liquid retention

hello again and happy new year everybody, another question/problem for you, although I'm drinking plenty during the day, over 2 litres a day I dont seem to be urinating during the day, I go during the night, the lot of it comes out ( well about 1.5). Is this normal or does anyone know why this is?

I finished my course of steroids on Tuesday and since then haven't been able to eat much, i get that full heavy feeling after a few mouth fulls. I think that could be because of all the liquid sitting somewhere in there. Ive also felt the usual weakness tiredness and general crappyness of finishing steroids, came down faster then usual as well due to my UC not being there anymore. 3 day 5mg prednisolone drop instead of 7 days.

I had a loop ileostomy on the 9th December after about 2 months of a bad flare and 3 weeks in hospital, 2 for UC 1/2 at home then 1 pre operation, was too weak and immune system was non existent, started infliximab when i was in hospital for UC.

Had been grand while I was on the steroids, getting better more energy, more active etc then wham!! Anyway just looking for any help really have had mucous and bile coming out of my bag and entered the new year changing my seal which had sprung a little leak, have taken immodium 3 times today and will take another going to bed (twice other days since hospital), haven't had a thick motion since one on Wednesday although does feel thick in the bag now when i press it, so there is some hope for me.

Sorry forgot to mention i also have a yeast infection in my throat that i managed to pick up in hospital,am on mycostatin 1 ml drops 4 times daily for it and it has cleared up a good bit since hospital although is quite sore today.

Post Edited (garanmoldu) : 1/1/2011 3:14:04 PM (GMT-7)

My output was liquid for a while too. Around week 6 I asked my surgeon about it because I was tired of my pouch filling up so fast. He recommended Imodium. The funny thing is, the next day it stopped being so liquidy, so I haven't had to try the Imodium yet. I am at week 8 now and haven't had the problem again. My stoma nurse also said recommended a small amount of Metamucil with meals, and I have had luck with this if I know I am going to eat something that tends to give me more liquid-type output. I would check with your own nurse or doctor about adding this though since a loop ileostomy may have different issues than an end one, which is what I have.

I don't urinate as much as I used to either, and I have been drinking 3 quarts a day. In the morning I used to have to pee like crazy after drinking the smallest amount, now I don't. I do definitely go though, so if you aren't urinating at all during the day, I would check with your doc... especially if your output is mainly liquid. You can lose a lot of water that way. My surgeon told me two quarts wasn't enough and to aim for three. And that is not when I am active either. It is going to be crazy when I am backpacking and climbing. I am going to have to carry a gallon of water!

I got oral thrush as well. I seem to get it every time I go to the hospital. I took Nystatin oral suspension and it cleared up, but took a while.

I had really bad Prednisone withdrawl too. Like you, my appetite was great after surgery while I was still tapering off Prednisone. Then when I got to about 5 mg, I started to feel really awful. Nothing dangerous, but I completely lost my appetite, was insanely tired and got hot flashes and chills. Lasted about a week. I remember it took me about an hour to eat an egg and I felt nauseated the whole time. Around week 7 I finally got my appetite back. It is so good to feel hungry again. Prednisone sucks and I am really glad that I will likely never have to take it again.