Total Colectomy Part 37

Wow Leslie, it sounds like you need a well deserved vacation from life!! I am so sorry you are going through all the crap that you are. I bet it is so hard to be dealing with your childrens problems let alone your own medical issues. I am lucky my kids are young and I still have a great influence in the lives. I will be crushed when they no longer care what I think or I cant tell them what to do. Wish I could just freeze their growth right now and keep them these ages forever. I would be furious if any man touched one of my daughters. I bet you want to go crush nuts right now!! No man has a right to do that to a woman.

Parole hearing for my brother's murderer is in 2 weeks. So will be leaving town to go to that. It has only been 5yrs and he is up for parole already. I just wish our justice system was like it was in the 1800's when they just hung people. If you take someones life, yours should also be taken from you..........I should not get started on this or I will write a book!

Not doing a whole lot this long weekend, just enjoying the time off work. Dont have to go back until Wednesday. I guess that is a perk to working for a dentist.

Marisa,  YUP WANT TO CRSH HIM ALRIGHT...  I dont know if you remember we chatted about your brothers case and that my 18 yr. old son was killed by a impaired driver of the car he was in.  He only did 5 years and they never notified me of any parol hearings or nothing, someone came to me and said did you know that Dan was out of prison...I WAS FURIOUS....SO  now he gets to live life and visit his kids and go on...ya don't get me started either.

Make sure you show up for every parol hearing and be herd...he needs to pay for his crime, our justice system has a lot to be desired...I have had this dang flu for 6 days now and I feel horrilble shakes, sweating, chilling aching , headache, nausia, they told me it could last for 10 days but if I get any worse to come back to the ER...well got to lay down.  I will be praying for you and your brother that they never let that man walk freely again..

Leslie

Rosemary,

I know exactly what you mean.  We need a woman in the White House to shake things up and start doing what the people want and more importantly need.  Thank God my surgeon was so terriffic and listened to me when other blew me off for so many years and just said oh you have IBS...NOT  I have not had any IBS symptoms since my surgery.  I know that I am prone to iliuses, for what reason I don't really know, but I have come to the conclusion that I usually get them if I am down and not moving so I make sure and move after every meal.  Although I am so sick right now with the flu bug I guess and the nurse just called and said it could last for 7=10 days...I hope I signed up for the 7 day one cuz that's tomorrow, but if it continues past the ten day mark or get worse in the next few days I am going back in.

I have to go for a MRI of my thorasic and lower lumbar to make sure that there is no cyst growing around my spinal cord again, because been having the same symptoms for 6 mon. like when I had to have that huge surgery, and to make sure that my lower back is still fused and that nothing is wrong their.  This is on the 15th of this month and on that same day I see my neurologist to see why I pass out at least 3 times a week...tired of hurting myself.

He has already done to EEG's on me and said he has never seen a brain scan like mine before, and that in my left frontal lobe I have a disconnect, and hence that is why I feel like I am a 100 years old...cant remember crap..so that's frustrating..

So I am hoping for no more surgeries, I have a thyroid tumor also but untill I cant swallow I will not let them do it.

I have had over 20 surgeries and proceedures in my life and I say enough already.  My body is a road map of scars that lead to no where...HE HE..

I am down to 125 lbs and I am 5"9 so I am too thin, but eat tons of cookies and candies cake and pies,  I will probably end up being a diabetic If I am not careful...but its kind of fun to eat what you like and still lose weight...

But OMG put your blinders on if I am naked cuz its not a pretty site, so keep my clothes on and I look ok...well enough..back to the couch to watch some more trauma showes...love them.

NIght Leslie

I have already been through 3 biopsys and mine can turn into cancer, but it sometimes gets too big and its big enough already but when it gets bigger it makes it hard for me to swallow, so then for some reason it backs off.  But when it get to that point again I will have it take out.

I am posting a new topic and I need everyones help I have a friend who is deathly ill and I need to know if anyone recognizes these symptoms or have herd of anything like this she is desperate...

Leslie

cookie74
yes my MRI is Sept 15, yes we are very slim.  My daughter is a massage therapist and I asked her to give me one the other day because of the horriffic headaches, she OMG mom its like massaging a skeleton.  Then her back was bother her and she asked me to sit on her lower back more towards the butt and she told me to get off cuz my but bones were killing her.

I told her now you know how I feel when I sit in a bath tub or on the toilet,  have to fold a towel under me for the bath.  When I sit on the pottie I slip right in the hole, if I manage to sit and stay on the pottie my skin hangs over the seat.  I look awful...

I told her my ass looks like a 90 yr old cuz it just hangs like a elephants ass, she said oh your exazaggerating so I dropped my drawers and turned around and showed her ....She was shocked..the first time I saw myself necked in the mirror from behind I cried for over 2 hrs.  But I figure as long as I dont date anyone I will be fine, so hopefully when I am feeling better and over this flu...I would like to work out and gain some muscle cuz I have 0 on my body and I try to gain weight but cant seem to..but my doc siad with my surgery you never will..so , so far he is right..

So good morning to all

Leslie

Hodaya, its only been a few day..be positive and you will get positive answers from the universe... I know that when I have gone online before looking for jobs, I never got answers...did you see the new post about my friend? She needs everyone help..
Best of luck to you

Leslie

Thanks mom, will check it out, but allergic to dairy....

thanks gals :) yeah, Rosemary, i also thought searching only on the net is really not enough and i should go out there. since the ileo surgery i havn't been out for long hrs, just 1-2 hrs tops for errands, like going to the national insurance, the dr etc, but not really out. i guess it's time i grab myself and take myself out there.... well i will try my best. have to work on it.

thanks Rosemary. actually i think it's normal for me now, my bag fills up only after eating, in the morning it's very little and thick, so i change the whole bag, then i drink water, tomato juice, pear juice, yogurt, omlet, 500 ml of more water, then during the next 2 hrs my bag fills up with about 700-800 ml of watery stools. then nothing till i eat lunch, at lunch i make sure i eat 2-3 table spoons of eggplant salad - that also makes my stools liquidy (YEAH!! something i found out about just couple days ago and am SO happy i found another thinner YAY), so after lunch i have like 400 ml more of soft-liquid stools, then nothin untill i eat dinner, at dinner i make sure i eat like 3 pickles and that makes my stools totally watery - so easy to empty, then not much comes out till morning.

so it's kinda normal for me... i think im just lazy..... :/ but also, the things i take to thinner my stools don't always make it totally watery, cuz it depends on what else i ate, and sometimes i have to pour water into the bag to help it come out and if i go out, it will be hard to do..... but i WILL go out! I WILL DO IT!!!!! all of this sitting at home... i think i'm losing it lol...

well sorry, all of this info gotta make you dizzy...

Hi Hodaya,

Well I went to a friend's house for dinner. My appetite is not good consistently, but then all of a sudden I'll get super hungry and feel like I'm going to fall over. So I had a scrambled egg, half a biscuit, then she had well cooked noodles with butter and salt and some tender hamburg with mild nice spice that I can tolerate digestively.

So I had only a half small dish of pasta and then chewed the burger for flavor then on the sly spit it into a napkin. I wanted to eat more pasta but was too chicken. Then I had 2 cranberry juices and a grape juice worrying that the pasta might thicken up on me. NOT the thing to do. I've outputted 2 full bags of all liquid effluent and am filling a third. WAY too much juice and not enough pasta.

You seem to have figured out a routine of food that works for you in just a short while. I've had my ileo 3 years and am STILL trying to figure it out. Auuugh!

Anyway, I suppose going too much is better than not going enough, but my system is so sensitive to speedy juices. Makes it difficult. Course transit wasn't an issue with me to begin with, but this is like a brain twister. I know I have rapid gastric emptying from that test at the Mayo Clinic, so that may have something to do with my speedy output.

Rosemary

Good morning!

Leslie, I can totally understand the stress our older kids bring us, been there, done that (still have a 29 yr old that I don't hear from for weeks, lives on the streets, addicted to drugs) I have a bleeding heart for her, I'd do anything to help, if it would only work. Hope your feeling better from the flu.

Marisa, it just BLOWS my mind that your brother's murderer can be up for Parole hearing already! Where is the justice!? I PRAY they keep him locked up .. for life! That makes me angry as well.. I've been through situations with our justice system, and it really is all screwed up!

Hodaya, keep your chin up about the job situation, the perfect job is out there for you! You'll be so happy you made the move once it all comes through for you.

Rosemary, I bet your rapid gastric emptying has something to do with your speedy output. I think I rather have that than one that is sluggish, but I'm sure it must affect your nutrition's being adsorbed..? Doe it allow you to eat what you want and stay thin?

cookie, you and Leslie both sound so thin, but I on the other hand, gain weight just looking at food! I really struggle, and I'm forever on a diet! I try and walk everyday and exercised (before surgery), but even since my last surgery (6 weeks ago today) I put on 6 pounds! I've been really watching my weight (dieting) and have lost 3 of them.

Talking about weight, my tummy is so much fatter looking than before! I'm not a thin person, nor a fat one (but could be fat if I ate what I wanted!) - just average and have 5 pounds I'd like to lose. But since my colon surgery, and the vertical incision (belly button down to pubic bone), my stomach is FAT and poochy! Has anyone else with an open, vertical (not bikini) end up with a fat, poochy tummy? I'm upset with it, I had a tummy tuck 21 yrs ago, and HAD a flat stomach, even when I gained a few pounds and was a bit over weight, my tummy WAS flat, now it's not!

Hodaya, my doctor said our output should be no more than 1200 ml in 24 hours or else we risk getting dehydrated. So, don't thin it too much.....

I am going back to work tomorrow and I am terrified. I hope everything works out and my "bag" doesn't blow up or fall off of my sweaty body. It is going to be hot here, 90 degrees for 3 of the days. UGH Scares me! But, I am bored sitting at home and I miss having a schedule. Plus, my day should work much better with me not sitting on the toilet for half of the day.....also I am saving time with me not smoking....so, I should be able to juggle work life with my responsibilities at home and the kids. I can't imagine how it is going to be....we will soon see....

HMMMMM, I hope I can still remember how to drive the bus....LOL HEEHEE


Wish me luck...

Tracy, good luck and good for you for going back to work! Fingers crosse that all goes well.

Jenise, yeah rapid gastric emptying does keep me thin.

Hodaya, Yeah be careful you don't dehydrate yourself, but glad you are happy with your new life; and to be having an ostomy was how I had to save my life, but had things gone the way they should my 2 original surgeons would not have done the unnneeded sigmoid resection, etc that put me in the situation of having to get an ostomy to save my life. But, at least I'm out, about, and traveling, suing, etc, etc. Maybe back to doing some kind of work some day if I can ever get that fatigue and light headedness issue resolved. When you eat pickles do you really eat the skin and all? Wouldn't that create a stomal blockage?

Leslie, With only my small intestine to use and having the ileostomy, I have to walk after I eat too to reduce bloat. I wonder if this has something to do with having only the use of the small intestine? (whether with a bag or not).

Has anyone heard anything about Lizzie since Allie last posted? If you log on Allie, how is her progress? If all she is is tired after all this that can be resolved in time and we can start celebrating her long-awaited success. Let us know how she's doing.

Rosemary



Rosemary