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TOTAL COLECTOMY PART 36

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Posted 8/20/2010 3:38 PM (GMT 0)
So excited to hear that Lizzie is doing good since surgery. I was so worried about her as I know we all were. She deserves to feel well after such a long ordeal!!

I dont know what the deal is with this summer, but we had yet another death. This one was a 32 week gestation baby. It was Matts cousins baby. Their first. She was having an untrasound and they were unable to detect a heartbeat. So her labor was induced and she had a little boy. Since I work in the dental profession I was able to go to the hospital and take a cast of the hand and foot so they can have that to remember him. Just so sad.

We are taking off camping this weekend. I need to get away!! Too much depressing stuff at home. On the up side, I am feeling pretty well as long as I am eating what I am suppossed to. Tryed a hot dog the other day and that was not such a good idea. Why is it that we know we should not eat something but we do anyway, and then we regret it later??

Hodaya, I am so happy for you. It sounds like you have done very well with your ileostomy.

Need to go pack. Love you all
Posted 8/20/2010 5:24 PM (GMT 0)
Hello,

I am new to this whole topic. I am 21 years old and have finally gotten referred to a gastro doc. I have been struggling with "Chronic Constipation" for over 4 years. I can go 5 weeks and have no bowel movements. Along with no bowel movements, I can't pass gas and look 5 months pregnant. Each doctor that I went to before being referred suggested that I take laxatives and drink more water- including prescription. After awhile, those no longer work, so I took matters into my own hands and starting drink 190+ oz of water, not eating wheat, or milk. No change in bowel habits. Finally, it has gotten to the point that I have been prescribed Colyte and did nothing. After giving up on Kaiser Permanente, I changed health insurance and my Primary doc realized I have a problem and referred me. My gastro doctor has me on a liquid diet until more testing can be done and I have been for 9+ days now.

I had my Sitz Marker test last week and all of my markers were in my descending colon and Signmoid. I'm not sure what that reveals. My gastro doctor has been out of town for the past three weeks. My next appointment is Wed. Things are not looking so promising to me because the first thing the gastro doc said was that you are probably going to have to have surgery to remove a portion of your colon. This was before I had my sitz marker done. Sure enough, the Sitz Marker actually revealed the part that he thinks is not working correctly.

Sorry for writing a novel, I am just super confused. What in the world could be wrong? All my blood work has come back good. I just am in a ton of pain and can't have a bowel movement. Up until now, I have thought this is all in my head. Any help would be great. Also, any questions or test I can ask the doctor would be good. To put a spin on things... I leave for college in less then a month with my gastro 9 hrs away and no gastro in the area. I cant even begin to have surgery until next summer. What do you think I could have?
Posted 8/20/2010 9:40 PM (GMT 0)
Marisa,

Soooooo sorry about the baby. Hope Lizzie is doing good. Rosemary
Posted 8/20/2010 9:51 PM (GMT 0)
Tracy,

I sent for the small sure seal to compare with the medium.

I know what the issue is with your sure seal. I have a medium on to experiment. It does not TOTALLY come up to the round thing. The gaps between the end of the sure seal which covers MOST of the white on the wafer but does not go all the way to the tupperware type round thing. So fill that gap with slim strips of HY TAPE and you will have the total water tight seal. The HY TAPE will not be touching your skin only the sure seal. So skin issues shouldn't be a problem.

Jenise......$400 for records.....MAN!!! I had no idea it would be so much. The norm is around $25 at most. But I never had a 400 page record, so who knows. Sorry I did not even think of that. It is too bad you are still having issues with all you've been through.

Anyone with an ileo.

Today I at well cooked summer squash, mashed it with a fork, very well cooked, salt and butter, going through OK, but VERY thick. Anyone else have this issue? Rosemary
Posted 8/20/2010 10:12 PM (GMT 0)
Rosemary~sounds like you wear Convatec? I think Sure Seals come shaped for their wafer tape...ask your supplier!

You can always trim the edges of your wafer/flange tape so that the Sure Seal can overlap. I find that it works best if there is at least 1/4" between the wafer tape edge and the edge of the Sure Seal. I've been cutting the wafer tape for years and it doesn't hinder my wear time:) Good Luck!

Oh, I eat squash with onions and butter all the time:) and yes, it does thicken my output!
Posted 8/20/2010 11:37 PM (GMT 0)
Thanks Ohio. Yes, I wear Convatec. Glad to know the veggies thicken other people too. I feel best when poop is liquid and just swills right out of me. I feel better empty. Isn't that odd? Rosemary
Posted 8/21/2010 12:33 AM (GMT 0)

Hi Ladies,

 

Lizzie's pain is pretty bad, so please pray that the worst post-op pain would pass quickly, and that they would figure out the best medications for her. She was up and walking around a little yesterday (and today)...yes, you read that correctly- on her feet the day after surgery! I'm blown away...how about you?! Today they took her to the telemetry floor because her heart rate has been high because of the pain, so they will be keeping a close eye on that there. Keep those prayers going for a perfect recovery and complete healing!!!

 

Jenise - Thank you for your sweet words!

 

Rosemary - I don't have an ileo, but I know squash is constipating/thickening. I'm with you- I feel best when my bowel is empty. Nothing goes flying out of me, though, that's for sure!

 

Aolson - Welcome! Our stories sound similar. I had a total colectomy for colonic inertia three years ago when I was 21. I have had bad constipation problems my entire life, but I wasn't accurately diagnosed for years. I have systemic motility problems, so I've had all the tests...if you have any questions, please don't hesitate to ask! One thing that my surgeon said is that he doesn't do partial colectomies for colonic inertia because he has found that he has to go back in later to remove the rest of the colon. How many days did your Sitz study go for? Have you had the radioactive scrambled egg test? Have they done an anorectal manometry to make sure your rectum is ok? This is just my opinion, but I wouldn't delay surgery for school, if that turns out to be what you need. My health really goofed up my ability to finish college "on time;" I did finish, but almost two years behind schedule because I had to take a couple years off here and there. It's ok...really not that big of a deal! Health comes first! Just don't let yourself get into really bad shape (pain, weight loss, etc.) before opting for surgery. Any questions, ask away!

 

I hope you all have a great weekend, and I will let you know how Lizzie is doing as I hear more!

 

Allie

 

Posted 8/21/2010 2:51 AM (GMT 0)
Hi Girls!!!

I know it's been awhile since I've been on, I spent a month with my daughter in Myrtle Beach and have been extremely busy since I came home Aug. 1st.  I passed yet another kidney stone last week so I spent 4 hrs in the ER and on Tuesday I had a staple and a screw removed from my foot that was placed during a previous surgery.  I opted for a local for this procedure because of all my surgeries last year and the dr wished I would have had sedation because he couldn't get the screw out, what he thought would take him 5-10 min ended up taking an hour and 5 min; he had to do a lot of tapping/hitting with the mallet and yanking on it.  Anyway it's really messed up my walking routine I had going but now they won't rub when I wear shoes or sneakers anymore YAY! so it was worth it!:)

Both of my girls are here together this week so we are enjoying having them together:)  Our older one that just graduated from college has a 4 mo old boxer puppy and she's really a handful; if anyone has ever had a boxer you know how active and crazy they are a puppy, but they are a fabulous adult dog; we already have 2 of them:)

Have finally made myself go out to school this week but only went out for a couple of hours; still am not into going back for the new year.  Things are not yet settled from last year yet, I was hoping they would be and I could just start out fresh but if not the most important thing is for me to be there for my children:)

Hodaya & Tracy- so happy that you both are doing so well with the ostomy.  You both sound great and it's very good to hear positive results. Hugs and love:)

Val & Jenise-so glad everything went well and you both are doing good.  Praying that you will continue to feel well.:)

Allie-Thanks soooooo much for all the updates on Lizzie; we talk frequently and she's ALWAYS on my mind throughout the day.  Please let her know I love her and continue to pray for her.

Janie-Hope all is going well on your cruise and you're having a BLAST!!!!!! HAPPY BIRTHDAY!!!!!!! :)

Marissa-So sorry to hear about the baby; Matt's cousins family as well as yours is in my prayers.  Try to have fun camping, but NO HOT DOGS!!!!! Stick to the low residue diet; I even tried the skinless ones once and it was a nightmare so I don't usually go off the diet except for hot, spicy foods which I just can't give up :) and then I just suffer with lots of D but it's worth it:)

Welcome to the Newbies:)  I know I haven't been on here lately but I have been posting since my subtotal colectomy in 2008.  My surgery has been extremely successful and I would recommend it to anyone who is suffering from CI.  My dr left 2 in. of my colon and I haven't had any problems with it.  I do as I said previously, stick with the low residue diet as per my GI and this I believe contributes to my surgery's success.  Most drs let their patient start eating any foods after 6 wks and that is when you begin to see many blockages and problems. So I would highly recommend the diet.

I wish you all the best in whatever decision you choose.

Love, peace and prayers to all,

Judy

Posted 8/21/2010 4:22 AM (GMT 0)
Allie,

Have they considered the epidural for Lizzie's pain? There's a kind they can put into the sympathetic nerve only and you can still walk around as you are not numb and everything works you just don't feel the pain. Or do they not want to mess with her nerves? Good that she was up and walking. REALLY HOPE that this works for her; this HAS to. Hope her heart holds up. PRAYING for her.

Judy,

Ouch, that foot surgery sounded bad. I can see why it interrupted your walking. And a Kidney stone; God I would have freaked out. We all gotta write a book about the limits of human endurance. Hope the work thing resolves. WOuldn't you think they would get the idea you have a ton of health issues and still have the spirit to work. I would think they would give you a gold star not a lot of grief. What is wrong with them?

Today I got rid of a TON of paper work I did for my suit. Just kept like a single copy of each thing, but ditched all the duplicated copies. What a catharsis. Glad it's in the hands of the atty and praying that it hurries up and settles. Or goes to trial, either way, just want it over with. BUt if I had it to do all over again, I would still sue as my case was deliberate wrong doing for dollars, fit the patterns of all these original docs' past suits I didn't know of at the time. BUT, wow, was that a LOT of work for me after going through all I went through in the first place. Don't know how I did it. Maybe it's what kept me going while I adjusted to having an ostomy. PRaying I stay well. Africa cruise is only 7 weeks away. Have made headway on getting ready for that.

Rosemary
Posted 8/21/2010 4:25 AM (GMT 0)
Oh, yeah, and a friend brought over chocolate pudding. So I had some. Then I drank some grape juice to get rid of that. Then we had some Bailey's IRish cream, then some ice cream. Stuff is swilling out of me. Thank god. I gotta stay away from veggies, I just hate it when effluent gets thick it's gross. BUT I think that is when I absorb nutrition so I gotta hit some kind of happy medium. Rosemary
Posted 8/21/2010 2:30 PM (GMT 0)
Allie, yes I can believe Lizzie is up and walking already. They got my butt up the same day of my surgery, OUCH! She needs to be up and around because walking is supposed to prevent pneumonia, blood clots, and also to wake the intestines up. I know day 3, 4, and 5 were the absolute worst days for me. Then, it was all up hill from there. I am hoping it is the same for her. Lizzie deserves and needs a break. I hope she begins to feel better soon and I hope they can get her pain under control. Is her ileostomy putting out any output yet?

Aolson, welcome....:) I have colonic inertia and an outlet defecation syndrome, namely, anismus! I had surgery in June and currently have a temporary ileostomy. I hope you will go back and read through all of the other posts titled total colectomy. You can type, total colectomy, part 1, 2, 3, 4, etc. in the search bar on the right above and read for days about many women that have colonic inertia and what they did about it.

I am doing okay, I had a wicked stomachache yesterday and I am assuming it is from eating ice cream. :( So, even with my ostomy, I still can not eat ice cream. WAH I guess I just need to be happy that I can atleast eat yogurt, which I could not eat pre-ostomy. I guess I must really have a lactose intolerance or IBS, whatever.....
Posted 8/21/2010 5:28 PM (GMT 0)
Tracy,

Try Lactaid Chewables prior to eating the ice cream. They provide the lactase enzyme your body no longer makes. Rosemary
Posted 8/21/2010 8:36 PM (GMT 0)
Judy, so good to hear from you, dear! glad you're having such a good time with your daughters and i'm glad your foot is all good now :) sounds like it was painful, glad it's over now. yes, i'm very happy with my ileostomy, it's the best for me.

glad Lizzie is continueing to improve and i hope her recovery is fast and smooth. how's her ileostomy, does it look better than the previous one she had? the one that was sinking? i hope this time they did it correctly.

welcome Aolson. glad you found this site, it's the best place for info about CI and the total colectomy outcome. i think removing the whole colon is necessary. removing only a section won't help as it's been proven before. any questions you have please ask.
Posted 8/21/2010 9:22 PM (GMT 0)
I still have a stomachache....not sure what is going on. It feels slightly crampy above and right below my belly button. I am freaking out wondering what this new pain is. My stoma is working and output seems normal. I have not eaten anything different, so I am not worried about a blockage....but I am worried it may be adhesions. I did walk 3 miles on the treadmill today, but I don't think that would cause this. Maybe it is from drinking my protein powder with milk this morning. I am going to try mixing the protein powder with water tomorrow. I am so upset because I have been painfree and feeling wonderful.
Posted 8/21/2010 10:10 PM (GMT 0)
Tracy,

Try holding off on the protein powder all together tomorrow. This is the new thing that you have introduced. Hopefully it will just be that overly strong vanilla taste that is disagreeing with you. It is also made of whey (milk protein) so if you have a lactose intolerance, this whey protein will give you issues.

It could also be small bowel muscle spasms. Is 3 miles too far to walk? or have you been doing that much right along?

As long as effluent and gas is passing normally, you have no nausea, and no vomiting, that is a good sign. The adhesion obstructions I had prior to the adhesion lysis and ileo surgery was sudden projectile vomiting after severe cramping that had me doubled over and all bowel sounds had stopped. Sooooo, yours sounds nothing like this.

If your issue keeps up however, call your surgeon and ask. Good luck, Rosemary THinking of you. Hope Lizzie is progressing along as well as she can be for this close out to her surgery.
Posted 8/21/2010 10:47 PM (GMT 0)
Rosemary, the protein powder says it is lactose free???? But, I am going to skip drinking it tomorrow just to see what happens. I was fine until I ate a hot fudge sundae yesterday with ALOT of ice cream. I have not had more than a tiny bit of ice cream in years, so I probably over did it.

I just chewed a rolaids plus with gas relief soft chew and it seems to have helped a little bit. I am also drinking pickle juice to make my stoma total liquid just in case something may be hung up in there a tad.

As far as walking...I have not been walking 3 miles....I forced myself to walk that much today because I am trying to build my endurance. I usually walk 1 to 2 miles at a time and may walk another mile in the same day, but not all at the same time. I walked 60 minutes today at 3 miles an hour all at the same time. Maybe I overdid it?????

I may also have too much mucous? I probably need to do a warm water enema and see if this helps. I am very upset that I am having pain at all.....
Posted 8/21/2010 11:20 PM (GMT 0)
Tracy,

I know, you have been doing so well. Gut flush yourself with the pickle juice just to be sure as long as you have started that, but don't overdo it and get dehydrated. Dehydration comes with stomach cramps all their own. Pace yourself on the exercise. Oh, yeah, I just reread the protein powder container and you're right it's lactose free. If you are a tad better after the chewable rolaids and gas relief soft chew that is a good sign. Sometimes I get a bit of a gas pain and my mind goes to the worst place, then I pop a Gas-X and am fine. we can still just get gas like intact gut people.

Lots of rectal mucous can give you the crampy feeling like you have to poop rectally if a lot of mucous is collecting. After I was home a month when ileo was new, one day I felt just like I needed to move my bowels rectally. Took a fast walk around the block (interesting that this also prior to the 2006 damage surgery prompted a full rectal stool move......whatever my original issue was it responded to a walk) Anyway, once I had the ileo and did the quick walk around the block, a ton of mucous just flew out of my rectum the second I got home. Good thing I made it to the toilet. There must have been a cup's worth of it and I felt instant relief. This with all my rectal and lower colon scarring. Go figure, anyway, it felt great afterwards.

You have an additional thing to take into account regarding your ileostomy that I don't. I'm not saying this is the cause of your cramping, but may be a reason to check with your doc on Monday if this pain keeps up. Remember, with a loop ileostomy, one loop of it drains mucous, while the other loop drains poop. In your case the "poop part of the loop" (so to speak is working OK), but I'm wondering is there any way the mucous part of the loop can get a bit of a plug in it and give you a slight pain? I have no clue as I don't have a loop ileo, but it may be something to ask your doc about.

I can totally understand why you are upset having had no pain at all and being on cloud nine with how well you were (are likely still doing), but don't assume the worst. If you are not better by Monday or the pain gets worse tomorrow, call your surgeon. It's their business, they get paid to answer calls or have their on-call person advise you until you can see your doc.

Hoping for the best for you, Rosemary (Skip a day on that protein powder. I don't use it every day myself as they way-too-strong-vanilla flavor flat out gives me gas.) Today I also used normal sugar rather than stevia and felt better. Other than out and out trouble, this is all an experiment for all of us.
Posted 8/22/2010 12:46 AM (GMT 0)
WONDER HOW LIZZIE IS DOING???????? Hoping for the best. Rosemary
Posted 8/22/2010 3:53 AM (GMT 0)

Hi Ladies,

 

Still good reports on Lizzie! Her ileo is working and she had some ice cream today. She is also up and walking quite a bit. They have decreased pain meds (because she is pretty out of it), but she still has the PCA. Her hemoglobin is low, so they are watching that closely...keep praying for complete healing, no complications, a quick recovery, and that her Hgb would bounce back in tomorrow's bloodwork!!!

 

Tracy - I am so sorry to hear you're having problems. Whey can be tricky...have you had any allergy testing to see if you are allergic to dairy? While whey is labeled as being lactose free, there are trace amounts left over from the processing milk goes through in the production of whey protein, so if you're super sensitive, a little bit is all it will take to cause pain. If that sundae set your system off, it may take a few days to feel good again. I cut dairy completely out of my diet seven years ago. My body doesn't tolerate anything (in any amount) that came within a mile of milk. It causes extreme pain and completely shuts down my bowel. You might consider trying egg white protein powder- I did that for years. Stevia also causes big problems for me. Last I read, it hasn't been shown to cause any GI issues in clinical studies, but it makes me so nauseous. In terms of protein powders, my body only tolerates hemp protein (yes, I know how weird that sounds) right now- from a biological value* standpoint, it's not the first choice, but it's what goes down at the moment. A common factor of any protein powder that has ever worked for me is that is has been the unflavored/unsweetened version. You have to get creative and dress it up a bit more in smoothies or shakes, but the plain ones always settled when the flavored and sweetened ones didn't. I hope you get to feeling better soon!

 

* Proteins are given biological value scores which tell how available they are to the body- the amount of the protein that is readily absorbed and utilized by the body. Whey comes in first place, scoring 104, egg is 100, milk protein (casein) is 91, beef is 80...plant proteins are way down the list. The values can vary a bit depending on the scale that is used, but the rankings stay the same. Sorry for the tangent! That was probably more information than anyone cares about!

 

And to all...a good night!

 

Allie

 

Posted 8/22/2010 7:50 AM (GMT 0)
Alllie,

Interesting info on proteins. Never TMI on here. any and all info always welcomed. Glad Lizzie is doing well so far. That is great news. Rosemary
Posted 8/22/2010 2:58 PM (GMT 0)
Rosemary, I am feeling better. I did 2 warm water enemas and didn't observe much mucous????? I then took a warm bath and just let the bag float. HEEHEE

I still have on the same bag and sure seal, so most of the wafer got wet since I didn't put the sure seal on correctly, but the water hasn't seemed to affect the adhesive at all. It is still stuck to my skin very tightly. I did not use the allkare wipe my last change because I forgot that step, but it seems okay and actually my skin has been LESS itchy....so, maybe I don't need the allkare wipe????? The true test will be in the morning when I change my barrier and can make an accurate assessment of my skin....I did somehow manage to use the eakin seal this time, so hoping all is well on the skin underneath the stoma.

I forgot the show me the whey has an artificial sweetener in it...maybe that is causing me issues...I just don't know. I figured I will fast for the rest of the night and start over tomorrow. Luckily I am used to limiting the foods in my diet or else this would be driving me nuts.

I am hoping it is the ice cream and milk causing me the issues because I can easily do without them since I have been unable to have them for most of my life.

I will ask about the mucous hole getting clogged....I will try to see if it is leaking when I change my pouching system tomorrow too.

I am so worried about adhesions! That scares me to death..YIKES! I really do not want another surgery, EVER actually. Just let me keep my loop ileo and not suffer with any adhesions. PLEASE!

Alie, thanks for the update on Lizzie....it is so good to hear that she is doing well. Thanks for the info on whey protein. I was also sensitive to milk products before my ileostomy because it made me SOOOOO constipated and extra bloated, but I assumed this was because it was going through my colon....

I can eat yogurt since surgery though and I am loving that.

So, today, no whey protein and I will see what happens. I feel okay right now....

Rosemary, I also am trying out the coloplast 2 piece....it is the one without the paper tape around the barrier. I did get it to stick, not sure what happened with the last one I tried that wouldn't stick...but, it seems very nice. I put the sure seal over the barrier, so we will see if it will stay dry...but I am wondering if I even need the sure seal since it is all plastic???? I also put on the belt and will wear it for several hours to be sure the barrier is nice and stuck to my skin.

I am adventurous and love trying all the products. The problem is that they all have something that the other does not have....hmmmm, now if only one of the companies would make one with all of the best features....
Posted 8/22/2010 5:41 PM (GMT 0)
Hi Tracy,

I hear you. Each company has it's own beneficial attributes but no product is perfect.

Sooooooo glad you are better. Don't let my adhesion story scare you because don't forget those original 2006 (now defendant) surgeons did SEVEN unneeded procedures on me. You had only one procedure done and the take down of the birth adhesions. So while adhesions are certainly possible, don't forget my original 2006 surgery was like a slash and burn fiesta for those 2 so-called surgeons.. Hence the suit. I was black and blue from my naval to my knees. Think of it as I was in a horrible accident rather than just having had surgery. I had no bruising from my ileo surgery which also had to be done open and none from my hyst in 1995.

The experimenting with diet thing goes on forever with an ileo. Some say "I eat anything I want." I say "good for them." But for most of us ileo's it is all trial and error. The way some people's guts function is just better and easier than others. So experiment away.

I ended up getting water under my sure seal too as it did not snug right up to the ring over the white tape on the wafer. Also it was very hard to get off. AND it left my skin red and irritated. So there's no accounting for issues. We are all so different. You may actually not need the Allcare. Though for me All Care is what is saving my skin.

I think that is what is so frustrating about all of this and why I can't really get any answers from my doc on the technical product part of this, as we are all so different.

Sure hope Lizzie is coming along. WOuldn't that be a miracle. That would strengthen my belief that miracles can and do happen.

I am weeding and sorting all of my lawsuit stuff and tossing out tons of duplicate papers and "cleaning up my home environment" I think having all that crap around keeps me feeling down. When I am away I am much more up. I am sure glad I'm suing my original defendant docs, but I think just not seeing the stuff associated with it may lighten me up. LIke OK, I did it, now move on as I've been given the chance.

Hope you continue to feel better and that pain goes on it's way. Rosemary
Posted 8/22/2010 6:44 PM (GMT 0)
Tracy - Glad you're feeling better and the pain has eased. I’ll be surprised if the drugs alone work for me, as laxatives never have done before, but I’ve got to give them a try.

Jenise – pleased to hear you’re already starting to feel better.  Hope the the bm problems are soon sorted.

Marisa – really sorry about the baby.

Aloson - Your story sounds so familiar. I can also go 5+ weeks without a BM even when taking laxatives. I've had 2 Sitz marker tests and almost all of the markers were in the descending and sigmoid colon, and have now being diagnosed with Colonic Inertia and Anismus. Have you had any others tests, yet? Hope we can help and if you've got any questions just ask.

Allie - thanks for the update on Lizzie. Still praying for her.
Posted 8/23/2010 12:45 AM (GMT 0)
Rosemary, yes, the sure seal is hard to get off. I have to use an adhesive remover to get it started. My skin also looks very red and irritated when I take it off, but after 24 hours, the skin looks normal and so I take this is not a true irritation, but just a reaction from removing all of the adhesive. The sure seals are hypoallergenic, so, we shouldn't have any issues there. I like taking a shower everyday, so, I am going to continue with my trials and errors with the sure seals until I get it right. :)

Still feeling okay. I am hoping my stomach aches stay away....I may still buy some chewable lactaid pills to help with lactose in case I ever drink any milk or eat any ice cream. I just can't eat alot of ice cream...only a tiny little bit and that is if I ever want to risk that pain again....

So far so good with the coloplast...these bags have the filter and poop has already crept up there. UGH....we will see what happens tonight and tomorrow. LOL Between convatec and hollister, the hollister filter works the best....

cookie, how are you feeling lately? I don't blame you for trying a new med. I would try all that was available before resorting to surgery. I would have never had surgery if not for the evil anismus.
Posted 8/23/2010 2:02 AM (GMT 0)
Aolson,
I'm 21 also, and just had my SitzMark test done a few weeks ago. My marker were all distributed throughout my colon, which meant that I had slow colonic motility in my whole colon, up to my sigmoid. If they are all in one area, its likely that that is the area that doesn't work. However, my surgeon said that removing only part of the colon is most often a waste of time, because more often then not they have to go in and remove the rest. I'm so tired of feeling sick all the time that I decided to go ahead with the colectomy, where they'll removed everything but my sigmoid colon and rectum. I'm nervous, but I really think it'll be worthwhile. I'm sorry about your problems. If it makes you feel any better, my surgeon said that this is most common in younger women, and you wouldn't be the first to have your college life disrupted.

Hope things get figured out soon. Keep us posted!
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