and poop it out...this too has to has to be manually removed. YUCK

Butterfly, I don't think you can go on and on if nothing comes out. You may have to go to the ER because you don't want to risk a blockage??? How long has this been going on? I am praying the coke will break through whatever is blocking it up. YIKES
Posted 5/4/2010 11:30 PM (GMT 0)
That story just made me laugh, cuz I have had the same exact things said to me. Even when I went to the surgeon for my followup appt last month, he was shocked that I still have to take Miralax. The look on his face was just hilarious. I wish there were doctors out there who just specialized in this field. The non-poopers field!! And friends and family just do not get it. They think we should just be able to go in and poop just like that. Frustrating, but I am so used to people not understanding me.

Janie, I take two doses of Miralax a day. Sometimes it makes me have plain watery stools and other times loose. There are times at work I have to do the clench my butt cheeks and run for the bathroom, but I do not mind. I would much rather go 20 times a day than once a month like I was before. I also take exlax sometimes but only when I really have to. I think the thing that has really made the difference is my diet. I pretty much stick to the same boring foods. I just do not try anything else. Such as fruit, veggies, meat, marinara, I just keep it very simple. Pretty much a low residue diet like Judy.

Getting anxious for Lizzie. I so hope she gets better. She deserves it so much! I know we all love her.

Better go feed my muchkins! Check in on you all later.
Posted 5/4/2010 11:57 PM (GMT 0)
Hi All

I have mucous suction appt May 10 and will also ask my questions about the slow down. I do think Butterfly is right that my activitiy level is a LOT less at home. On the ship I have 4 dance classes per day and 2 formals per night. It was like army boot camp for ostomy dancers! :-) Kept everything moving! Butterfly, I agree with Tracy, you cannot go on with stuck liquidy poop in your small intestines until your july surgery; your intestines will rupture. They can only hold just so much; especially the small intestine. Good luck with this.

Rosemary
Posted 5/5/2010 12:17 AM (GMT 0)
Hey everyone!!

I hope everyone is doing as well as possible. I've been MIA recently and really need to take the time to catch up with all of you and read these posts.
I'm finally done with school and starting the final count down until surgery. Only 6 more days until the big day-- May 10th!! I dont know if any of you guys watch seinfeld but there is an eposide where one of the characters breaks up with his girlfriend for the summer so he can have the whole summer to just be a couch potatoe and eat all he can, he calls it "The summer of George", well basically I am currently having "The week of Amanda". I've eaten anything and everything i've had a craving for and yes I more than pay for it every night but it's worth it!! I just can't wait to get this colon out of me!!!

Keeping everyone in my prayers,

Amanda
Posted 5/5/2010 12:54 AM (GMT 0)
http://resources.metapress.com/pdf-preview.axd?code=v0211587625w5812&size=largest
http://gut.bmj.com/content/31/11/1284.abstract?sid=443a3fe2-7012-4c75-9cf7-d8044723822b

answer4me, I re-posted the addresses but I am able to open it. maybe you can type the name of the article in google, then it should show up and you can try another version.
1.Evidence for motor neuropathy and reduced filling of the rectum in chronic intractable constipation
2. the functional test results after total colectomy and ileorectal anastomosis for severe constipation as related to rectal sensory function
Posted 5/5/2010 1:06 AM (GMT 0)
Hoddaya,

the basical statement of the articles is that you can have a rectal problem despite normal defecography and rectal EMPYTING when you have a problem with the rectal FILLING and TRANSPORT. Which means that 1. if the rectal sensory function is impaired, it does not notice the right sensation for pressure: pressure must be much higher to induce a feeling of urge. 2. The rectal neuropathy basically means that the filling of the rectum is disturbed and delayed: So you can have a normal rectal EMPTYING when the barium paste is already IN the rectum and "only" has to be expelled but if they filled the lower colon/small bowel only right above the ileorectal anastomosis with barium while leaving the rectum barium-free and you had to wait until you feel an urge this would take a very long time due to 1. slow tranist INTO the rectum (rectal neuropathy - same thing as with colonic inertia) and 2. the sensory dysfunction which makes you need a much higher pressure induced by rectal distension to notice an urge at all.
hope this helps..

Post Edited (pelztier86) : 5/4/2010 7:12:12 PM (GMT-6)

Posted 5/5/2010 1:11 AM (GMT 0)
hoddaya
you see: it is hard to explain to non-CI-sufferers what life with CI is like...and it is even harder to explain life with CIP....
Posted 5/5/2010 8:21 AM (GMT 0)
Well my dear loves,

Its 330 am I am I definately having surgery week insomnia. I have had a very hard emotional week and had some horrible things haooen, but after talking to Marisa and Tracy and my husband and family I am trying to just forget everything or I am going to go into this surgery with the wrong mind frame. I have told you all so many times that I do not post at times as I would never want to burden you or drain you with my continuing battle to get better and live the life I deserve. You all understand me and its so much easier to talk to you, but if ever its too much just let me know and know I try and reciprocate to all of you as I care for you like family, like sisters, and friends forever. Just a small recap as I am trying to put it out of my mind, but it all started yesterday morning when I was trying to pick up some packages next door and as I was carrying them my tube syopper came out and stool was running down my pants, legs, shoes, short....infront of the office people and then some workers who were cleaning our parlingg lot from all the winter debris. It was humiliating and I just quick went upstairs, drooped off my puppy, got my leys, and got in my car smelling of stool and went to my parents to clean up and get back my breath and stop crying. I then had a decent day/evening and had my toes done dor surgery (always makes me feel better) and spent the evening with my friend and her mom who got me a gift for surgery and we watched a chick flick. I was feeling great and I got home and I was checking fb and I got the worst email I could have ever received from someone I will remain anonymous. I cant recap it all as I do not want to cry and panic again, but in a nutshell it siad that she cannot believe I am not just getting a bag (even though I will be marked for an ileo if there are any complications and you all know I have been ok with this if it comes to that)....it went on to say that I am mutilating my body my trying to keep my appearance and that with all the complications I have had, and all the medical issues I have sufferef I shoudl have learned by now. That I leave the hospital too soon (pretty sure I never leave unless I am told I can...do i want to at times, doesnt everyone) and the worst and last lne said if you leep putting your body throughw hat you are yo uwill be dead within a year. I have had every tes, seen seven specialist, had so many tests I cant even count or recall them, dome month of pysical therapy, listened and tried every type of procedure the doctors have toldme to do, brought myself in everytime I though something was wrong, listened to my gut and saved myself along with your help a few times and I have been ok. I am going through another surgery, yes, but I would never put appearance (God you shoudl see my belly...its not a pretty site by all means, but abttle wound to save my life), I am doing what the dotors are suggesting and I am traveling 5 hrs to get the best care I can get for now. The last line....telling me I would be dead withing a year really hurt me so bad that I cried all night and literally had to pull myself off the couch to get myself up, realize the ones who love me and know me know this is not true and clean my house, do laundry and pack for surgery. Anyways.....I just had to tell you as if you ever feel I am draining you or complaining too much or anything....let me know. I love you all so much and as I have said so many times I could not get throught hid without you all....I guess these trials really bring out who really loves you no matter the cutcumstance, no matter the situation and for all of you I feel so blessed. I am scared now more than ever, but working on this ads I have to go in thinking this is it...the last and if I wake up woth a bag i will deal with whatver comes my way as I always have.

Enough about me....Lori- I was having the same symptoms as you and eventhough our tubes are different thats why I was airlifted to cleveland, like rosemary said for fear of perforation. It had been over 30 hrs and you cannot just let this go. You are on my prayer list, my family is praying for you and you are on my mind every day and night as I feel your fear, but you my dear are so strong, beautiful, wonderful, and you are going to be great. Its going to be a battle, but a battle you are going to win. Some day soon all of this will be behind us and we will meet up, laugh, eat, drink (if you do) and embrace in the eonderful friendships we have attained throught his miracle of a website. You are going to do wonderfully, buy ig you are still not having output I would call immediately as I was obstructed and perforation of the small bowel, which is so fragile for you, is omething you cant put off. I love you and keep us posted.

Hodaya- I am so happy you are trying the Miralax, but like Peltz said there is something defonatelt wrong with yout outlet funvtion o the rectum. I had rectal inertia and it was not fiagnosed by every doctor....and you have tried biofeedback and everything you can sweetie.  I will pray for you that like Janie and others it has been a miracle, but do not wait.....do not wait to long to get the help you need whether it be an ileo or not. Rosemary is a perfect example of hoe life can be fulfilling as ever with a properly constructed stoma and she has helped me with my fears so much. I love you honey and pray for you as you know everyday, call me anytime....i love hearing that sweet voice.

For those of you that have called this week I am SO SO sorry I have not been answering very well as like I said I have had a lot going on and I never want to burden any of you.......and i am horrible with leaving it in my car or somewhere i do not hear it ring when i am at my parents and again I have been trying to sleep like you all suggested.

Sarah (Peltz) I think you need to vent more often. You are such a help to so many just like Rosemary and other on here, but you too have day and you ppor thing have so much going on. I was talking to my mom about you just yesterday as when I have a bad day I think of so many of you and yesterday it was you. Your poor body is going though hell and you are definately on my heart and in my prayers as infection is and has been ruling your life for some months now and your tiny body cshhot handle much more....they need to do something. I know you have a Hickman, but have you ever thought of a port? I know thry are not as easy for what you have going on, but im my almost 7 yrs in oncology nursing there was much less infection with the portacath. I pray for you as I fear sepsis is going to take over your fragile body honey and I cant even think of that happening to you as it can be very very serious.

Tracy- Let meknow how your blood work turns out...sorry my mind is gone, but when is your surgery consult???? I think you are an amazing soul and your text messages got me through today with Marisa as well and I thank you so much. I just want you better.....I cannot stand you all goung through so much and if I had the power I would take away all your pain and suffering, but for now we all just have to believe God will wrap his arms around us and take us all in a protect us!

Gilda- Thinking of you sweeet thing. I know its only been a week, but listen to that body and do not lwt any pain  go on for to ling no matter how short of time it has been....a little worried about you. Love you as always. keep me posted.

Janie- I was so sad I missed your call, but I love love love you accent :) I just have not wanted to burden you with all of my issues, but you cal  meant more than you will ever know. I am glad you are doing well still and I pray pray pray that Miralax continues to give you a tolerable life....not perfect, but so much better. I love you.

Jenise-I am so happy that you are finally having so much less pain and I pray for you everyday,, thank you for always thinking of me. My eyes are finally heavy so I will close out

Judy, Amanda, and everone else I did not get to I love you and am always thinking of you....ALWAYS. I hope I reciprocate the love you all give to me and if I am not please let me know and I will try to be better as I Am NOT the only one suffering on this forum and I want more than anything for all of you to be out of pain and to live, laugh, love and never live your lives around poo!!!!!!

I will check in tomorrow when I get some time. I leave very early and have testing all day Thursday, but will have my computer with me. I will give you all my room number and feel free to call seriously...i do not sleep well in hospitals. You can text me, i will try and have my mo update or hubby and you all have ny number and if not....616-446-4914. My email is [email protected] for those that do not have fb. I will do my best to keep you a updated as possible. Love to you all....its now 420 am...gotta sleep a litttle.

Lizzie

Posted 5/5/2010 10:59 AM (GMT 0)
Lizzie~I am sorry someone was so callus to you about your health. Unfortunately our illnesses weed out those who don't understand, and even though it breaks our hearts for the loss of a friend, we will be stronger and cherish those who do stand by us.

I'll be thinking of you tomorrow and Friday!
Anne
Posted 5/5/2010 11:59 AM (GMT 0)
Lizzie sweetie,

Love you.  Sorry I didn't get to talk to you, but you are one of the strongest, sweetest (through all this you take the time to write to each of us individually!) girls and you so deserve to feel well and live your life the way a young girl should.  I pray this surgery will finally be the answers you need.

I don't know who would send such a note, but please just put it out of your mind.  Whoever it was definitely was being insensitive, and of course you're doing what your doctors are telling you is the best thing to do.  Don't give that note a second thought.  You need positive thoughts only....so poop on that person:):)

Accent?  You think I have an accent?  That's so funny....I moved to FL from VA 19 years ago and there are so many southern accents here I never thought I had one.  I'll have to ask my friends and see what they think:)

I will try to call you again sometime today, but if I miss you, just know you're always in my thoughts and prayers, and I do love you...I feel like I have alot of "daughters" here on this site and my heart just breaks for you all.  I've had issues my entire life, but it wasn't until I was much older that I considered surgery, and relatively speaking my journey has been a piece of cake.  You are such a strong person, as are so many other younger girls here.

Good luck honey.  You're gonna be just fine.   Positive thoughts only smilewinkgrin


Janie

Posted 5/5/2010 3:39 PM (GMT 0)
Lizzie,

I emailed you about my experience with MEDICAL people even accusing me of having Munchausens and purposely wanting my body injured so I could chase more help. Maybe my email did not come through so will post my experience here. my own PCP accused me of this. She then made me see a psychiatrist who after hearing my story said "You need a surgeon, not a psychiatrist." (That was at the point where my colon and small intestine had been closed in by scar tissue due to my original 2006 surgery.)

Then one hospital on my 13 month quest for help from these damages from the 2006 original surgery did not understand the complications of the 2006 original surgery and actually locked me in their psych ward for 5 hours. When I finally saw the psychiatrist she listened to my story and she too said, "You need a surgeon, not a psychiatrist." Sounded familiar. Those who really were qualified to judge me from a psych point-of-view knew I was in physical trouble and not clinical mental trouble.

My scenario bothers me from the standpoint that even the medical world can cast aspersions on a seriously damaged patient to get the onus off of some of them for doing nothing for someone so injured.

The face book message to you bothers me from the standpoint of if someone supposedly is a friend to be on face book, then they have no right to even think what they did let alone say it. Just cast them off as ignorant and classify them with these 2 medical encounters I had as people not worth while. I have since changed PCP's.

I am starting work on a book that I hope to have published after my case settles. I think it'll take that long to write a bit at a time. It will be about the lack of informed consent for any pelvic surgery. My focus due to my experience will be small bowel adhesion obstruction. That possibility is NEVER mentioned on any consent form and was sure not mentioned by any surgeon I ever had (the 2006 original surgeons and my hysterectomy surgeon should have mentioned it as those were elective.) A surgeon for an ovarian torsion when I was 27 and my ileostomy surgeon did not mention this risk as those were needed surgeries for which I would have died without. So common sense is a factor when talking with patients. However, the general population DOES need to become aware of this real possible complication. I want to see that on consent forms for elective surgeries. I'm sure it would cut the number of elective surgeries done and hence profits from elective surgeries. This is not your case as none of yours have been elective. But it's just my pet project now that I've done my part for the case. Case is going forward but that whole legal process is sooooo long.

Well, Lizzie. Ask your doc for a sleeping pill. You need to go into surgery rested. You deserve a good night of sleep. We have to all get well and get together. Together as one, we could educate the medical world. What a talk show we could do. Pure information for those who are ignorant or covering up, such as some of the docs I encountered before I found my ileo surgeon. We could blow the top right off the medical world and set things right. Get it so that only those in medicine for the right reasons would be there. I do believe that many are in it for right reasons. Your surgeon will do the best he can for you. And if you wake up with a bag, so be it. You will have tried all options that your doc obviously agreed with or he would not have tried the internal pouch. With any of this stuff it's the inner workings that count. IF that is good, then all else is right with the world.

Bless you Lizzie and I pray for you. Thanks for you phone and email. I'll email as I hesitate to disturb people in the hospital. Did you talk to your doc about a correctly made stoma? If you get one you need and deserve it to be CORRECTLY made.

Sincerely, Rosemary
Posted 5/5/2010 6:28 PM (GMT 0)
Lori, yes you are a wonderful person! and yes, i'm sure you'll be doing much better with the ileostomy, it has to be better than the one you have now. things are not easy for us, but you're right, we must consentrate on the positives in our lives, like our families, how loving and supportive they are to us! ppl around me don't understand and sometimes even say mean things to me, but yet, i do have couple friends at work who really care and supportive, so i just try to avoid those who, for some reason, just being plain mean, i just don't understand why..? is your output better now??? Sarah, thanks so much for your explanation, yes it helped a lot! and that's EXACTLY what i feel is happening to me, you described it perfectly! Lizzie, i called you today, just really wanted to talk to you before you leave to the hosp. MY GOSH who's that creap who sent you that stupid letter????? you should not pay ANY attention to creaps like that!! i just don't understand why can't ppl just be supportive. i know, believe me, some ppl at my work can be really mean and i don't understand why???? it's like they think it's MY fault.... like i'm doing this to myself. i try not to talk to anyone about this anymore, but my family, couple of friends i have and of course YOU GIRLS who most understand me. Lizzie, you know we can never be sick or tired of you! we love you darn TOO MUCH!! i'll praying for you! if any of you wants to call me, my number is 011972772007365 - that's how you dial from U.S.A. anyways, we should all have scype (sp) in our computers cause that way we can all talk for free! today i'm really worried, have been taking miralax for 5 days now and it's doing NOTHING for me... it's not kicking in at all... this is scary, i mean it helps all of you but does nothing to me, what's worng with me? maybe my system is slower than all of you? if so, then maybe even a stoma won't help me?? i'm just so discouraged and depressed today.
Posted 5/5/2010 6:34 PM (GMT 0)
Amanda, GOOD LUCK HONEY!! keep us posted, k?
Posted 5/5/2010 6:52 PM (GMT 0)
HI guys


im new on this site, so really not sure if im in the right section.... i have been diagnosed after many many years with STC. I cant eat properly anylonger food has become my enemy, i get so bloated and uncomforatble i was smaller a 6 month pregnant 12 years ago.. I am 34 years, now 6stone 10 and have bmi of 15,, not good, I am now having a total colectomy in june10 yippee, via key hole and prob wont need a ileostomy, i am unsure pain after the op, not real bothered tho i will deal with it when it happens, i also know v little about life there after, will all my bloating be gone, can i eat what i want months after the op?

Has anyone got any experiance to share with me on this,, there are many people that sound in similar situations on here for dif reasons, any help would be much appreciated ..... thanks
Posted 5/5/2010 7:02 PM (GMT 0)
Hodaya- Miralax doesn't work for me either. I tried taking 3 capfuls 4 times a day and it never did anything. I found the only thing that works for me is Dulcolax Laxatives or Phosphosoda. The Dulcolax definitely tastes better but you may have to take more than one pill. I'm up to 24 but they are still doing their magic. Miralax just might not have enough "power" as you need. hope this helps!
Posted 5/5/2010 7:50 PM (GMT 0)
Hodaya,

I'm trying to wrap my brain around how Miralax is not helping you if you have no colon. All the poop that comes out of my ileostomy stoma is mostly water like with some thickening depending on what I eat. I was told never to take a laxative as it could cause severe dehydration from losing too much from the small intestine. If I do get concerned about slowed output or too thick output I drink 16 oz of grape juice, then I have a "flood" into the bag. I do find that often times I worry for nothing. The poop does come out. Sometimes mostly at night even, but it does come out. My ileostomy surgeon told me as long as some is coming out, and I feel OK, then not to worry. So far, he has been right.

So with you not having a colon and grape juice working like magic for me using only my small intestine and the ileostomy stoma, if logic holds, then grape juice might work for you too. I forget if you've tried this yet? Let me know if it works for you. If not maybe it's the rectal inertia (part of colon you have left ) that may be the hang up. If this is the case, then an ileostomy stoma likely would work for you. Also what really speeds me up is sucralose (a fake sugar).

Rosemary
Posted 5/5/2010 8:58 PM (GMT 0)
Good afternoon everybody.. I called Cleveland Clinic again this morning.  I told the colorectal department lady that I had called yesterday, but nobody returned my call.  She looked in the computer and didn't see anything, so asked who did I speak to?  How should I know?  Anyhow, I left a message again and a doctor is supposed to call me back, but I'm still waiting.

I

 came home from work at 1:30 this afternoon and was horribly cramping.  My left side of my abdomen is distended and looks big compared to my right side.  My tube that comes out of my abdomen is on my left side.

My husband worked for 2 hours trying to flush me out and get something out of me.  I don't think that anything came out, other than the liquid that he flushed into me with the syringe.  My message to the doctor was also asking if my surgery can be sooner, because I'm really not sure if I can make it thru the middle of July.

Yes, I am very worried about my small intestine, but I'm not sure that my emergency room would know what to do with me.

I also thought it was funny that we have all had the experience of doctors not understanding our constipation problems.  Alot of doctors think that if you eat more fiber, you won't be constipated.  And oh boy, if you use laxatives as directed, they still can't believe that you can be constipated.  Colonic inertia is a foreign concept to so many doctors.  I guess that they do not teach them about us in medical school!

butterfly

Posted 5/5/2010 9:03 PM (GMT 0)
Lizzie, many prayers are coming your way.  My entire family and friends are praying for you and I just know that your surgery is going to be a success.  You've been through so much and you're still hanging on.  Hang on a little longer and you're going to laugh again.

butterfly

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