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Total Colectomy Part 35

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Ostomies
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Posted 6/14/2010 5:15 PM (GMT 0)
snugglesaurus   Have you had a sitz marker test?  As for weight I lost 108 before and another 10 after.  Cant seem to put on any weight like my doc said, you probably wont...

 

Leslie

Posted 6/14/2010 6:08 PM (GMT 0)
Leslie - did the Sitz Marker test before and it showed motility. Cleveland doc wanted to rule out that everything else was working normally.
Posted 6/14/2010 6:39 PM (GMT 0)
HOW LONG AGO WAS THAT TEST?  IF YOUR CONDITION HAS GOTTEN WORSE IT MIGHT NEED TO BE REPEATED...

LESLIE

Posted 6/14/2010 9:58 PM (GMT 0)
I had it done at the beginning of the year so I think I'm good :)

I'm not sure if some of you "just know" when it is time to yank it out or not. I didn't even think it was even an option for me (colonic inertia). I've been ready.

My local hospital here called today and rescheduled ALL of my biofeedback appointments - moved them from a Monday to a Thursday and they're all at wacky times. Grrr. Biofeedback doesn't start until mid-July.

Ahhh.. got to be patient.
Posted 6/14/2010 11:43 PM (GMT 0)
Hey gals, Tracy, I totally understand your "obsession" with pooping. I also believe that I am obsessed and that all the laxatives I take also affect the small bowel. But if I dont take them I do not go. It feels like the poo just sets up like cement and does not move at all. So I take a combination of Miralax and apple juice to keep things moving. Miralax is so expensive but is so worth it. I honestly think if I did not take it I would not go for days.

I am so dang worried about Lizzie. I hope she gets the help she needs but it seems like no body knows what to do with her. I just dont get it. A psychiatrist, what the???? If only it was that easy to cure. It baffles me why doctors think we choose to be this way. Its such a great way to live isnt it. Yes, their right we choose to be like this! WHATEVER!!

This is a lifelong conditon and it doesnt really matter how we are treated. We will always have an issue that is going to come up. All we can do is manage our symptoms as they come up. Just irritated of how we are treated by "professionals".

Ok, I am done venting! At least for now!
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