Hi Rosemarie!
Well i have an ileostomy, just a bag on the other side, my whole colon was taken out about 4 months ago after unsuccessful treatment for Ulcerative Colitis. I had some awesome ET nurses (Enterostomal...the ones who train you on your ostomy), and i learned alot, and you just pick up tricks as you go. But who wants to wait when i can just tell you what i know so far?
first of all, the bag changing...i would definitely do it every other day (not every day cuz you will only irritate teh skin more by continually pulling off wafers) while the skin is still irritated. I had alot of irritation, mainly cuz my skin reacted to the adhesive in the bag system i was using (you may want to experiment with different bags...you can go online and search under ostomy bags to find companies like Hollister (the company i use) who will send you free trials of bags so you dont have to buy them until you see how they work for you. There are 1 and 2-piece systems, just depends on how your skin lays, prevents leaks if the wafer lies flat. I have to add some Flextend Skin Barrier (just a sheet of adhesive like stuff) to even out my tummy ( i am way underweight due to 40 lb weight loss after surgery) so the wafer has a flat surface to stick to.
Making it stick- Definitely use some Cavilon spray or No-sting skin barrier (also spray on) to get things to stick better so it lessens the chance of a leak.
Paste-most pastes have alcohol in them that just BURN already irritated skin, not much you can do but find one that hurts the least...i use Adapt paste, much less painful generally, but sure does hurt at first...
Cutting the bag-fitting it- you want to make sure you get the wafer as close to the stoma as possible in order to prevent irritation/leaks, and be sure to use as much paste as you need to fill in the gap (miniscule as it may be) between the stoma and the skin...VERY important. Also, when you put the paste on, make sure you let it dry before you put the bag on it, so you can spread it out...you want to make sure the stoma has room to evacuate without pulling off a big glob of paste with it and compromising the seal...i just push it back with a wet q-tip around the outside of the wafer, next to the stoma, and i tap it down so i know there is paste preventing a leak down on the skin by the stoma.
Cleaning the skin-definitely only adhesive remover (which you still have to rub a bit, just do it slowly so you dont hurt the poor thing) or water...no soap or other products. Let air hit the skin for as long as you can...have some gauze or my fave, paper towel (TP is too flimsy) to catch anything that comes out while you are airing it...it needs the air like any part of your skin does...the more air it gets the better it will heal up...
I think that is it...if i remember more ill post again...any question be SURE to email me...i cant believe you didnt get proper training, what a crock! This is soooo important!
[email protected]~Eileen